Overview
What is Epilepsy Foundation Of America?
The Epilepsy Foundation of America is a renowned nonprofit organization based in Bowie, Maryland, with a workforce of 111 individuals. They are dedicated to advocating for individuals, families, and communities affected by epilepsy and seizures. The foundation offers a range of programs through its network of nearly 50 chapters and affiliates, available on Epilepsy.com. Their initiatives prioritize engaging parents, children, and adults in improving their quality of life. Additionally, they have programs aimed at ending early death from epilepsy and promoting overall wellness. The foundation's efforts are culturally and ethnically diverse, and it advocates for funding for epilepsy programs at the federal and state levels with the support of its grassroots volunteers. In essence, the Epilepsy Foundation of America leads the fight against the challenges of living with epilepsy and accelerates therapies to stop seizures, find cures, and save lives.
Official website here: www.epilepsy.com
What are the reviews and ratings of this charity?
Charity Navigator rating: 99%, Four-Star out of Four Star rating
The Epilepsy Foundation of America has earned an impressive Four-Star rating from Charity Navigator, reflecting its high standards in accountability and financial management. With a perfect score of 100 in the Accountability & Finance category, the organization demonstrates strong governance practices, including an independent board and effective audit oversight. The foundation's financial health is commendable, with a program expense ratio of 79.31%, indicating that a significant portion of its budget is directed towards fulfilling its mission.
In addition to its financial strengths, the foundation scored well in the Culture & Community category, achieving an 89 out of 100. This score highlights its commitment to equity strategies and community engagement, suggesting that the organization not only focuses on financial stability but also prioritizes inclusivity and support for individuals affected by epilepsy. The presence of robust policies, such as conflict of interest and whistleblower protections, further signifies its dedication to ethical practices.
While the foundation appears to excel in various performance metrics, it is essential for potential donors and stakeholders to stay informed about ongoing activities and any changes in management practices. Overall, the Epilepsy Foundation of America stands out as a reliable and effective nonprofit organization in its field.
This AI summary has been generated from information found on Charity Navigator.
Is Epilepsy Foundation Of America legitimate?
Epilepsy Foundation Of America is a legitimate nonprofit organization registered as a 501(c)(3) entity. Epilepsy Foundation Of America submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $1,457,347
Professional Fundraising Fees: $276,575
Other Salaries and Wages: $5,586,500
For more financial information, click here
Official website here: www.epilepsy.com
What is the mission statement of Epilepsy Foundation Of America?
The Epilepsy Foundation of America strives to make a significant impact in the lives of those affected by epilepsy. Their mission is to spearhead the fight against the challenges posed by epilepsy and accelerate therapies to stop seizures, discover cures, and ultimately save lives. The foundation plays a pivotal role in advocating for individuals, families, and communities, ensuring they receive the best possible services and care. Through its network of chapters and affiliates, the foundation offers various programs designed to enhance the quality of life for people living with epilepsy, from engaging parents, children, and adults to ending early death from epilepsy and promoting overall wellness. The foundation's efforts are geared towards cultural and ethnic diversity, and its grassroots volunteers advocate at the federal and state levels to secure funding for epilepsy programs.
Official website here: www.epilepsy.com
Who is the CEO of Epilepsy Foundation Of America?
Alison Zetterquist is the Principal Officer of Epilepsy Foundation Of America. The CEO's salary of Epilepsy Foundation Of America is $403,076 and their total compensation is $457,816.
Official website here: www.epilepsy.com
What is the revenue of Epilepsy Foundation Of America?
Epilepsy Foundation Of America's revenue in 2022 was $21,897,167.
Official website here: www.epilepsy.com
Who are the executives of Epilepsy Foundation Of America and what are their salaries?
The average compensation at Epilepsy Foundation Of America during 2022 was $63,458. There are 111 employees and 100 volunteers at Epilepsy Foundation Of America.
Here are 35 key members and their salaries (Epilepsy Foundation Of America's CEO's salary is $403,076 and their total compensation is $457,816):
- Compensation: $403,076
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- Other: $54,740
- Compensation: $239,278
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- Other: $62,373
- Compensation: $176,788
- Related: $0
- Other: $37,566
- Compensation: $148,548
- Related: $0
- Other: $22,665
- Compensation: $146,332
- Related: $0
- Other: $27,711
- Compensation: $134,882
- Related: $0
- Other: $27,052
- Compensation: $125,794
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Official website here: www.epilepsy.com
Where can I find the form 990 for Epilepsy Foundation Of America?
Epilepsy Foundation Of America's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.epilepsy.com
Learn more at the official website: www.epilepsy.com
Mission Statement of Epilepsy Foundation Of America
The Epilepsy Foundation of America is a leading advocacy group dedicated to improving and saving lives through community services, education, access to care, and research. With a mission to put an end to the challenges faced by people living with epilepsy and seizures, this organization strives to accelerate therapies and find cures to stop seizures and ultimately save lives.
The Epilepsy Foundation of America stands at the forefront, helping ensure individuals, families, and communities receive the best possible services and care. By developing nationwide programs, the foundation offers support through its network of nearly 50 chapters and affiliates, as well as on Epilepsy.com. These programs cater to a diverse range of individuals, from parents and children to adults, and are designed to improve quality of life and end early death from epilepsy. The foundation's grassroots volunteers, spread across the country, advocate at the federal and state levels, securing funding for epilepsy programs.
In their pursuit of achieving a better future for those affected by epilepsy and seizures, the Epilepsy Foundation of America engages parents, children, and adults in improving their overall well-being. The organization's initiatives aim to provide culturally and ethnically diverse resources, empowering individuals to lead fulfilling lives despite the challenges brought on by epilepsy. Through their relentless dedication and advocacy efforts, they strive for a world where everyone living with epilepsy can reach their full potential.
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Impact
October, 2024
The Epilepsy Foundation of America significantly impacts the lives of individuals and families affected by epilepsy through a comprehensive approach that encompasses community services, education, and advocacy. By focusing on improving healthcare access and quality of life, the Foundation ensures that those living with epilepsy receive essential support.
With nearly 50 chapters and affiliates across the country, the Foundation develops and implements nationwide programs tailored to engage parents, children, and adults. These initiatives are designed to enhance the well-being of those impacted by epilepsy and address crucial issues like preventing early death and promoting overall health.
The Foundation's efforts are culturally and ethnically inclusive, recognizing the diverse needs of the communities they serve. Advocacy at both federal and state levels is another vital aspect of their impact, as they work tirelessly to secure funding for epilepsy programs and raise awareness about the condition. By leading these initiatives, the Foundation plays a pivotal role in advancing research, accelerating therapies, and fighting to overcome the challenges of living with epilepsy, ultimately aiming to save lives.
This information is meant to be a general summary of Epilepsy Foundation Of America. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $2,003,827
- Program Service Revenue: $642,816
- Gross Receipts: $24,468,946
Assets and Liabilities:
- Total Assets: $20,384,765
- Total Liabilities: $3,187,329
- Net Assets: $17,197,436
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
AFFILIATE FEES
Revenue
$409,658
Organization Details
Founding Year
1967
Phone
(800) 332-1000Principal Officer
Alison Zetterquist
Main Address
3540 CRAIN HIGHWAY 675, BOWIE, MD, 20716
Website
www.epilepsy.comNTEE Category
Code: G54Z - Disease
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