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The Familiescn2A Foundation Inc

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 473169795 ✦ Gettysburg, PA ✦ Designated as a 501(c)(3)

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Overview

What is The Familiescn2A Foundation Inc?

The Familiescn2A Foundation Inc, located in Gettysburg, Pennsylvania, is a nonprofit organization with a mission to improve the lives of individuals affected by SCN2A-related disorders, including autism and epilepsy. They are dedicated to advancing research aimed at early detection, effective treatments, and ultimately, a cure. The foundation's activities include raising public awareness, providing patient advocacy, and supporting clinical and genetic research. Their work is driven by a commitment to improving the lives of those affected, offering a supportive community and advocating on their behalf. With a team of three dedicated individuals, Familiescn2A Foundation Inc is making significant strides in the field of SCN2A disorders.


Official website here: www.scn2a.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 98%, Four-Star out of Four Star Rating

The FamilieSCN2A Foundation has received high marks for its accountability and financial management, scoring 100% in this area. With a program expense ratio of 85.71%, the majority of its funds are allocated directly to its mission of supporting families affected by SCN2A disorders and funding research for treatments and cures. The foundation is governed by an independent board, ensuring transparency and adherence to ethical standards in its operations.

User feedback highlights the foundation's strong community support, noting the dedication of its staff and volunteers. Families report feeling empowered and connected through resources, education, and advocacy provided by the organization. Many reviews emphasize the critical role the foundation plays in offering hope and a sense of community during challenging times faced by families dealing with SCN2A disorders.

While the overall impression is overwhelmingly positive, a few reviews suggest that the organization could continue to expand its outreach and resources as it grows. Nevertheless, the FamilieSCN2A Foundation is recognized as a vital resource for families and is praised for its impactful work in the field of rare genetic disorders.


This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.

Is The Familiescn2A Foundation Inc legitimate?

The Familiescn2A Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Familiescn2A Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $113,072
Professional Fundraising Fees: $0
Other Salaries and Wages: $0

For more financial information, click here


Official website here: www.scn2a.org

What is the mission statement of The Familiescn2A Foundation Inc?

The Familiescn2A Foundation's mission is centered around improving the lives of individuals affected by SCN2A related disorders. They accomplish this through various means, including conducting clinical and genetic research, advocating for patients, raising public awareness, and supporting early detection efforts. The ultimate goal of the foundation is to discover effective treatments and eventually cure SCN2A related autism and epilepsy disorders. Their activities are geared towards providing advanced research, ultimately aiming to find solutions for those affected by these disorders.


Official website here: www.scn2a.org

Who is the CEO of The Familiescn2A Foundation Inc?

Jennifer Burke is the Executive Director of The Familiescn2A Foundation Inc.


Official website here: www.scn2a.org

What is the revenue of The Familiescn2A Foundation Inc?

The Familiescn2A Foundation Inc's revenue in 2022 was $1,486,870.


Official website here: www.scn2a.org

Who are the executives of The Familiescn2A Foundation Inc and what are their salaries?

The average compensation at The Familiescn2A Foundation Inc during 2022 was $37,691. There are 3 employees and 10 volunteers at The Familiescn2A Foundation Inc.


Here are 12 key members and their salaries:


Leah Schust Myers (Executive Director)
  • Compensation: $90,000
  • Related: $0
  • Other: $0
Catalina Betancur Santamaria (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Will Hutson (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Maura Bragg (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Emily Park (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mery Oman (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Roger Premo (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Shawn Egan (Chief Scientific Officer)
  • Compensation: $4,327
  • Related: $0
  • Other: $0
Carla Forbes (Administrative Manager)
  • Compensation: $18,745
  • Related: $0
  • Other: $0
Jennifer Burke (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michelle Lewis (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michael Vasey (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.scn2a.org

Where can I find the form 990 for The Familiescn2A Foundation Inc?

The Familiescn2A Foundation Inc's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.scn2a.org

Learn more at the official website: www.scn2a.org

Mission Statement of The Familiescn2A Foundation Inc

The FamiliesCN2A Foundation is dedicated to making substantial strides in the treatment and, ultimately, the discovery of a cure for autism and epilepsy disorders related to SCN2A. This nonprofit organization's mission is to enhance the lives of those affected by these disorders by supporting clinical research, genetic research, early detection, and increasing public awareness. They believe in the power of advocacy to champion the cause of individuals and families living with SCN2A-related conditions. Through their efforts, they aim to contribute to the advancement of research, provide support to families, and advocate for those in need.

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Impact




July, 2024

The Familiescn2A Foundation Inc is dedicated to finding effective treatments and ultimately a cure for SCN2A related autism and epilepsy disorders. This organization raises public awareness, provides patient advocacy, and supports clinical research, genetic research, and early detection efforts. Their mission is to improve the lives of those affected by SCN2A related disorders through research, public awareness, family support, and patient advocacy. By providing advanced research towards early detection, treatments, and a cure for SCN2A disorders, The Familiescn2A Foundation Inc is making a significant impact on individuals and families facing these challenges.




This information is meant to be a general summary of The Familiescn2A Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$1,486,870 (2022)
Expenses
$990,762 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Program Service Revenue: $72,550
  • Gross Receipts: $1,486,870

Assets and Liabilities:

  • Total Assets: $1,757,650
  • Total Liabilities: $124,841
  • Net Assets: $1,632,809

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

SCN2A SUMMER CONFERENC

Revenue

$72,550

Organization Details

Founding Year

2015

Principal Officer

Jennifer Burke

Main Address

PO BOX 4260, GETTYSBURG, PA, 17325

NTEE Category

Code: G20 - Disease

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