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National Down Syndrome Congress

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 510163631 ✦ Roswell, GA ✦ Designated as a 501(c)(3)

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Overview

What is National Down Syndrome Congress?

The National Down Syndrome Congress (NDSC) is a dedicated nonprofit organization situated in Roswell, Georgia. Their primary mission is to provide comprehensive information, advocacy, and support to individuals with Down syndrome and their families, addressing various aspects of their lives. The NDSC has an outreach program that aims to connect with underrepresented communities, such as Hispanic, African American, and Middle Eastern families. Moreover, they have a government affairs function, which includes a representative in Washington D.C., who keeps the membership informed about current legislative initiatives related to Down syndrome and related topics. The NDSC also runs an awareness campaign, using advertisements and public service announcements to highlight the challenges faced by people with Down syndrome in education, employment, and the community at large. With a workforce of ten devoted individuals, the NDSC is committed to improving the lives of those affected by Down syndrome.


Official website here: www.ndsccenter.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 81% (Three-Star out of Four Star rating)

The National Down Syndrome Congress has received an 81% rating from Charity Navigator, indicating a solid performance in financial accountability and transparency. This rating is based entirely on the Accountability & Finance category, reflecting a strong commitment to responsible governance and effective management practices. The organization scored particularly well in areas such as independent board membership and the absence of material diversion of assets.

Strengths of the National Down Syndrome Congress include a fully independent board and robust financial ratios, with a program expense ratio of 75.77%. This suggests that a significant portion of their funding is directed towards program services, which is crucial for fulfilling their mission to advocate for individuals with Down syndrome and their families. Additional policies regarding conflicts of interest and whistleblowing are in place, enhancing the organization's credibility and trustworthiness.

While the organization has demonstrated good practices in governance and finance, the single beacon score means that other areas, such as fundraising efficiency or results in program effectiveness, are not evaluated in this rating. Therefore, while their financial health appears strong, it is important for potential donors to consider the overall impact and effectiveness of their programs as part of their decision-making process.


This AI summary has been generated from information found on Charity Navigator.

What do the Facebook reviews say about National Down Syndrome Congress?

96% of 415 reviewers on Facebook recommend the National Down Syndrome Congress. Here is a summary of their reviews:

Overall, many individuals express strong support for the mission and impact of the National Down Syndrome Congress. Reviewers highlight the significant contributions individuals with Down syndrome make to society, recognizing their capabilities and skills. There is a general appreciation for the advocacy work done by the nonprofit, which seems to resonate well with families and supporters who value promoting understanding and acceptance of people with Down syndrome.

While some feedback touches on broader societal issues, the primary sentiment remains positive, emphasizing the importance of the organization in fostering community and awareness. Many seem to agree that the contributions of individuals with Down syndrome should be celebrated and that the nonprofit plays a key role in achieving this goal.


This AI summary has been generated from reviews found on Facebook.

Is National Down Syndrome Congress legitimate?

National Down Syndrome Congress is a legitimate nonprofit organization registered as a 501(c)(3) entity. National Down Syndrome Congress submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $183,347
Professional Fundraising Fees: $0
Other Salaries and Wages: $160,697

For more financial information, click here


Official website here: www.ndsccenter.org

What is the mission statement of National Down Syndrome Congress?

The National Down Syndrome Congress's mission is centered around providing information, advocacy, and support for individuals with Down syndrome and their families, encompassing various aspects of their lives. They are committed to reaching out to underserved populations, such as Hispanic, African American, and Middle Eastern families. The organization also has a government affairs function, which keeps its membership informed about legislative initiatives pertaining to Down syndrome and related topics. Furthermore, the National Down Syndrome Congress runs an awareness campaign, utilizing advertisements and public service announcements to bring attention to the disparities faced by individuals with Down syndrome in education, employment, and the general community.


Official website here: www.ndsccenter.org

Who is the CEO of National Down Syndrome Congress?

Sean Smith is the President of National Down Syndrome Congress.


Official website here: www.ndsccenter.org

What is the revenue of National Down Syndrome Congress?

National Down Syndrome Congress's revenue in 2022 was $1,419,457.


Official website here: www.ndsccenter.org

Who are the executives of National Down Syndrome Congress and what are their salaries?

The average compensation at National Down Syndrome Congress during 2022 was $34,404. There are 10 employees and 50 volunteers at National Down Syndrome Congress.


Here are 21 key members and their salaries:


Shauntel Neal-Howe (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kate Dougherty (1St Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Valerie Williams (2Nd Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mitchel Rothholz (3Rd Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dana Halle (4Th Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Zachary Carroll (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Megan Smulski (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kishore Vellody (Immediate Past President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Nicole Baumer (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Bruce Bennett (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Daniel Chaplin (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
John Dickerson (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Maggie Erickson Kilgannon (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Barb Helm (Dirctor)
  • Compensation: $0
  • Related: $0
  • Other: $0
Andrea Holmes (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Macarena Lizama (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lori Mckee (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lora Olson (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sean Smith (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jenny Stone (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jordan Kough (Executive Director)
  • Compensation: $183,346
  • Related: $0
  • Other: $0


Official website here: www.ndsccenter.org

Where can I find the form 990 for National Down Syndrome Congress?

National Down Syndrome Congress's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.ndsccenter.org

Learn more at the official website: www.ndsccenter.org

Mission Statement of National Down Syndrome Congress

The National Down Syndrome Congress (NDSC) is dedicated to providing comprehensive information, advocacy, and support for individuals with Down syndrome and their families. Their mission encompasses all facets of life for these individuals, aiming to foster an inclusive and empowering environment for them.

In pursuit of this mission, NDSC extends its reach to underserved populations, such as Hispanic, African American, and Middle Eastern families. They strive to bridge the gap in resources and opportunities, ensuring that all families affected by Down syndrome have access to the necessary support.

Moreover, NDSC maintains a government affairs function, which includes a representative in Washington, D.C. This individual keeps the membership informed about current legislative initiatives related to Down syndrome and associated topics. Furthermore, NDSC conducts an awareness campaign, printing advertisements and public service announcements to raise awareness of the disparities that individuals with Down syndrome encounter in education, employment, and the broader community.

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Impact




July, 2024

The National Down Syndrome Congress provides information, advocacy, and support for individuals with Down syndrome and their families. They have a strong impact on underserved populations, including Hispanic, African American, and Middle Eastern families. Their government affairs function, with a representative in Washington, D.C., informs members about legislative initiatives related to Down syndrome. Additionally, their awareness campaign aims to shed light on the disparities faced by people with Down syndrome in education, the workforce, and the community. Their efforts have helped raise awareness, provide resources, and advocate for individuals with Down syndrome, making a significant impact on their lives.




This information is meant to be a general summary of National Down Syndrome Congress. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$1,419,457 (2022)
Expenses
$1,502,839 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $118,511
  • Program Service Revenue: $514,128
  • Gross Receipts: $1,564,401

Assets and Liabilities:

  • Total Assets: $305,791
  • Total Liabilities: -$352
  • Net Assets: $306,143

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

CONVENTION INCOME

Revenue

$499,301

OTHER INCOME

Revenue

$14,827

Organization Details

Founding Year

1974

Principal Officer

Sean Smith

Main Address

30 MANSELL COURT 108, ROSWELL, GA, 30076

NTEE Category

Code: G25Z - Disease

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