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Cystic Fibrosis Research Institute

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 510169988 ✦ Palo alto, CA ✦ Designated as a 501(c)(3)

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Overview

What is Cystic Fibrosis Research Institute?

The Cystic Fibrosis Research Institute is a dedicated nonprofit organization based in Palo Alto, California. With a team of seven dedicated individuals, its primary mission is to fund research, provide education, and offer personal support to individuals affected by cystic fibrosis, a life-threatening genetic disease. The institute works tirelessly to spread awareness about this condition, aiming to improve the quality of life for those affected. Through its efforts, the institute strives to uncover new treatments and advancements in the field of cystic fibrosis.


Official website here: www.cfri.org/

What are the reviews and ratings of this charity?

Charity Navigator Rating: 100%, Four-Star out of Four Star rating

The Cystic Fibrosis Research Institute (CFRI) has achieved a perfect score of 100%, indicating strong financial health and organizational transparency. This rating is reflective of its outstanding accountability and finance practices, with a program expense ratio of 86.10%. The organization demonstrates effective leadership and adaptability, bolstered by an independent board and robust oversight mechanisms.

User feedback consistently highlights CFRI's compassionate staff and the personalized support provided to families affected by cystic fibrosis. Many testimonials emphasize the sense of community and the extensive range of services offered, including educational programs, retreats, and advocacy initiatives. Clients and volunteers express deep gratitude for the emotional and practical support that CFRI provides, which significantly enhances the quality of life for those living with CF.

Despite its many strengths, some feedback suggests that the organization operates on a smaller scale compared to larger entities in the field, which may limit its reach. However, users appreciate the intimate environment that allows for tailored support and responsiveness to the community's needs. Overall, CFRI emerges as a vital resource dedicated to improving the lives of individuals and families impacted by cystic fibrosis through research funding, education, and advocacy.


This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.

Is Cystic Fibrosis Research Institute legitimate?

Cystic Fibrosis Research Institute is a legitimate nonprofit organization registered as a 501(c)(3) entity. Cystic Fibrosis Research Institute submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $108,992
Professional Fundraising Fees: $0
Other Salaries and Wages: $240,173

For more financial information, click here


Official website here: www.cfri.org/

What is the mission statement of Cystic Fibrosis Research Institute?

The Cystic Fibrosis Research Institute is committed to funding research, providing educational and personal support, and raising awareness about cystic fibrosis, a life-threatening genetic disease. Their primary goal is to advance knowledge in the field of cystic fibrosis, with the aim of improving diagnosis and treatment options. They also offer resources and support to individuals and families affected by the disease, helping them navigate the challenges associated with it. Furthermore, the institute works to increase public understanding of cystic fibrosis, striving to create a more supportive and informed community.


Official website here: www.cfri.org/

Who is the CEO of Cystic Fibrosis Research Institute?

Bill Hult is the Board Member of Cystic Fibrosis Research Institute.


Official website here: www.cfri.org/

What is the revenue of Cystic Fibrosis Research Institute?

Cystic Fibrosis Research Institute's revenue in 2022 was $1,350,296.


Official website here: www.cfri.org/

Who are the executives of Cystic Fibrosis Research Institute and what are their salaries?

The average compensation at Cystic Fibrosis Research Institute during 2022 was $49,881. There are 7 employees and 150 volunteers at Cystic Fibrosis Research Institute.


Here are 14 key members and their salaries:


Francine Bion (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Zoe Davies (Board Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Julie Desch (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Colleen Dunn (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Oscar A Flamenco (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Elyse Elconin Goldberg (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jean Hanley (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Bill Hult (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jessica Martens (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Doug Modlin (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Richard B Moss (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Arek Puzia (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ahmet Uluer (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Siri Vaeth (Executive Director)
  • Compensation: $108,992
  • Related: $0
  • Other: $0


Official website here: www.cfri.org/

Where can I find the form 990 for Cystic Fibrosis Research Institute?

Cystic Fibrosis Research Institute's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.cfri.org/

Learn more at the official website: www.cfri.org/

Mission Statement of Cystic Fibrosis Research Institute

The Cystic Fibrosis Research Institute is committed to a mission that encompasses three key areas. First and foremost, they aim to finance research into cystic fibrosis, a life-threatening genetic disease. This pursuit of scientific advancements is crucial in understanding the disease better and potentially discovering new treatments or cures.

Secondly, this nonprofit organization provides educational and personal support to individuals and families affected by cystic fibrosis. This support can take various forms, such as offering resources and information about the disease, as well as emotional and practical assistance to help those affected navigate their daily lives.

Lastly, the Cystic Fibrosis Research Institute is dedicated to spreading awareness of this disease. By raising public understanding and support, they hope to generate more funding for research and improve the overall outlook for those living with cystic fibrosis. This awareness campaign is essential in breaking down stigmas, fostering empathy, and encouraging society to take action in support of those affected by this genetic disease.

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Impact




July, 2024

The Cystic Fibrosis Research Institute plays a crucial role in funding cystic fibrosis research, providing education and personal support to individuals affected by the disease, and spreading awareness about cystic fibrosis. Through their efforts, they contribute to advancements in medical research and support those living with this life-threatening genetic disease. Their work helps to improve the lives of individuals with cystic fibrosis and drive progress towards finding better treatments and ultimately a cure.




This information is meant to be a general summary of Cystic Fibrosis Research Institute. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$1,350,296 (2022)
Expenses
$1,525,935 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $21,420
  • Program Service Revenue: $2,700
  • Gross Receipts: $1,378,988

Assets and Liabilities:

  • Total Assets: $3,199,342
  • Total Liabilities: $37,586
  • Net Assets: $3,161,756

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

EDUCATION PROGRAM

Revenue

$2,700

Organization Details

Founding Year

1975

Principal Officer

Bill Hult

Main Address

1731 EMBARCADERO ROAD SUITE 210, PALO ALTO, CA, 94303

NTEE Category

Code: H24Z - Medical research

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