Overview
What is Snyder-Robinson Foundation?
The Snyder-Robinson Foundation, located at 1443 Layman Street, McLean, VA 22101, is a nonprofit organization dedicated to supporting medical research for Snyder-Robinson Syndrome (SRS) and related disorders. As a patient advocacy group, their mission is to advance safe and effective treatment options through scientific research. To achieve this, they conduct an ongoing IRB-approved study, gathering medical data from SRS patients to better understand the condition and develop potential therapies. The foundation employs a Director of Research and covers related expenses such as payroll taxes and payroll services. With a small team of two individuals, the Snyder-Robinson Foundation is committed to making strides in the rare disease community.
Official website here: www.snyder-robinson.org/
What are the reviews and ratings of this charity?
Charity Navigator Rating: 86%, Three-Star out of Four Star Rating
The Snyder-Robinson Foundation has earned a Three-Star rating from Charity Navigator, reflecting a strong commitment to accountability and finance. The foundation's overall score is based entirely on its accountability practices, which are impressive with a score of 100% for having an entirely independent board and no material diversion of assets. This indicates a high level of governance and ethical management.
Strengths of the organization include a significant focus on financial integrity, evidenced by a program expense ratio of 92.67%, meaning most of its funds are directed towards its programs rather than administrative costs. The foundation also scores well in areas such as having all board meeting minutes documented and its tax form readily available on its website, which enhances transparency.
However, the foundation has noted some limitations, specifically the absence of a whistleblower policy and a document retention policy, which both scored zero points in their respective categories. While these areas could improve, the foundation's overall accountability and financial health remain solid indicators of its reliability and commitment to its mission.
This AI summary has been generated from information found on Charity Navigator.
Is Snyder-Robinson Foundation legitimate?
Snyder-Robinson Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Snyder-Robinson Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $80,000
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.snyder-robinson.org/
What is the mission statement of Snyder-Robinson Foundation?
The Snyder-Robinson Foundation, serving as a patient advocacy organization for rare diseases, is dedicated to supporting medical research aimed at discovering safe and effective treatments for individuals affected by Snyder-Robinson Syndrome and related disorders. Their mission also extends to backing related scientific and charitable endeavors. Currently, they are engaged in an IRB-approved study titled the "Snyder-Robinson Syndrome Patient Registry and Natural History Study" to accumulate medical data from patients with Snyder-Robinson Syndrome, which will aid researchers in better understanding the condition and developing treatments.
Official website here: www.snyder-robinson.org/
Who is the CEO of Snyder-Robinson Foundation?
Michael Raymond is the Director Of Business Development & Membership of Snyder-Robinson Foundation.
Official website here: www.snyder-robinson.org/
What is the revenue of Snyder-Robinson Foundation?
Snyder-Robinson Foundation's revenue in 2023 was $58,730.
Official website here: www.snyder-robinson.org/
Who are the executives of Snyder-Robinson Foundation and what are their salaries?
The average compensation at Snyder-Robinson Foundation during 2023 was $40,000. There are 2 employees and 15 volunteers at Snyder-Robinson Foundation.
Here are 6 key members and their salaries:
- Compensation: $40,000
- Related: $0
- Other: $0
- Compensation: $40,000
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.snyder-robinson.org/
Where can I find the form 990 for Snyder-Robinson Foundation?
Snyder-Robinson Foundation's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.snyder-robinson.org/
Learn more at the official website: www.snyder-robinson.org/
Mission Statement of Snyder-Robinson Foundation
The Snyder-Robinson Foundation, as a patient advocacy organization focused on rare diseases, is dedicated to supporting medical research aimed at developing safe and effective treatments for individuals afflicted with Snyder-Robinson Syndrome (SRS) and related disorders. Their mission extends beyond this, encompassing various scientific and charitable purposes related to these conditions.
In pursuit of their mission, the Snyder-Robinson Foundation has undertaken an ongoing IRB-approved study known as the Snyder-Robinson Syndrome Patient Registry and Natural History Study. This initiative collects comprehensive medical data from SRS patients, serving as a valuable resource for researchers in their quest to better understand the condition and pave the way for potential treatments. The Foundation's commitment to this project is evident through the allocation of funds, including salary expenses for their Director of Research and related expenses such as payroll taxes and payroll services.
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Impact
August, 2024
The Snyder-Robinson Foundation's impact is significant in the field of medical research, specifically focusing on Snyder-Robinson Syndrome and related disorders. Through their ongoing Snyder-Robinson Syndrome Patient Registry and Natural History Study, the foundation collects critical medical data from SRS patients. This data is invaluable for researchers seeking to better understand SRS and develop effective treatments. By supporting such research initiatives, the foundation plays a vital role in advancing knowledge and improving outcomes for individuals affected by Snyder-Robinson Syndrome and related conditions.
This information is meant to be a general summary of Snyder-Robinson Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Gross Receipts: $58,730
Assets and Liabilities:
- Total Assets: $158,268
- Total Liabilities: $0
- Net Assets: $158,268
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Organization Details
Founding Year
2014
Phone
(703) 203-0215Principal Officer
Michael Raymond
Main Address
1443 Layman Street, McLean, VA, 22101
Website
www.snyder-robinson.org/NTEE Category
Code: H48 - Medical research
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