Overview
What is The Dysautonomia Project Inc?
The Dysautonomia Project Inc, located at 4592 Ulmerton Road, Clearwater, Florida, is a nonprofit organization dedicated to educating various audiences about dysautonomia. Their efforts extend to pediatric nurse practitioners, graduate school nursing students, and other medical professionals through virtual and in-person training sessions. In addition, they distribute and sell educational books on the topic to engage and inform the broader community. Their primary mission is to foster understanding and awareness of dysautonomia among healthcare professionals, communities, and affected patients, aiming to improve diagnosis and care for those living with this condition.
Official website here: www.thedysautonomiaproject.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 89%, Three-Star out of Four Star Rating
The Dysautonomia Project Inc has achieved a strong rating of 89% from Charity Navigator, reflecting a solid commitment to accountability and finance as well as community engagement. With an accountability and finance score of 88%, the organization demonstrates effective management of its resources, including a high program expense ratio of nearly 70%. The presence of a majority independent board members also strengthens its governance structure, although there are some areas identified for improvement.
While the organization shines in various accountability metrics, it lacks certain policies such as a whistleblower and document retention policy, which could enhance transparency and governance. Despite this, the charity excels in collecting and utilizing constituent feedback, achieving perfect scores in these areas. The 91% culture and community score highlights the organization's strong community engagement and responsiveness to the needs of its constituents.
Overall, The Dysautonomia Project Inc exhibits commendable strengths in financial accountability and community involvement, but there are some governance practices that could benefit from improvement. Potential donors and supporters can feel confident in the organization’s financial health while also recognizing areas where further development could enhance its operational effectiveness.
This AI summary has been generated from information found on Charity Navigator.
Is The Dysautonomia Project Inc legitimate?
The Dysautonomia Project Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Dysautonomia Project Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
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Other Salaries and Wages: $142,451
For more financial information, click here
Official website here: www.thedysautonomiaproject.org
What is the mission statement of The Dysautonomia Project Inc?
The Dysautonomia Project Inc's mission is centered around educating three primary groups: healthcare professionals, communities, and patients, regarding dysautonomia. Through various means, including virtual and in-person training sessions, they aim to spread awareness and knowledge about this condition. The organization also distributes and sells educational materials, such as books, to the general public to further promote understanding and awareness of dysautonomia.
Official website here: www.thedysautonomiaproject.org
Who is the CEO of The Dysautonomia Project Inc?
Alexandra Key is the President of The Dysautonomia Project Inc.
Official website here: www.thedysautonomiaproject.org
What is the revenue of The Dysautonomia Project Inc?
The Dysautonomia Project Inc's revenue in 2022 was $626,154.
Official website here: www.thedysautonomiaproject.org
Who are the executives of The Dysautonomia Project Inc and what are their salaries?
The average compensation at The Dysautonomia Project Inc during 2022 was $47,484. There are 3 employees and 25 volunteers at The Dysautonomia Project Inc.
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Official website here: www.thedysautonomiaproject.org
Where can I find the form 990 for The Dysautonomia Project Inc?
The Dysautonomia Project Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.thedysautonomiaproject.org
Learn more at the official website: www.thedysautonomiaproject.org
Mission Statement of The Dysautonomia Project Inc
The Dysautonomia Project Inc is committed to spreading awareness and education about dysautonomia. Their primary mission is to enlighten healthcare professionals, local communities, and patients about this complex neurological disorder. To accomplish this, they conduct both virtual and in-person training sessions, targeting pediatric nurse practitioners and graduate school nursing students, among other medical professionals. Additionally, The Dysautonomia Project Inc sells and distributes informative books on dysautonomia to the general public, aiming to broaden the understanding of this condition within communities.
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Impact
July, 2024
The Dysautonomia Project Inc has had a significant impact in educating healthcare professionals, communities, and patients about dysautonomia. Through virtual and in-person education and awareness trainings, they have reached pediatric nurse practitioners, graduate school nursing students, and other medical professionals. Additionally, their distribution and sale of educational books has further helped in informing and educating the community about dysautonomia. This proactive approach is crucial in increasing awareness and understanding of this condition, ultimately improving diagnosis and management for individuals affected by dysautonomia.
This information is meant to be a general summary of The Dysautonomia Project Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $815,346
Assets and Liabilities:
- Total Assets: $918,188
- Total Liabilities: $12,300
- Net Assets: $905,888
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Organization Details
Founding Year
2014
Phone
(727) 304-1547Principal Officer
Alexandra Key
Main Address
4592 Ulmerton Road, Clearwater, FL, 33762
NTEE Category
Code: E99 - Health
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