Louisiana Hemophilia Foundation

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 510207472 ✦ Baton rouge, LA ✦ Designated as a 501(c)(3)

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Overview

What is Louisiana Hemophilia Foundation?

The Louisiana Hemophilia Foundation is a nonprofit organization situated in Baton Rouge, Louisiana. Their mission is to enhance the lives of individuals affected by inherited bleeding disorders. They achieve this through various programs, including hosting approximately 20 educational events annually, facilitating access to medical care by addressing obstacles that hinder patients from receiving proper treatment, organizing summer camps for children, providing support service resources and connections when needed, and offering patient assistance programs such as MediAlert services and general aid. Additionally, they advocate for the cause and promote research to further improve the quality of life for those affected by inherited bleeding disorders.


Official website here: www.lahemo.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: Needs Improvement (66%, Two-Star out of Four Star rating)

The Louisiana Hemophilia Foundation has received a Two-Star rating from Charity Navigator, indicating that there are areas needing significant improvement. The organization has strong governance with 100% independent board members and a good liabilities to assets ratio at 29.50%, but it lacks transparency in its financial reporting, as no financial statements were provided.

While the foundation has established policies such as a conflict of interest and whistleblower policy, critical elements like a document retention policy and posting of tax forms on its website are missing. Additionally, despite a reasonable program expense ratio of 62.68%, the lack of accessible financial information could hinder trust and support from potential donors. Overall, the foundation shows promise in governance but needs to address its financial transparency and communication to enhance its credibility.


This AI summary has been generated from information found on Charity Navigator.

Is Louisiana Hemophilia Foundation legitimate?

Louisiana Hemophilia Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Louisiana Hemophilia Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $128,416

For more financial information, click here


Official website here: www.lahemo.org

What is the mission statement of Louisiana Hemophilia Foundation?

The Louisiana Hemophilia Foundation's mission is focused on improving the quality of life for individuals affected by inherited bleeding disorders. They achieve this by providing education, advocacy, and access to care support services. The organization also promotes research to further advance the understanding and treatment of these conditions. Their activities include hosting approximately 20 educational events annually, removing barriers to medical care, offering summer camp opportunities for children, providing support service resources and connections as needed, and operating patient assistance programs such as Medic Alert services and general assistance.


Official website here: www.lahemo.org

What is the revenue of Louisiana Hemophilia Foundation?

Louisiana Hemophilia Foundation's revenue in 2023 was $701,140.


Official website here: www.lahemo.org

Who are the executives of Louisiana Hemophilia Foundation and what are their salaries?

The average compensation at Louisiana Hemophilia Foundation during 2023 was $64,208. There are 2 employees at Louisiana Hemophilia Foundation.

Here are 7 key members and their salaries:


Jennifer Borrillo (Advisor)
  • Compensation: $0
  • Related: $0
  • Other: $0
Claudette Vicks (Advisor)
  • Compensation: $0
  • Related: $0
  • Other: $0
Danielle Rowley (Executive Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Gwynn Shamlin (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0
Akesha Allen (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Subodh Pethe (Vice-President)
  • Compensation: $0
  • Related: $0
  • Other: $0
David Reynaud (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.lahemo.org

Where can I find the form 990 for Louisiana Hemophilia Foundation?

Louisiana Hemophilia Foundation's most recent form 990 was submitted in 2023 and can be accessed here.


Official website here: www.lahemo.org

Learn more at the official website: www.lahemo.org

Mission Statement of Louisiana Hemophilia Foundation

The Louisiana Hemophilia Foundation is committed to enhancing the lives of individuals affected by inherited bleeding disorders. Through its mission, the organization aims to achieve this by offering education, advocacy, access to care support services, and promoting research. This mission is essential in improving the quality of life for these individuals, ensuring they have the necessary resources and support to navigate their conditions.

To bring this mission to fruition, the Louisiana Hemophilia Foundation implements various programs. One such program involves providing ongoing education through approximately 20 educational events held throughout the year. This educational initiative enables individuals affected by inherited bleeding disorders to gain valuable insights and knowledge, empowering them to manage their conditions more effectively.

Another key aspect of the Louisiana Hemophilia Foundation's mission is facilitating access to medical care for these individuals. This is achieved by addressing and removing obstacles that may prevent patients from obtaining necessary medical attention. The foundation also offers support services and resources when needed, connecting individuals with the assistance they require.

Furthermore, the Louisiana Hemophilia Foundation provides patient assistance programs, including MediAlert services and general assistance when required. These programs offer crucial support to individuals affected by inherited bleeding disorders, helping them to manage their conditions and improve their overall quality of life.

In addition to its core programs, the Louisiana Hemophilia Foundation is also involved in advocacy efforts. Its advocacy work focuses on promoting policies and initiatives that support individuals affected by inherited bleeding disorders. By advocating for their rights and needs, the foundation strives to ensure that these individuals have the resources and support they require to live fulfilling lives.

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Impact




July, 2024

The Louisiana Hemophilia Foundation is significantly impacting the lives of individuals affected by inherited bleeding disorders by providing crucial support services, education, advocacy, access to care, and research opportunities. Through approximately 20 educational events held throughout the year, the organization ensures ongoing education for individuals and families facing these challenges. They also work to remove obstacles that prevent patients from accessing necessary medical care, provide support services and resources, and offer patient assistance programs, including medical alert services and general assistance when needed. Additionally, the foundation provides access to summer camp for children affected by bleeding disorders, further enhancing their quality of life. Through their comprehensive and multifaceted approach, the Louisiana Hemophilia Foundation is making a tangible difference in the lives of those impacted by these conditions.




This information is meant to be a general summary of Louisiana Hemophilia Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$701,140 (2023)
Expenses
$622,602 (2023)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2023.

  • Investment Income: $8
  • Program Service Revenue: $299,189
  • Gross Receipts: $701,140

Assets and Liabilities:

  • Total Assets: $82,972
  • Total Liabilities: $24,480
  • Net Assets: $58,492

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

EVENTS

Revenue

$287,142

ADVERTISING

Revenue

$8,800

TRAVEL

Revenue

$3,247

Organization Details

Founding Year

1976

Principal Officer

Danielle Rowley

NTEE Category

Code: G50 - Disease

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