Overview
What is Grace Science Foundation?
Grace Science Foundation is a nonprofit organization situated in Menlo Park, California, with a focus on supporting and funding the development of life-saving treatments for patients with N-glycanase enzyme deficiency and related genetic diseases. They have backed medical research initiatives at hospitals and research facilities, fostering collaboration among academic institutions, research institutions, hospitals, private companies, and governmental agencies. A significant aspect of their work involves maintaining a colony of Ngly1 knockout rats, which have contributed to the evaluation of therapies for NGLY1 Deficiency, leading to an investigational new drug (IND) application to the FDA for a clinical study. The organization's efforts also encompass monitoring clinical phenotypes and collecting biological samples from homozygous mutant and heterozygous (carrier) NGLY1 knockout rats over their lifespan.
Official website here: www.gracescience.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 74%, earning a Two-Star out of Four Star rating. The Grace Science Foundation has been rated with a 74% overall score, indicating that while it demonstrates some strengths, there are areas needing improvement. The organization excels in leadership and adaptability, achieving a perfect score in this category, showcasing a commitment to growth and effective governance.
The foundation boasts a fully independent board comprised of seven members and shows no signs of material diversion of assets. Additionally, it maintains a strong program expense ratio of 85.33%, suggesting that a significant portion of its funding is directed towards its mission-related activities. However, the organization is lacking in certain accountability mechanisms, such as a whistleblower policy and a documented retention policy, which could enhance its operational transparency.
Despite the strengths in leadership and financial health, the absence of proper document retention practices and board meeting documentation raises concerns about accountability and governance. Prospective donors and stakeholders may want to consider these limitations when evaluating the foundation's overall effectiveness and reliability.
This AI summary has been generated from information found on Charity Navigator.
Is Grace Science Foundation legitimate?
Grace Science Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Grace Science Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
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Official website here: www.gracescience.org
What is the mission statement of Grace Science Foundation?
The Grace Science Foundation's mission is to support and finance the development of life-saving treatments for patients with a deficiency in the N-glycanase enzyme and those affected by related genetic diseases. To accomplish this, the foundation provides grant funding to hospitals and medical research facilities engaged in various fields of research related to the understanding and treatment of this condition. Furthermore, the Grace Science Foundation encourages collaboration between academic institutions, research institutions, hospitals, private companies, and governmental agencies to advance research in this area.
Official website here: www.gracescience.org
Who is the CEO of Grace Science Foundation?
Matthew R Wilsey is the President of Grace Science Foundation.
Official website here: www.gracescience.org
What is the revenue of Grace Science Foundation?
Grace Science Foundation's revenue in 2022 was $1,236,228.
Official website here: www.gracescience.org
Who are the executives of Grace Science Foundation and what are their salaries?
Here are 7 key members and their salaries:
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Official website here: www.gracescience.org
Where can I find the form 990 for Grace Science Foundation?
Grace Science Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.gracescience.org
Learn more at the official website: www.gracescience.org
Mission Statement of Grace Science Foundation
Grace Science Foundation, a nonprofit organization, is dedicated to supporting and funding the development of life-saving treatments for patients with a deficiency in the N-glycanase enzyme and related genetic diseases. The foundation's activities involve providing grant funding to hospitals and medical research facilities engaged in various fields of research related to the understanding and treatment of this condition. Furthermore, Grace Science Foundation encourages collaboration between academic institutions, research institutions, hospitals, private companies, and governmental agencies to advance this cause. Their mission is to contribute to the medical community's collective efforts in finding effective treatments for these patients, ultimately aiming to improve their quality of life.
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Impact
July, 2024
Grace Science Foundation's impact includes supporting and funding the development of life-saving treatments for patients deficient in the N-glycanase enzyme and those suffering from related genetic diseases. The foundation has provided grant funding to hospitals and medical research facilities conducting research in fields related to understanding and treating this condition. Additionally, they have facilitated collaboration among academia, research institutions, hospitals, private companies, and governmental agencies to advance medical research in this area. Key initiatives include maintaining a colony of Ngly1 knockout rats for evaluating therapies and supporting an investigational new drug application for an NGLY1 Deficiency gene therapy clinical study.
This information is meant to be a general summary of Grace Science Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $29,778
- Gross Receipts: $1,236,228
Assets and Liabilities:
- Total Assets: $3,183,591
- Total Liabilities: $51,224
- Net Assets: $3,132,367
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Organization Details
Founding Year
2014
Phone
(650) 746-4591Principal Officer
Matthew R Wilsey
Main Address
873 SANTA CRUZ AVENUE SUITE 200, MENLO PARK, CA, 94025
Website
www.gracescience.orgNTEE Category
Code: H99 - Medical research
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