Overview
What is Fshd Society?
The Fshd Society, situated in Randolph, Massachusetts, is a dedicated nonprofit organization with a mission to expedite research and ultimately find a treatment and cure for FSHD muscular dystrophy. With a team of 17 individuals, their primary focus is on increasing awareness and understanding of this condition, as well as conducting extensive research into its causes. They are committed to organizing and funding these investigations, with the ultimate goal of developing effective treatments and a cure for FSHD muscular dystrophy. The Fshd Society plays a crucial role in the ongoing quest to overcome this debilitating disease.
Official website here: www.fshdsociety.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 100% (Four-Star out of Four Star rating)
The FSHD Society has achieved an impressive 100% rating on Charity Navigator, indicating exceptional accountability and financial management. The organization benefits from a fully independent board, with strong policies in place, including conflict of interest and whistleblower protections. It maintains a high program expense ratio, ensuring most funds are directed toward charitable activities rather than administrative costs.
User feedback consistently highlights the FSHD Society's significant impact on individuals and families affected by Facioscapulohumeral Muscular Dystrophy (FSHD). Reviewers express gratitude for the support and educational resources provided, noting that the Society has fostered a supportive community and improved their outlook on living with this challenging condition. Many comment on the organization’s dedication to advancing research, with some expressing hope for treatments by 2025.
While the feedback is overwhelmingly positive, it remains important to note that the success of the FSHD Society is closely tied to ongoing fundraising and support from the community. As a nonprofit focused on research and advocacy, continued engagement and contributions are vital for sustaining their mission and enhancing the quality of life for those affected by FSHD.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Fshd Society legitimate?
Fshd Society is a legitimate nonprofit organization registered as a 501(c)(3) entity. Fshd Society submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $630,609
Professional Fundraising Fees: $0
Other Salaries and Wages: $1,061,369
For more financial information, click here
Official website here: www.fshdsociety.org
What is the mission statement of Fshd Society?
The Fshd Society is committed to increasing awareness and understanding of Facioscapulohumeral Muscular Dystrophy. Their primary mission is to accelerate research, aiming to expedite the development of treatments and ultimately a cure for this muscular dystrophy. The organization focuses on funding and organizing research into the causes of FSHD, with the ultimate goal of creating effective treatments and finding a cure. This research-driven approach is at the heart of the Fshd Society's mission.
Official website here: www.fshdsociety.org
Who is the CEO of Fshd Society?
Mark A Stone is the Chairman of Fshd Society. The CEO's salary of Fshd Society is $223,921 and their total compensation is $272,924.
Official website here: www.fshdsociety.org
What is the revenue of Fshd Society?
Fshd Society's revenue in 2022 was $3,508,920.
Official website here: www.fshdsociety.org
Who are the executives of Fshd Society and what are their salaries?
The average compensation at Fshd Society during 2022 was $99,528. There are 17 employees and 863 volunteers at Fshd Society.
Here are 24 key members and their salaries (Fshd Society's CEO's salary is $223,921 and their total compensation is $272,924):
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $223,921
- Related: $0
- Other: $49,003
- Compensation: $116,490
- Related: $0
- Other: $23,958
- Compensation: $197,520
- Related: $0
- Other: $19,717
- Compensation: $114,232
- Related: $0
- Other: $30,953
- Compensation: $122,500
- Related: $0
- Other: $5,655
- Compensation: $108,907
- Related: $0
- Other: $20,523
- Compensation: $103,000
- Related: $0
- Other: $4,794
Official website here: www.fshdsociety.org
Where can I find the form 990 for Fshd Society?
Fshd Society's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.fshdsociety.org
Learn more at the official website: www.fshdsociety.org
Mission Statement of Fshd Society
The FSHD Society is dedicated to increasing awareness and understanding of Facioscapulohumeral Muscular Dystrophy (FSHD). This nonprofit organization's mission is to spearhead research in this area, with the ultimate goal of expediting treatments and finding a cure for FSHD. The society actively works towards organizing and funding research into the causes of FSHD, aiming to develop effective treatments and potentially a cure for this muscular dystrophy. The core mission of the FSHD Society is centered around accelerating research in this field, with the hope of providing relief and hope for those affected by this condition.
Shop smarter and support your favorite cause with the Give Freely browser extension. Save money with coupons and donate to charity with a single click. Download now!
Impact
July, 2024
The Fshd Society's impact lies in advancing research to accelerate the development of treatments and ultimately find a cure for Facioscapulohumeral Muscular Dystrophy (FSHD). Through organizing and funding research into the causes of FSHD, the society is dedicated to increasing awareness and understanding of this condition. Their mission is to drive progress in medical research, particularly in the field of FSHD, with the ultimate goal of improving the lives of those affected by this disease.
This information is meant to be a general summary of Fshd Society. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $133,904
- Program Service Revenue: $304,466
- Gross Receipts: $3,774,376
Assets and Liabilities:
- Total Assets: $6,079,315
- Total Liabilities: $1,400,698
- Net Assets: $4,678,617
Want to help this charity, for free? You can click here to learn more about Give Freely
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CORPORATE SPONSORSHIPS
Revenue
$207,607
PATIENT MEETING REGIST
Revenue
$37,708
RESEARCH MEETING REGIS
Revenue
$37,151
CORPORATE PARTNERSHIPS
Revenue
$22,000
Organization Details
Founding Year
1991
Phone
(781) 301-6060Principal Officer
Mark A Stone
Main Address
75 NORTH MAIN STREET 1073, RANDOLPH, MA, 02368
Website
www.fshdsociety.orgNTEE Category
Code: H20Z - Medical research
If you are a representative of Fshd Society and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.