Overview
What is Organic Acidemia Association Corporation?
The Organic Acidemia Association Corporation, located in Golden Valley, Minnesota, is a committed nonprofit organization dedicated to supporting individuals and families affected by organic acidemia, a group of inborn errors of metabolism diseases. They disseminate pertinent information through a biannual newsletter and maintain an active social media presence on platforms like Facebook, Twitter, Instagram, and LinkedIn. The organization fosters a supportive community by hosting events, such as a combined family conference with HCU and PAF in June 2022, and educational webinars, including one about the OrCam device for visually impaired individuals in November 2022. Collaborating with other organizations and universities, such as Rare Science, Inc., further extends their reach and impact in providing resources and support for those affected by organic acidemia.
Official website here: www.oaanews.org
Is Organic Acidemia Association Corporation legitimate?
Organic Acidemia Association Corporation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Organic Acidemia Association Corporation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $45,000
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.oaanews.org
What is the mission statement of Organic Acidemia Association Corporation?
The Organic Acidemia Association Corporation's mission is centered around providing assistance and support to parents and professionals dealing with organic acidemia, a group of inborn errors of metabolism diseases. Their activities primarily involve disseminating information through various channels such as a newsletter, social media platforms like Facebook, Twitter, Instagram, and LinkedIn. They also organize events and collaborations, such as a family conference in June 2022 and webinars in November 2022 and December 2022. Furthermore, the organization collaborates with external entities like Rare Science, Inc., to enhance its reach and impact.
Official website here: www.oaanews.org
Who is the CEO of Organic Acidemia Association Corporation?
Unavailable
Official website here: www.oaanews.org
What is the revenue of Organic Acidemia Association Corporation?
Organic Acidemia Association Corporation's revenue in 2022 was $109,117.
Official website here: www.oaanews.org
Who are the executives of Organic Acidemia Association Corporation and what are their salaries?
There 7 volunteers at Organic Acidemia Association Corporation.
Here are 8 key members and their salaries:
- Compensation: $45,000
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.oaanews.org
Where can I find the form 990 for Organic Acidemia Association Corporation?
Organic Acidemia Association Corporation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.oaanews.org
Learn more at the official website: www.oaanews.org
Mission Statement of Organic Acidemia Association Corporation
The Organic Acidemia Association Corporation, often abbreviated as OAA, is committed to extending vital assistance and information to both parents and professionals grappling with a collection of genetic disorders known as organic acidemia. Its primary mission is to serve as a supportive resource, offering guidance and knowledge to those navigating this complex health challenge.
In pursuit of its goal, OAA takes several proactive steps. It publishes a newsletter three times a year, brimming with updates, editorials, and correspondence from and for affected families. This newsletter serves as a crucial platform for sharing valuable insights and experiences, fostering a sense of community among individuals grappling with organic acidemia.
Additionally, OAA maintains a significant social media presence, with active accounts on Twitter, Instagram, and LinkedIn. These platforms allow the organization to disseminate information more widely and engage with its audience in real time. For instance, OAA has collaborated with the University of Minnesota's students to create social media campaigns, further amplifying its reach and impact.
In the digital realm, OAA also hosts webinars, providing opportunities for learning and interaction. For instance, OAA hosted a webinar about the OrCam device, a tool designed to assist individuals with visual impairments, in November 2022. Similarly, OAA partnered with AllStripes & OAA to accelerate research into Metabolic Mitochondrial Anomaly and Propionic Acidemia in a webinar held in December 2022.
Furthermore, OAA collaborates with organizations such as Rare Science, Inc., to distribute Rare Bears, special care packages designed for children affected by rare diseases. These efforts underscore OAA's dedication to providing comprehensive support to families and professionals dealing with organic acidemia.
Shop smarter and support your favorite cause with the Give Freely browser extension. Save money with coupons and donate to charity with a single click. Download now!
Impact
October, 2024
The Organic Acidemia Association Corporation significantly impacts the lives of families and professionals who navigate the complexities of organic acidemias, a group of inherited metabolic disorders. By offering essential information and support, the organization empowers parents and caregivers to better understand and manage these conditions.
Through its regular publications, the association keeps families and health professionals informed about the latest research, treatment options, and personal stories that resonate with those affected. The newsletter serves as a vital resource, fostering a sense of community and shared experience among families.
The organization actively engages with its audience via a monitored Facebook group and various social media platforms, including Twitter, Instagram, and LinkedIn. This online presence allows for real-time communication, support, and information sharing, enhancing the network of families facing similar challenges.
In June 2022, the association organized a combined family conference with HCU and PAF in Bethesda, MD, creating a space for families to connect, share experiences, and gain valuable insights from healthcare professionals. The webinars hosted by the association, such as the session on the OrCam device for the visually impaired and discussions with AllStripes on research acceleration for MMA and PA, provide practical guidance and educational resources that empower families to navigate their journey.
Collaborations with organizations like Rare Science, Inc., to distribute Rare Bears to affected children exemplify the association's commitment to not just education, but also emotional support and joy for families dealing with these challenging conditions.
In summary, the Organic Acidemia Association Corporation plays a critical role in fostering a supportive environment for families affected by organic acidemias, providing them with key resources, community connection, and advocacy to improve their quality of life.
This information is meant to be a general summary of Organic Acidemia Association Corporation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $10,579
- Program Service Revenue: $34,966
- Gross Receipts: $267,012
Assets and Liabilities:
- Total Assets: $689,296
- Total Liabilities: $878
- Net Assets: $688,418
Want to help this charity, for free? You can click here to learn more about Give Freely
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Conference Sponsorship
Revenue
$34,966
Organization Details
Phone
(763) 559-1797Main Address
9040 Duluth Street, Golden Valley, MN, 55427
Website
www.oaanews.orgNTEE Category
Code: Z99Z - Unknown
If you are a representative of Organic Acidemia Association Corporation and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.