Overview
What is The Champ Foundation?
The Champ Foundation, based in Durham, North Carolina, is a nonprofit organization dedicated to advancing research and potential treatments for rare diseases caused by mitochondrial DNA deletions, such as Pearson syndrome. In 2022, the foundation continued its mission by supporting various studies, including a Natural History Study at the Cleveland Clinic and Children's Hospital of Philadelphia, and the Champ Foundation Registry, focusing on individuals with Single Large-Scale Mitochondrial DNA Deletions (SLSMDS). Furthermore, The Champ Foundation aids in patient travel to participate in these studies. In addition to research funding, the foundation hosted an international scientific and family conference to foster collaboration and knowledge sharing. The organization's goal is to make significant strides towards finding better treatments and ultimately, a cure for these rare diseases.
Official website here: www.thechampfoundation.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 97%, Four-Star out of Four Star rating.
The Champ Foundation has achieved an impressive overall score of 97%, reflecting its strong commitment to accountability and finance. The four-star rating indicates that the organization operates with a high level of transparency and effective financial management. All assessment areas received full marks, showcasing the charity's dedication to maintaining a strong governance framework and fiscal responsibility.
Strengths of The Champ Foundation include having a fully independent board with no material diversions of assets and a solid program expense ratio of 98.64%. This high percentage indicates that the majority of its funds are directed towards its programs rather than administrative costs. Additionally, the organization has well-documented policies, including conflict of interest and whistleblower policies, further demonstrating its commitment to ethical practices.
There are no significant limitations noted in the data, as the foundation has excelled in all evaluated criteria. This robust performance offers strong reassurance to potential donors regarding the effective use of their contributions. Overall, The Champ Foundation stands out as a highly credible nonprofit organization.
This AI summary has been generated from information found on Charity Navigator.
What do the Facebook reviews say about The Champ Foundation?
100% of 5 reviewers on Facebook recommend The Champ Foundation. Here is a summary of their reviews:
The overwhelming sentiment expressed by supporters highlights the nonprofit's incredible impact. Many users emphasize the life-saving nature of the foundation’s work, reflecting a deep appreciation for the organization's mission and effectiveness.
Overall, the reviews convey strong satisfaction with the services offered, demonstrating that The Champ Foundation successfully fulfills its promises and positively influences the lives of those it serves.
This AI summary has been generated from reviews found on Facebook.
Is The Champ Foundation legitimate?
The Champ Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Champ Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.thechampfoundation.org
What is the mission statement of The Champ Foundation?
The Champ Foundation is dedicated to advancing research and seeking better treatments, as well as a potential cure, for diseases caused by mitochondrial DNA deletions. These conditions, such as Pearson syndrome, are relatively rare, with approximately 100 reported cases recorded. The foundation's mission is primarily focused on supporting research initiatives, including a multi-site Natural History Study and the Champ Foundation Registry. They also provide assistance for patients to participate in these studies, and fund various research projects at institutions like the Children's Hospital of Philadelphia, University of Cambridge, University of Pittsburgh, and University College of London. Additionally, they organize international scientific and family conferences to foster collaboration and share knowledge in the field.
Official website here: www.thechampfoundation.org
Who is the CEO of The Champ Foundation?
Jeffrey Reynolds is the Director of The Champ Foundation.
Official website here: www.thechampfoundation.org
What is the revenue of The Champ Foundation?
The Champ Foundation's revenue in 2022 was $473,565.
Official website here: www.thechampfoundation.org
Who are the executives of The Champ Foundation and what are their salaries?
There 5 volunteers at The Champ Foundation.
Here are 5 key members and their salaries:
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Official website here: www.thechampfoundation.org
Where can I find the form 990 for The Champ Foundation?
The Champ Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.thechampfoundation.org
Learn more at the official website: www.thechampfoundation.org
Mission Statement of The Champ Foundation
The Champ Foundation, named after an individual affected by rare mitochondrial DNA deletion diseases, is dedicated to advancing research aimed at improving treatments and ultimately finding a cure for these conditions. These diseases, such as Pearson syndrome, are characterized by a low number of functioning mitochondria, leading to a range of symptoms that can impact various body systems. With only around 100 reported cases of Pearson syndrome worldwide, these diseases remain relatively uncharted territories in the medical field.
In line with its mission, The Champ Foundation supports several initiatives. One of these is a multi-site Natural History Study at the Cleveland Clinic and Children's Hospital of Philadelphia, as well as the Champ Foundation Registry, a research study focusing on individuals with single large-scale mitochondrial DNA deletions (SLSMDS). The organization also provides financial assistance for patients to participate in these studies, furthering the understanding of these rare diseases.
Moreover, The Champ Foundation hosts international scientific and family conferences, bringing together researchers and affected families to share insights, learn about the latest developments, and foster a sense of community. Additionally, the foundation funds research projects at various renowned institutions, including the University of Cambridge, University of Pittsburgh, and University College of London, contributing to the global effort to uncover the mysteries of mitochondrial DNA deletion diseases and pave the way for better treatments and a potential cure.
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Impact
July, 2024
The Champ Foundation's impact is profound in supporting research towards better treatments and a cure for diseases caused by mitochondrial DNA deletions, specifically focusing on rare conditions like Pearson syndrome. Despite the rarity of these diseases, with only around 100 reported cases of Pearson syndrome, The Champ Foundation's efforts are remarkable. In 2022, the foundation continued its support for a multi-site Natural History Study and the Champ Foundation Registry, both crucial research initiatives. Additionally, they funded research projects at esteemed institutions like CHOP, University of Cambridge, University of Pittsburgh, and University College of London. The foundation's commitment is evident through activities like hosting international scientific and family conferences and facilitating patient travel for participation in research studies. This dedication has a tangible impact on advancing medical research in this challenging field.
This information is meant to be a general summary of The Champ Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $247
- Gross Receipts: $473,565
Assets and Liabilities:
- Total Assets: $519,005
- Total Liabilities: $0
- Net Assets: $519,005
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Organization Details
Founding Year
2015
Phone
(727) 871-2667Principal Officer
Jeffrey Reynolds
Main Address
4711 Hope Valley Road 4F PMB 1171, DURHAM, NC, 27707
Website
www.thechampfoundation.orgNTEE Category
Code: H12 - Medical research
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