Overview
What is Bridge The Gap-Syngap Education & Research Foundation?
Bridge The Gap-Syngap Education & Research Foundation, also known as Syngap1 Foundation, is a nonprofit organization dedicated to advancing our knowledge about Syngap1 (mrd5) related disorders. Their primary mission is to conduct a meticulous, long-term natural history study on the disease, aiming to provide a comprehensive understanding of its progression and impact over time. This in-depth research is expected to significantly enhance our understanding of the condition, potentially leading to improved diagnostics and care for those affected.
Official website here: www.syngap1foundation.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 100%, Four-Star out of Four Star Rating
The Syngap1 Foundation, also known as Bridge The Gap-Syngap Education & Research Foundation, has achieved a remarkable rating of 100% from Charity Navigator, reflecting their strong commitment to accountability and financial health. With a perfect score in both Accountability & Finance and Culture & Community, the foundation demonstrates effective governance, transparency, and a significant focus on community engagement. The organization has an independent board with no material diversion of assets and maintains a low liabilities-to-assets ratio, showcasing their financial stability.
User reviews across various platforms highlight the foundation's vital role in supporting families affected by the rare genetic disorder Syngap1. Many families have expressed gratitude for the sense of community and the wealth of information provided by the organization. The foundation not only connects families but also actively participates in advancing research opportunities to improve the quality of life for individuals with Syngap1 mutations, which is a significant strength noted by users.
There are no notable limitations mentioned in the feedback, and the overall sentiment is overwhelmingly positive. Families appreciate the dedication of the foundation's staff and board members, who are described as compassionate and committed to affecting change in the lives of those impacted by the condition. This strong endorsement from the community indicates that the Syngap1 Foundation is a leading resource for families seeking support and information.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Bridge The Gap-Syngap Education & Research Foundation legitimate?
Bridge The Gap-Syngap Education & Research Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Bridge The Gap-Syngap Education & Research Foundation submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Official website here: www.syngap1foundation.org
What is the mission statement of Bridge The Gap-Syngap Education & Research Foundation?
The Bridge The Gap-Syngap Education & Research Foundation, operating under the name Syngap1 Foundation, is committed to conducting a comprehensive and efficient natural history study on Syngap1 (mrd5). The primary goal is to gain a thorough understanding of the disease, its progression, and pace over time. This study aims to provide valuable insights that could potentially pave the way for improved treatments and interventions for individuals affected by Syngap1.
Official website here: www.syngap1foundation.org
Who is the CEO of Bridge The Gap-Syngap Education & Research Foundation?
Stephanie Lee is the Treasurer of Bridge The Gap-Syngap Education & Research Foundation.
Official website here: www.syngap1foundation.org
What is the revenue of Bridge The Gap-Syngap Education & Research Foundation?
Bridge The Gap-Syngap Education & Research Foundation's revenue in 2022 was $69,941.
Official website here: www.syngap1foundation.org
Who are the executives of Bridge The Gap-Syngap Education & Research Foundation and what are their salaries?
Here are 9 key members and their salaries:
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Official website here: www.syngap1foundation.org
Where can I find the form 990EZ for Bridge The Gap-Syngap Education & Research Foundation?
Bridge The Gap-Syngap Education & Research Foundation's most recent form 990EZ was submitted in 2022 and can be accessed here.
Official website here: www.syngap1foundation.org
Learn more at the official website: www.syngap1foundation.org
Mission Statement of Bridge The Gap-Syngap Education & Research Foundation
Bridge The Gap-Syngap Education & Research Foundation Dba Syngap1 Foundation is dedicated to gaining a profound understanding of Syngap1 (mrd5) related diseases. Their primary mission is to conduct a meticulously planned and efficient natural history study. This study aims to provide the most comprehensive insight into the disease's progression and development over time. The ultimate goal is to enhance our collective knowledge about this condition, leading to improved treatment options and a better quality of life for those affected.
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Impact
August, 2024
Bridge The Gap-Syngap Education & Research Foundation, DBA Syngap1 Foundation, is making a significant impact through their Syngap1 natural history study registry. This initiative is designed to conduct a prospectively-planned and efficient natural study history, aiming to provide the most comprehensive understanding of the disease and its progression over time. By facilitating research and education in this manner, the foundation is helping to advance knowledge, improve treatments, and ultimately enhance the lives of individuals affected by Syngap1. It is evident that their work is serving a public benefit by contributing valuable insights into this rare genetic disorder.
This information is meant to be a general summary of Bridge The Gap-Syngap Education & Research Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $75,993
Assets and Liabilities:
- Total Assets: $4,757
- Total Liabilities: $2,675
- Net Assets: $2,082
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Organization Details
Phone
(240) 347-0302Principal Officer
Stephanie Lee
Main Address
1012 14th Street NW - Suite 500, Washington DC, DC, 20005
Website
www.syngap1foundation.orgNTEE Category
Code: W99 - Public benefit
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