Overview
What is Amyloidosis Research Consortium Inc?
Amyloidosis Research Consortium Inc, situated in Newton, Massachusetts, is a dedicated nonprofit organization that focuses on accelerating the development of innovative diagnostic tools and effective treatments for systemic amyloidosis. They achieve this goal through collaboration and innovation. The consortium has been actively engaged in various research initiatives, such as data sharing and patient experience studies. Additionally, they have developed an appointment companion tool to support patients throughout their treatment journey, providing valuable real-world insights through anonymized aggregated data. Currently, they are working on a patient-reported outcomes tool for clinical practice. With a team of 17 dedicated individuals, Amyloidosis Research Consortium Inc is committed to improving the lives of those affected by this condition.
Official website here: www.arci.org
What do the Facebook reviews say about Amyloidosis Research Consortium Inc?
While the Amyloidosis Research Consortium Inc has not yet received a formal rating on Facebook, the reviews suggest a mix of anticipation and hope for their services. One reviewer mentioned that there is a wealth of information available for users, although they expressed a preference for more options that are compatible with PC, alongside the Android offerings.
Overall, it appears that there is a willingness among users to engage with the nonprofit, indicating a desire for broader accessibility and support. This reflects a positive sentiment towards the organization, suggesting that they are on the right track but could enhance their reach further by improving their platform compatibility.
This AI summary has been generated from reviews found on Facebook.
Is Amyloidosis Research Consortium Inc legitimate?
Amyloidosis Research Consortium Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Amyloidosis Research Consortium Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $178,365
Professional Fundraising Fees: $0
Other Salaries and Wages: $1,130,531
For more financial information, click here
Official website here: www.arci.org
What is the mission statement of Amyloidosis Research Consortium Inc?
The Amyloidosis Research Consortium Inc is committed to expediting the creation of advanced diagnostic tools and effective treatments for systemic amyloidosis through collaboration and innovation. Their mission is to accelerate progress in this field, aiming to improve the lives of individuals affected by this condition. The organization has been involved in various research initiatives, such as data sharing and patient experience studies, and has developed an appointment companion tool to support patients during their treatment journey. Additionally, they are working on a patient-reported outcomes tool for use in clinical practice, utilizing anonymized aggregated data to provide real-world insights.
Official website here: www.arci.org
Who is the CEO of Amyloidosis Research Consortium Inc?
Isabelle Lousada is the CEO of Amyloidosis Research Consortium Inc The CEO's salary of Amyloidosis Research Consortium Inc is $178,365 and their total compensation is $178,365.
Official website here: www.arci.org
What is the revenue of Amyloidosis Research Consortium Inc?
Amyloidosis Research Consortium Inc's revenue in 2023 was $2,888,025.
Official website here: www.arci.org
Who are the executives of Amyloidosis Research Consortium Inc and what are their salaries?
The average compensation at Amyloidosis Research Consortium Inc during 2023 was $76,994. There are 17 employees at Amyloidosis Research Consortium Inc.
Here are 7 key members and their salaries (Amyloidosis Research Consortium Inc's CEO's salary is $178,365 and their total compensation is $178,365):
- Compensation: $178,365
- Related: $0
- Other: $0
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- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
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- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.arci.org
Where can I find the form 990 for Amyloidosis Research Consortium Inc?
Amyloidosis Research Consortium Inc's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.arci.org
Learn more at the official website: www.arci.org
Mission Statement of Amyloidosis Research Consortium Inc
Amyloidosis Research Consortium Inc, abbreviated as ARC, is dedicated to accelerating progress in the development of advanced diagnostic tools and effective treatments for systemic amyloidosis. This is achieved through collaboration and innovation. The nonprofit organization's mission is to drive the advancement of medical knowledge and patient care in this field by initiating and supporting research programs.
One of the ways ARC achieves its mission is by engaging in various research initiatives. These include data sharing and patient experience studies. Through these initiatives, ARC collects and analyzes anonymized data, providing valuable real-world insights that can guide future research and treatment strategies. Additionally, ARC has developed an appointment companion tool to support patients throughout their treatment journey. This tool enhances the patient experience by providing necessary information and resources, making the often complex and challenging process of managing amyloidosis more manageable. Furthermore, ARC is currently developing a patient-reported outcomes tool for use in clinical practice. This tool will enable healthcare providers to better understand their patients' experiences and symptoms, ultimately leading to more personalized and effective care.
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Impact
October, 2024
Amyloidosis Research Consortium Inc plays a crucial role in transforming the landscape of systemic amyloidosis diagnosis and treatment. By fostering collaboration and innovation, the organization accelerates the development of advanced diagnostic tools and effective therapies for this complex condition.
Through various research initiatives, including data sharing and patient experience studies, the consortium enhances the understanding of amyloidosis, leading to improved clinical outcomes. The development of the Appointment Companion Tool exemplifies their commitment to supporting patients throughout their treatment journey, helping them navigate the complexities of their condition with greater ease.
Additionally, the collection of anonymized, aggregated data allows the consortium to glean valuable real-world insights, further informing research and clinical practices. The ongoing development of patient-reported outcomes tools is a testament to their dedication to integrating patient perspectives into clinical practice, ensuring that treatments are both effective and aligned with patient needs.
In summary, Amyloidosis Research Consortium Inc significantly impacts the field of systemic amyloidosis through innovative research, collaboration, and a steadfast commitment to enhancing patient care.
This information is meant to be a general summary of Amyloidosis Research Consortium Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $54,751
- Program Service Revenue: $1,525
- Gross Receipts: $2,888,025
Assets and Liabilities:
- Total Assets: $2,516,230
- Total Liabilities: $300,880
- Net Assets: $2,215,350
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
HONORARIUM AND CONSULT
Revenue
$1,525
Organization Details
Founding Year
2015
Principal Officer
Isabelle Lousada
Website
www.arci.orgNTEE Category
Code: H80 - Medical research
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