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The Myalgic Encephalomyelitis Action Network

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 474011296 ✦ Santa monica, CA ✦ Designated as a 501(c)(3)

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Overview

What is The Myalgic Encephalomyelitis Action Network?

The Myalgic Encephalomyelitis Action Network is a nonprofit organization, located in Santa Monica, California, dedicated to enhancing the understanding and treatment of Myalgic Encephalomyelitis (M.E.). With a mission to foster a global movement, they strive for recognition, education, and research in this field. Their activities encompass outreach, education, and patient-driven research to advance diagnoses, treatments, and outcomes for individuals affected by M.E. With a team of nine dedicated individuals, they aim to ensure that people with M.E. can eventually access compassionate and effective care.


Official website here: www.meaction.net

Is The Myalgic Encephalomyelitis Action Network legitimate?

The Myalgic Encephalomyelitis Action Network is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Myalgic Encephalomyelitis Action Network submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $168,403
Professional Fundraising Fees: $0
Other Salaries and Wages: $261,461

For more financial information, click here


Official website here: www.meaction.net

What is the mission statement of The Myalgic Encephalomyelitis Action Network?

The Myalgic Encephalomyelitis Action Network is dedicated to establishing a global movement aimed at securing recognition, education, and research for individuals affected by Myalgic Encephalomyelitis (M.E.). Their ultimate goal is to ensure that in the future, all people with M.E. have access to compassionate and effective care. To achieve this, they focus on expanding the scientific field through outreach, education, and patient-driven research. Their efforts aim to improve treatments, diagnosis, and outcomes for people with M.E.


Official website here: www.meaction.net

Who is the CEO of The Myalgic Encephalomyelitis Action Network?

Beth Mazur is the Co-Chair of The Myalgic Encephalomyelitis Action Network.


Official website here: www.meaction.net

What is the revenue of The Myalgic Encephalomyelitis Action Network?

The Myalgic Encephalomyelitis Action Network's revenue in 2022 was $709,587.


Official website here: www.meaction.net

Who are the executives of The Myalgic Encephalomyelitis Action Network and what are their salaries?

The average compensation at The Myalgic Encephalomyelitis Action Network during 2022 was $47,763. There are 9 employees and 100 volunteers at The Myalgic Encephalomyelitis Action Network.


Here are 12 key members and their salaries:


Laurie Jones - Interim (Executive Director (As Of 02/22))
  • Compensation: $75,000
  • Related: $0
  • Other: $0
Julie Miele (Executive Director (Thru 02/22))
  • Compensation: $104,461
  • Related: $0
  • Other: $0
Jill Hinson (Co-Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Beth Mazur (Co-Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Judy Gayer (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michelle Pinedo (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jenn Brea (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Shaquile Coonce (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jd Davids (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jennifer England (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ryan Prior (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Rob Sklans (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.meaction.net

Where can I find the form 990 for The Myalgic Encephalomyelitis Action Network?

The Myalgic Encephalomyelitis Action Network's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.meaction.net

Learn more at the official website: www.meaction.net

Mission Statement of The Myalgic Encephalomyelitis Action Network

The Myalgic Encephalomyelitis Action Network (ME Action Network) is committed to building a global movement aimed at securing recognition, education, and research for individuals living with Myalgic Encephalomyelitis (M.E.). This nonprofit organization's mission is to envision a future where all individuals affected by M.E. have access to compassionate and effective care. To achieve this goal, the ME Action Network focuses on three key areas: recognition, education, and research.

In the realm of recognition, ME Action Network strives to raise awareness about M.E. and its impact on people's lives. By advocating for increased understanding and acknowledgment of M.E., the organization aims to erase the stigma that often surrounds this condition. This entails outreach and education to various sectors, including healthcare providers, policymakers, and the general public.

The second pillar of the ME Action Network's mission is education. Recognizing the importance of knowledge in improving outcomes, the organization actively promotes education in the field of M.E. This includes patient-driven research, which empowers individuals living with the condition to contribute to the scientific understanding of M.E. The ultimate aim is to improve diagnoses, treatments, and prognoses for people with M.E.

Finally, the ME Action Network is dedicated to growing the scientific field of M.E. through outreach, education, and patient-driven research. By fostering collaboration between researchers, patients, and medical professionals, the organization aims to accelerate the discovery of effective treatments and improve the overall quality of life for people with M.E.

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Impact




October, 2024

The Myalgic Encephalomyelitis Action Network is dedicated to building a global movement that advocates for recognition, education, and research surrounding myalgic encephalomyelitis (M.E.). Its impact is substantial in fostering awareness and understanding of this often-misunderstood condition, which affects many individuals.

By prioritizing outreach and education, the organization works to enhance the scientific field related to M.E., promoting patient-driven research to improve treatment options, diagnosis, and patient outcomes. This concerted effort not only helps to elevate the voices of those living with M.E. but also aims to ensure that they receive compassionate and effective medical care.

Through its initiatives, the network cultivates a community of support, encouraging collaboration among researchers, patients, and healthcare professionals. This engagement is vital for driving the momentum needed to advance M.E. research and clinical practice. Ultimately, the Myalgic Encephalomyelitis Action Network plays a critical role in advocating for the rights and needs of individuals with M.E., striving for a future where all affected can access the care and acknowledgment they deserve.




This information is meant to be a general summary of The Myalgic Encephalomyelitis Action Network. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$709,587 (2022)
Expenses
$653,091 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Gross Receipts: $709,587

Assets and Liabilities:

  • Total Assets: $43,019
  • Total Liabilities: $40,737
  • Net Assets: $2,282

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Organization Details

Founding Year

2014

Principal Officer

Beth Mazur

Main Address

1217 WILSHIRE BOULEVARD 3639, SANTA MONICA, CA, 90403

NTEE Category

Code: G19 - Disease

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