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Cure Sanfilippo Foundation

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 464322131 ✦ Columbia, SC ✦ Designated as a 501(c)(3)

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Overview

What is Cure Sanfilippo Foundation?

The Cure Sanfilippo Foundation, situated in Columbia, South Carolina, serves as a dedicated nonprofit organization with a mission to advocate for and financially support research aimed at discovering a cure or effective treatment options for individuals diagnosed with Sanfilippo Syndrome. With a small team of just four employees, this foundation is committed to making a significant impact in the lives of those affected by this rare genetic disorder. Their primary focus is on funding research initiatives, striving to bring hope and potential solutions to patients and their families worldwide.


Official website here: www.curesanfilippofoundation.org

Is Cure Sanfilippo Foundation legitimate?

Cure Sanfilippo Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Cure Sanfilippo Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $330,850
Professional Fundraising Fees: $0
Other Salaries and Wages: $52,101

For more financial information, click here


Official website here: www.curesanfilippofoundation.org

What is the mission statement of Cure Sanfilippo Foundation?

The Cure Sanfilippo Foundation's mission is centered around advocating for and funding research aimed at discovering a cure or effective treatment options for patients suffering from Sanfilippo Syndrome. The organization is committed to advancing scientific breakthroughs in this area, with the ultimate goal of alleviating the challenges and improving the quality of life for those affected by this condition. They actively seek out and support research projects that hold promise in finding a solution to Sanfilippo Syndrome.


Official website here: www.curesanfilippofoundation.org

Who is the CEO of Cure Sanfilippo Foundation?

Glenn O'Neill is the Exe Dir/Pres of Cure Sanfilippo Foundation.


Official website here: www.curesanfilippofoundation.org

What is the revenue of Cure Sanfilippo Foundation?

Cure Sanfilippo Foundation's revenue in 2022 was $2,707,445.


Official website here: www.curesanfilippofoundation.org

Who are the executives of Cure Sanfilippo Foundation and what are their salaries?

The average compensation at Cure Sanfilippo Foundation during 2022 was $95,738. There are 4 employees at Cure Sanfilippo Foundation.


Here are 9 key members and their salaries:


Glenn O'Neill (Exe Dir/Pres)
  • Compensation: $135,200
  • Related: $0
  • Other: $24,548
Katie Walton (Vice President)
  • Compensation: $108,150
  • Related: $0
  • Other: $1,081
Cara O'Neill (Chief Science)
  • Compensation: $87,500
  • Related: $0
  • Other: $875
Ben Von Wong (Director)
  • Compensation: $7,500
  • Related: $0
  • Other: $0
Daniel Fraley (Board Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Faith Mcangus (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Shelby Leonardi (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Valerie Byers (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Adam Shaywitz (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.curesanfilippofoundation.org

Where can I find the form 990 for Cure Sanfilippo Foundation?

Cure Sanfilippo Foundation's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.curesanfilippofoundation.org

Learn more at the official website: www.curesanfilippofoundation.org

Mission Statement of Cure Sanfilippo Foundation

Cure Sanfilippo Foundation is dedicated to making a significant impact in the fight against Sanfilippo Syndrome. Their mission, in essence, is to champion for and financially back research aimed at discovering a cure or viable treatment options for those affected by this severe genetic disorder. By advocating for and investing in cutting-edge research, the foundation strives to bring hope and potential solutions to patients and their families who are currently grappling with this debilitating condition.

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Impact




October, 2024

Cure Sanfilippo Foundation plays a critical role in advocating for and funding research aimed at finding a cure or treatment options for patients suffering from Sanfilippo Syndrome. Based in Columbia, SC, the foundation actively supports projects that enhance understanding of this rare genetic disorder, which affects the body's ability to metabolize certain sugars, ultimately leading to severe neurological decline.

The foundation's efforts include collaboration with researchers and medical professionals to facilitate advancements in treatment, as well as raising awareness about Sanfilippo Syndrome to garner support from the broader community. By prioritizing impactful research initiatives, Cure Sanfilippo Foundation contributes significantly to the search for effective therapies and provides hope for affected families. Through these initiatives, it seeks not only to improve patient outcomes but also to drive the scientific community toward breakthroughs that could change lives.




This information is meant to be a general summary of Cure Sanfilippo Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$2,707,445 (2022)
Expenses
$2,287,097 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $483,599
  • Gross Receipts: $3,470,418

Assets and Liabilities:

  • Total Assets: $9,625,770
  • Total Liabilities: $21,192
  • Net Assets: $9,604,578

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Organization Details

Founding Year

2013

Principal Officer

Glenn O'Neill

Main Address

PO Box 6901, Columbia, SC, 29260

NTEE Category

Code: H80 - Medical research

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