Overview
What is The Ryr-1 Foundation?
The Ryr-1 Foundation, located in Pittsburgh, Pennsylvania, is a small-scale nonprofit organization with a focus on research grants. Specifically, they support researchers interested in RYR-1-related diseases, as they are the only organization dedicated to this field. Their mission is to advance research towards an effective treatment or cure for these diseases, achieved through various means such as funding research, providing medical professional education, and offering patient and family support and advocacy. The foundation serves as a beacon of hope and progress for individuals affected by RYR-1-related diseases.
Official website here: www.ryr1.org
Is The Ryr-1 Foundation legitimate?
The Ryr-1 Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Ryr-1 Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $102,202
For more financial information, click here
Official website here: www.ryr1.org
What is the mission statement of The Ryr-1 Foundation?
The Ryr-1 Foundation's mission is centered around supporting research aimed at discovering an effective treatment or a cure for Ryr-1-related diseases. This is achieved through various means, including funding research, providing medical professional education, and offering patient and family support and advocacy. The organization is dedicated to promoting research in the field of Ryr-1-related diseases, as it is the only organization solely focused on this area. By providing grants to interested researchers, The Ryr-1 Foundation is actively contributing to advancements in understanding and addressing these diseases.
Official website here: www.ryr1.org
What is the revenue of The Ryr-1 Foundation?
The Ryr-1 Foundation's revenue in 2023 was $600,451.
Official website here: www.ryr1.org
Who are the executives of The Ryr-1 Foundation and what are their salaries?
The average compensation at The Ryr-1 Foundation during 2023 was $20,440. There are 5 employees and 2 volunteers at The Ryr-1 Foundation.
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- Compensation: $21,835
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Official website here: www.ryr1.org
Where can I find the form 990 for The Ryr-1 Foundation?
The Ryr-1 Foundation's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.ryr1.org
Learn more at the official website: www.ryr1.org
Mission Statement of The Ryr-1 Foundation
The Ryr-1 Foundation, dedicated solely to RyR-1-related diseases, is committed to supporting research leading to an effective treatment or a cure for these conditions. This nonprofit organization achieves its mission by offering various resources. Firstly, it provides financial support to researchers interested in RyR-1-related diseases (RyR-1-RD). By promoting research in this specific area, The Ryr-1 Foundation aims to make significant strides in understanding and combating these diseases.
Secondly, The Ryr-1 Foundation focuses on medical professional education. Recognizing the importance of knowledge and awareness in the medical community, the foundation offers educational opportunities to healthcare providers. This enables them to better diagnose, treat, and support patients with RyR-1-RD.
Lastly, The Ryr-1 Foundation extends its support to patients and their families. Through patient and family advocacy, the foundation offers resources and assistance to those affected by RyR-1-RD. This holistic approach ensures that both the medical and emotional needs of patients and their families are addressed, ultimately improving their quality of life.
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Impact
October, 2024
The Ryr-1 Foundation has a significant impact on the landscape of research and support for RYR-1-related diseases. By solely focusing on this area, it plays a crucial role in advancing knowledge and treatment options for these conditions. The foundation funds research grants, encouraging scientists and researchers to explore innovative solutions aimed at effective treatments or even cures for RYR-1-related diseases.
In addition to financial support, the foundation emphasizes the education of medical professionals, ensuring that physicians are well-informed about these diseases and their management. This educational initiative helps improve patient care by fostering a deeper understanding of RYR-1-related disorders within the medical community.
Furthermore, the Ryr-1 Foundation offers vital support to patients and their families through advocacy and resources, creating a sense of community and providing essential information. By addressing the multifaceted needs of those affected, the foundation significantly enhances the overall treatment journey and quality of life for patients living with RYR-1-related diseases. Its comprehensive approach to research, education, and advocacy makes it an invaluable asset in the fight against these challenging conditions.
This information is meant to be a general summary of The Ryr-1 Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $71,970
- Program Service Revenue: $66,606
- Gross Receipts: $600,451
Assets and Liabilities:
- Total Assets: $2,065,543
- Total Liabilities: $3,667
- Net Assets: $2,061,876
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
FAMILY CONFERENCE
Revenue
$34,106
RESEARCH WORKSHOPS
Revenue
$32,500
Organization Details
Founding Year
2014
Principal Officer
Michael Goldberg
Website
www.ryr1.orgNTEE Category
Code: H99 - Medical research
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