Overview
What is Lyme Disease Biobank Foundation?
Lyme Disease Biobank Foundation, headquartered in Portland, Oregon, is a nonprofit organization dedicated to advancing research on Lyme disease and other tick-borne infections. Through their initiative, they collect and characterize various human biological samples, such as blood, urine, and tissue, from patients with early-stage and chronic Lyme disease, as well as late-stage patients. This extensive collection aids researchers in understanding, diagnosing, and treating these diseases more effectively. As of 2022, the Biobank has collaborated with over 1,174 participants and shipped over 15,500 samples to researchers worldwide. Additionally, they collaborate with other organizations to collect post-mortem and surgical tissue samples and pair these with clinical information for enhanced research. The Biobank currently supports 84 research projects, contributing to the development of new diagnostics, therapeutics, and improved understanding of these diseases.
Official website here: www.lymebiobank.org
Is Lyme Disease Biobank Foundation legitimate?
Lyme Disease Biobank Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Lyme Disease Biobank Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $164,135
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.lymebiobank.org
What is the mission statement of Lyme Disease Biobank Foundation?
The Lyme Disease Biobank Foundation's mission is centered around advancing knowledge and facilitating research related to Lyme disease and other tick-borne infections. Their primary objective is to understand the pathogenesis, diagnosis, and treatment of these conditions. The foundation collects and characterizes vital biological samples, such as blood, urine, and tissue, from patients at various stages of the disease. These samples are crucial for research projects, which are currently aiding in the development of new diagnostics, therapeutics, and a deeper understanding of Lyme disease and related infections. The Biobank collaborates with various organizations, including the National Disease Research Interchange (NDRI) and MyLymeData.org, to provide clinical information that enriches research efforts. As of 2022, the Biobank has contributed to over 84 research projects and has collected samples from over 1,174 participants.
Official website here: www.lymebiobank.org
What is the revenue of Lyme Disease Biobank Foundation?
Lyme Disease Biobank Foundation's revenue in 2023 was $829,117.
Official website here: www.lymebiobank.org
Who are the executives of Lyme Disease Biobank Foundation and what are their salaries?
Here are 4 key members and their salaries:
- Compensation: $0
- Related: $249,150
- Other: $9,897
- Compensation: $0
- Related: $192,000
- Other: $0
- Compensation: $166,728
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.lymebiobank.org
Where can I find the form 990 for Lyme Disease Biobank Foundation?
Lyme Disease Biobank Foundation's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.lymebiobank.org
Learn more at the official website: www.lymebiobank.org
Mission Statement of Lyme Disease Biobank Foundation
The Lyme Disease Biobank Foundation, sponsored by Bay Area Lyme Foundation, is dedicated to advancing the understanding, diagnosis, and treatment of Lyme disease and other tick-borne infections. Their mission is to facilitate research in this field, with a particular focus on the pathogenesis, diagnosis, and treatment of these diseases. The foundation achieves this by collecting and characterizing vital biological samples, such as blood, urine, and tissue, from patients at various stages of the disease. These samples are then provided to researchers, supporting numerous projects aimed at accelerating medical breakthroughs. With over 15,500 samples shipped to researchers by the end of 2022, the Lyme Disease Biobank is making significant strides in enhancing our understanding of Lyme disease and other tick-borne infections, ultimately paving the way for improved diagnostics and therapeutics. The foundation collaborates with other organizations, such as the National Disease Research Interchange (NDRI) and MyLymeData.org, to gather clinical information, further strengthening its contribution to research in this critical area.
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Impact
October, 2024
The Lyme Disease Biobank Foundation significantly advances research and understanding of Lyme disease and other tick-borne infections. By collecting and characterizing vital biological samples—such as blood, urine, and tissue—from patients at various stages of these diseases, the Biobank is a crucial resource for researchers. Currently, 84 projects utilize Biobank samples to develop new diagnostics and therapeutics, enhancing the overall comprehension of Lyme disease and related conditions.
In 2022 alone, over 15,500 samples were shipped to researchers, with contributions from 161 participants bringing the cumulative total to 1,174. The persistent Lyme cohort notably includes 135 participants, emphasizing its focus on chronic cases. Collaborations with entities like the National Disease Research Interchange (NDRI) expand the Biobank's scope by providing surgical and post-mortem tissue samples, while partnerships with MyLymeData.org enhance the integration of clinical information with research samples.
Since its inception in 2019, the foundation has successfully gathered tissue from 12 post-mortem donors and 11 surgical donors, underscoring the depth of its contributions to the medical community. Ultimately, the Lyme Disease Biobank Foundation plays a pivotal role in accelerating medical breakthroughs, improving diagnostics, and refining treatment options for those affected by Lyme disease and other tick-borne illnesses.
This information is meant to be a general summary of Lyme Disease Biobank Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Program Service Revenue: $15,498
- Gross Receipts: $829,117
Assets and Liabilities:
- Total Assets: $87,022
- Total Liabilities: $172,605
- Net Assets: -$85,583
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
BIOREPOSITORY SAMPLE FEE
Revenue
$15,498
Organization Details
Founding Year
2015
Principal Officer
Liz Horn
Website
www.lymebiobank.orgNTEE Category
Code: G80 - Disease
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