Overview
What is Louisiana Hemophilia Foundation?
The Louisiana Hemophilia Foundation is a nonprofit organization situated in Baton Rouge, Louisiana. Their mission is to enhance the lives of individuals affected by inherited bleeding disorders. They achieve this through various programs, including hosting approximately 20 educational events annually, facilitating access to medical care by addressing obstacles that hinder patients from receiving proper treatment, organizing summer camps for children, providing support service resources and connections when needed, and offering patient assistance programs such as MediAlert services and general aid. Additionally, they advocate for the cause and promote research to further improve the quality of life for those affected by inherited bleeding disorders.
What are the reviews and ratings of this charity?
Charity Navigator Rating: Needs Improvement (66%, Two-Star out of Four Star rating)
The Louisiana Hemophilia Foundation has received a Two-Star rating from Charity Navigator, indicating that there are areas needing significant improvement. The organization has strong governance with 100% independent board members and a good liabilities to assets ratio at 29.50%, but it lacks transparency in its financial reporting, as no financial statements were provided.
While the foundation has established policies such as a conflict of interest and whistleblower policy, critical elements like a document retention policy and posting of tax forms on its website are missing. Additionally, despite a reasonable program expense ratio of 62.68%, the lack of accessible financial information could hinder trust and support from potential donors. Overall, the foundation shows promise in governance but needs to address its financial transparency and communication to enhance its credibility.
This AI summary has been generated from information found on Charity Navigator.
Is Louisiana Hemophilia Foundation legitimate?
Louisiana Hemophilia Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Louisiana Hemophilia Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $115,495
For more financial information, click here
What is the mission statement of Louisiana Hemophilia Foundation?
The Louisiana Hemophilia Foundation's mission is focused on improving the quality of life for individuals affected by inherited bleeding disorders. They achieve this by providing education, advocacy, and access to care support services. The organization also promotes research to further advance the understanding and treatment of these conditions. Their activities include hosting approximately 20 educational events annually, removing barriers to medical care, offering summer camp opportunities for children, providing support service resources and connections as needed, and operating patient assistance programs such as Medic Alert services and general assistance.
Who is the CEO of Louisiana Hemophilia Foundation?
Ashley Castello is the Trustee of Louisiana Hemophilia Foundation.
What is the revenue of Louisiana Hemophilia Foundation?
Louisiana Hemophilia Foundation's revenue in 2022 was $511,517.
Who are the executives of Louisiana Hemophilia Foundation and what are their salaries?
The average compensation at Louisiana Hemophilia Foundation during 2022 was $57,748. There are 2 employees at Louisiana Hemophilia Foundation.
Here are 6 key members and their salaries:
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Where can I find the form 990 for Louisiana Hemophilia Foundation?
Louisiana Hemophilia Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Mission Statement of Louisiana Hemophilia Foundation
The Louisiana Hemophilia Foundation is committed to enhancing the lives of individuals affected by inherited bleeding disorders. Through its mission, the organization aims to achieve this by offering education, advocacy, access to care support services, and promoting research. This mission is essential in improving the quality of life for these individuals, ensuring they have the necessary resources and support to navigate their conditions.
To bring this mission to fruition, the Louisiana Hemophilia Foundation implements various programs. One such program involves providing ongoing education through approximately 20 educational events held throughout the year. This educational initiative enables individuals affected by inherited bleeding disorders to gain valuable insights and knowledge, empowering them to manage their conditions more effectively.
Another key aspect of the Louisiana Hemophilia Foundation's mission is facilitating access to medical care for these individuals. This is achieved by addressing and removing obstacles that may prevent patients from obtaining necessary medical attention. The foundation also offers support services and resources when needed, connecting individuals with the assistance they require.
Furthermore, the Louisiana Hemophilia Foundation provides patient assistance programs, including MediAlert services and general assistance when required. These programs offer crucial support to individuals affected by inherited bleeding disorders, helping them to manage their conditions and improve their overall quality of life.
In addition to its core programs, the Louisiana Hemophilia Foundation is also involved in advocacy efforts. Its advocacy work focuses on promoting policies and initiatives that support individuals affected by inherited bleeding disorders. By advocating for their rights and needs, the foundation strives to ensure that these individuals have the resources and support they require to live fulfilling lives.
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Impact
July, 2024
The Louisiana Hemophilia Foundation is significantly impacting the lives of individuals affected by inherited bleeding disorders by providing crucial support services, education, advocacy, access to care, and research opportunities. Through approximately 20 educational events held throughout the year, the organization ensures ongoing education for individuals and families facing these challenges. They also work to remove obstacles that prevent patients from accessing necessary medical care, provide support services and resources, and offer patient assistance programs, including medical alert services and general assistance when needed. Additionally, the foundation provides access to summer camp for children affected by bleeding disorders, further enhancing their quality of life. Through their comprehensive and multifaceted approach, the Louisiana Hemophilia Foundation is making a tangible difference in the lives of those impacted by these conditions.
This information is meant to be a general summary of Louisiana Hemophilia Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $19
- Program Service Revenue: $215,518
- Gross Receipts: $511,517
Assets and Liabilities:
- Total Assets: $82,972
- Total Liabilities: $24,480
- Net Assets: $58,492
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
RETREAT REVENUE
Revenue
$78,067
ANNUAL MEETING
Revenue
$73,500
SUMMER CAMP
Revenue
$23,312
FAMILY DAY REVENUE
Revenue
$20,639
COMMUNITY GATHERING
Revenue
$20,000
Organization Details
Founding Year
1976
Phone
(225) 291-1675Principal Officer
Ashley Castello
Main Address
3084 WEST FORK DR A, BATON ROUGE, LA, 70816
NTEE Category
Code: G50 - Disease
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