Overview
What is Myositis Support And Understanding Association Inc?
Myositis Support and Understanding Association Inc, located in Lincoln, Delaware, is a nonprofit organization committed to enhancing the lives of individuals battling myositis. Their mission encompasses education, support, awareness, advocacy, and financial assistance for patients. Through their Financial Assistance Program, they offer emergency funds to those diagnosed with Myositis, providing up to $2000 per applicant over a 24-month period. In 2022, they extended assistance to 80 individuals, totaling $138,000. Overall, their goal is to empower those affected by myositis and improve their quality of life.
Official website here: www.understandingmyositis.org
What do the Facebook reviews say about Myositis Support And Understanding Association Inc?
96% of 25 reviewers on Facebook endorse the Myositis Support And Understanding Association Inc. Here’s a summary of their insights:
Many individuals express gratitude for the support they receive from the organization, emphasizing that it helps them feel less isolated in their struggles. The sentiments shared highlight a strong sense of community and understanding among members, which greatly contributes to their overall positive experience.
Overall, the nonprofit appears to effectively provide valuable resources and emotional support, making a significant difference for those dealing with myositis.
This AI summary has been generated from reviews found on Facebook.
Is Myositis Support And Understanding Association Inc legitimate?
Myositis Support And Understanding Association Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Myositis Support And Understanding Association Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
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Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
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Official website here: www.understandingmyositis.org
What is the mission statement of Myositis Support And Understanding Association Inc?
The Myositis Support and Understanding Association Inc aims to enhance the lives of individuals battling myositis by providing education, support, awareness, advocacy, and access to research-related financial assistance. Their mission encompasses empowering affected individuals, serving as a trusted resource, and offering educational programs. The association's Financial Assistance Program offers emergency, needs-based aid to a maximum of $2000 per applicant, every 24 months. In 2022, they provided support to 80 people, totaling $138,000.00.
Official website here: www.understandingmyositis.org
Who is the CEO of Myositis Support And Understanding Association Inc?
Jerry Williams is the President of Myositis Support And Understanding Association Inc.
Official website here: www.understandingmyositis.org
What is the revenue of Myositis Support And Understanding Association Inc?
Myositis Support And Understanding Association Inc's revenue in 2022 was $444,144.
Official website here: www.understandingmyositis.org
Who are the executives of Myositis Support And Understanding Association Inc and what are their salaries?
There 36 volunteers at Myositis Support And Understanding Association Inc.
Here are 5 key members and their salaries:
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Official website here: www.understandingmyositis.org
Where can I find the form 990 for Myositis Support And Understanding Association Inc?
Myositis Support And Understanding Association Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.understandingmyositis.org
Learn more at the official website: www.understandingmyositis.org
Mission Statement of Myositis Support And Understanding Association Inc
Myositis Support and Understanding Association, Inc., a nonprofit organization, is committed to enhancing the lives of individuals battling myositis. This is achieved through various means, including education, support, raising awareness, advocacy, and providing financial assistance for patient needs and access to research. The association's mission is to empower these individuals, offering them the necessary tools to navigate their health challenges more effectively.
By offering education and support, Myositis Support and Understanding Association, Inc., aims to equip patients with the knowledge they need to understand their condition better and manage it more effectively. The organization also strives to increase public awareness of myositis, reducing stigma and misconceptions associated with the disease. Advocacy is another key aspect of the association's mission, as it seeks to influence policies and resources that impact patients living with myositis.
In addition to these efforts, the organization provides financial assistance to those in need. Through its Financial Assistance Program, Myositis Support and Understanding Association, Inc., offers up to $2000 in emergency aid to qualified applicants every 24 months. In 2022, the organization provided assistance to 80 individuals, totaling $138,000. This financial aid helps alleviate some of the financial burdens associated with managing a chronic illness.
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Impact
October, 2024
Myositis Support and Understanding Association Inc plays a significant role in enhancing the lives of individuals battling myositis through various impactful initiatives. By focusing on education and awareness, the organization empowers patients and their families to understand the complexities of the disease, fostering a supportive community.
One of the crucial aspects of their impact is the Financial Assistance Program, which directly addresses the emergency financial needs of those affected by myositis. In 2022 alone, the organization provided financial assistance to 80 individuals, totaling $138,000. This support can be life-changing, offering resources for medical expenses, treatment, or other urgent needs, ensuring that financial barriers do not prevent patients from receiving necessary care.
Through advocacy efforts, Myositis Support and Understanding Association Inc raises awareness about myositis, working to inform both the public and policymakers about the challenges faced by patients. This commitment not only aids in generating broader support but also creates a more informed public dialogue around the disease.
By facilitating access to research, the organization encourages advancements in treatment and understanding of myositis, contributing to the overall improvement of care standards and patient outcomes. This holistic approach—combining education, financial support, advocacy, and research access—demonstrates a profound impact on the lives of those affected, ultimately fostering hope and resilience among patients and their families.
This information is meant to be a general summary of Myositis Support And Understanding Association Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Program Service Revenue: $5,790
- Gross Receipts: $444,144
Assets and Liabilities:
- Total Assets: $111,437
- Total Liabilities: $0
- Net Assets: $111,437
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Program Service Fees
Revenue
$5,790
Organization Details
Principal Officer
Jerry Williams
Main Address
9125 N Old State Road, Lincoln, DE, 19960
NTEE Category
Code: H01 - Medical research
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