Overview
What is The Marfan Foundation Inc?
The Marfan Foundation Inc, based in Port Washington, New York, is a dedicated nonprofit organization that focuses on advancing research for genetic aortic and vascular conditions such as Marfan, Loey-Dietz, and Vascular Ehlers-DANLOS (VEDS) syndromes. Over the past 41 years, they have funded 170 research grants, significantly contributing to reducing life-threatening problems, identifying treatments, and improving the quality of life for those affected. The foundation collaborates with the research community and international organizations to discover new therapies and treatments. Their grant mechanisms support a pipeline of dedicated researchers, ensuring the continuation of scientific discovery in the field of rare diseases. The Marfan Foundation also convenes national and international research conferences, facilitates collaborations, and holds symposia to expedite research progress. They partner with government agencies and healthcare organizations to further their research goals and advocate for additional funding. The organization's mission is to save lives and improve the quality of life for individuals with these conditions by pursuing innovative research, educating the public and patient community, and providing relentless support to families, caregivers, and healthcare providers.
Official website here: www.marfan.org
What are the reviews and ratings of this charity?
**Charity Navigator Rating: 99% (Four-Star out of Four Stars)**
The Marfan Foundation Inc has received an impressive 99% score on Charity Navigator, reflecting its commitment to accountability and transparency. With a robust rating across various operational metrics, including financial health and community impact, the organization demonstrates its effectiveness in managing resources and achieving its mission of supporting individuals with genetic aortic and vascular conditions.
Strengths highlighted include a fully independent board and a solid financial structure, with a high program expense ratio indicating that the majority of funds are directed towards impactful programs. The foundation emphasizes equity practices and shows exceptional leadership adaptability, which contributes to its operational success and community engagement.
While there are no user reviews available, the overall rating suggests that the organization is well-regarded in terms of effectiveness and trustworthiness. However, prospective supporters may benefit from seeking direct testimonies or stories from individuals who have interacted with the Foundation for a more personal perspective on its impact.
This AI summary has been generated from information found on Charity Navigator.
What do the Facebook reviews say about The Marfan Foundation Inc?
96% of 678 reviewers on Facebook recommend The Marfan Foundation Inc. Here is a summary of their reviews:
Many supporters express heartfelt sentiments regarding the impact of Marfan Syndrome, often sharing personal stories about loved ones affected by the condition. Donations are frequently mentioned as a meaningful way to contribute to the cause, emphasizing the importance of increasing awareness and supporting those living with Marfan Syndrome.
Overall, the sentiment is overwhelmingly positive, with individuals appreciating the foundation's mission and actively encouraging others to get involved and contribute. The community seems united in their support and advocacy for improved understanding and resources related to Marfan Syndrome.
This AI summary has been generated from reviews found on Facebook.
Is The Marfan Foundation Inc legitimate?
The Marfan Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Marfan Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $816,272
Professional Fundraising Fees: $0
Other Salaries and Wages: $2,119,490
For more financial information, click here
Official website here: www.marfan.org
What is the mission statement of The Marfan Foundation Inc?
The Marfan Foundation Inc's mission is centered around saving lives and enhancing the quality of life for individuals affected by genetic aortic and vascular conditions, such as Marfan, Loey-Dietz, and Vascular Ehlers-Danlos (VEDS) syndromes. The organization is committed to driving innovative research and ensuring adequate funding for these studies. Furthermore, they strive to foster an informed public and educated patient community, promoting early diagnosis and life-saving treatments. Lastly, The Marfan Foundation Inc provides continuous support to families, caregivers, and healthcare providers, serving as a reliable source of assistance and guidance.
Official website here: www.marfan.org
Who is the CEO of The Marfan Foundation Inc?
Michael L Weamer is the Pres/Ceo of The Marfan Foundation Inc. The CEO's salary of The Marfan Foundation Inc is $409,261 and their total compensation is $447,177.
Official website here: www.marfan.org
What is the revenue of The Marfan Foundation Inc?
The Marfan Foundation Inc's revenue in 2023 was $8,195,380.
Official website here: www.marfan.org
Who are the executives of The Marfan Foundation Inc and what are their salaries?
The average compensation at The Marfan Foundation Inc during 2023 was $117,430. There are 25 employees and 500 volunteers at The Marfan Foundation Inc.
Here are 29 key members and their salaries (The Marfan Foundation Inc's CEO's salary is $409,261 and their total compensation is $447,177):
- Compensation: $409,261
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- Other: $37,916
- Compensation: $233,191
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- Other: $23,522
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- Other: $21,537
- Compensation: $145,687
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- Other: $20,512
- Compensation: $125,551
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- Other: $19,916
- Compensation: $111,939
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- Other: $19,538
- Compensation: $101,622
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- Other: $29,190
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Official website here: www.marfan.org
Where can I find the form 990 for The Marfan Foundation Inc?
The Marfan Foundation Inc's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.marfan.org
Learn more at the official website: www.marfan.org
Mission Statement of The Marfan Foundation Inc
The Marfan Foundation Inc is committed to saving lives and enhancing the quality of life for individuals afflicted with genetic aortic and vascular conditions such as Marfan, Loey-Dietz, and Vascular Ehlers-Danlos (VEDS) syndromes. In pursuit of this mission, the organization actively seeks out and supports innovative research, ensuring that it receives adequate funding. By fostering an informed and educated public, as well as a patient community, The Marfan Foundation Inc works towards early diagnosis and the provision of life-saving treatments. Furthermore, the nonprofit offers relentless support to families, caregivers, and healthcare providers, providing them with the resources they need to navigate these complex conditions.
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Impact
July, 2024
The Marfan Foundation Inc saves lives and improves the quality of life for individuals with genetic aortic and vascular conditions, including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos Syndromes. Through its robust research programs and collaborations with the scientific community, the Foundation has advanced science for over four decades, funding numerous research grants that have led to life-saving treatments and improved outcomes for those living with these conditions. By convening national and international research conferences, facilitating collaborations, and advocating for additional research funding, The Marfan Foundation is at the forefront of driving progress in the field of rare genetic diseases.
This information is meant to be a general summary of The Marfan Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $313,246
- Program Service Revenue: $225,206
- Gross Receipts: $11,837,446
Assets and Liabilities:
- Total Assets: $18,561,612
- Total Liabilities: $1,718,116
- Net Assets: $16,843,496
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
OTHER CONFERENCES
Revenue
$146,555
MARFAN CONFERENCE
Revenue
$78,651
Organization Details
Founding Year
1981
Phone
(516) 883-8712Principal Officer
Michael L Weamer
Main Address
22 MANHASSET AVENUE, PORT WASHINGTON, NY, 110502023
Website
www.marfan.orgNTEE Category
Code: G43 - Disease
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