Overview
What is Hypersomnia Foundation Inc?
The Hypersomnia Foundation Inc, situated in Atlanta, Georgia, is a dedicated nonprofit organization that focuses on raising awareness, providing education, and advancing research related to hypersomnias. With a team of five dedicated individuals, their mission is to serve as a valuable resource for individuals with hypersomnias, their supporters, and healthcare providers. They strive to reduce the time to diagnosis by increasing awareness and knowledge of hypersomnias within medical and educational communities. The foundation is also committed to supporting scientific breakthroughs in the understanding and treatment of central hypersomnias. By translating new discoveries, they aim to improve outcomes and enhance the quality of life for people affected by these sleep disorders.
Official website here: www.hypersomniafoundation.org/
What are the reviews and ratings of this charity?
Charity Navigator Rating: 95%, Four-Star out of Four Star rating.
The Hypersomnia Foundation Inc has achieved an impressive overall rating of 95%, indicating a strong commitment to accountability and financial health. With a score of 96 for Accountability & Finance and 100 for both Culture & Community and Leadership & Adaptability, the organization demonstrates robust governance and operational practices. Their Program Expense Ratio of 89.31% showcases a significant portion of funds directed towards programs, reflecting effective use of resources.
Furthermore, the foundation emphasizes feedback collection and utilization, scoring a perfect 100 in both areas, which indicates a strong commitment to community engagement and responsiveness. The organization is governed by a board that is entirely independent, suggesting a high level of integrity in decision-making processes. The lack of material diversion of assets and the presence of essential policies, such as conflict of interest and whistleblower policies, further cement their dedication to transparency.
Among the notable strengths, the Hypersomnia Foundation has shown adaptability during the Covid-19 pandemic, indicating a proactive approach in addressing challenges. While the foundation maintains a strong overall profile, continued focus on impact measurement could further enhance its effectiveness as it strives to fulfill its mission.
This AI summary has been generated from information found on Charity Navigator.
What do the Facebook reviews say about Hypersomnia Foundation Inc?
100% of 17 reviewers on Facebook recommend the Hypersomnia Foundation Inc. Here's a summary of their thoughts:
Reviewers express a strong appreciation for the community the foundation provides. Many have reported feeling isolated due to their experiences with Idiopathic Hypersomnia, but finding the foundation has allowed them to connect with others who understand their struggles. The resources and support offered by the organization are recognized as valuable, giving individuals hope for a future cure.
Overall, there is a clear sentiment of gratitude towards the foundation’s efforts in raising awareness and providing support. Users feel reassured knowing they are not alone in their journey, and they commend the foundation for its commitment to advancing research and offering hope to those affected by this condition.
This AI summary has been generated from reviews found on Facebook.
Is Hypersomnia Foundation Inc legitimate?
Hypersomnia Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Hypersomnia Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $152,039
Professional Fundraising Fees: $0
Other Salaries and Wages: $37,006
For more financial information, click here
Official website here: www.hypersomniafoundation.org/
What is the mission statement of Hypersomnia Foundation Inc?
The Hypersomnia Foundation's mission is to actively involve, enlighten, and advocate for its global community to enhance the lives of individuals struggling with idiopathic hypersomnia and associated sleep disorders. The organization strives to decrease the time to diagnosis by increasing awareness and knowledge about hypersomnias within medical and educational circles. Furthermore, the Hypersomnia Foundation supports scientific advancements in understanding the causes and treatments of central hypersomnias, with a goal of transforming these discoveries into improved healthcare outcomes and better quality of life for affected individuals.
Official website here: www.hypersomniafoundation.org/
Who is the CEO of Hypersomnia Foundation Inc?
Amy Desmarais is the Ceo of Hypersomnia Foundation Inc. The CEO's salary of Hypersomnia Foundation Inc is $34,095 and their total compensation is $34,095.
Official website here: www.hypersomniafoundation.org/
What is the revenue of Hypersomnia Foundation Inc?
Hypersomnia Foundation Inc's revenue in 2022 was $581,920.
Official website here: www.hypersomniafoundation.org/
Who are the executives of Hypersomnia Foundation Inc and what are their salaries?
The average compensation at Hypersomnia Foundation Inc during 2022 was $37,809. There are 5 employees and 10 volunteers at Hypersomnia Foundation Inc.
Here are 14 key members and their salaries (Hypersomnia Foundation Inc's CEO's salary is $34,095 and their total compensation is $34,095):
- Compensation: $57,842
- Related: $0
- Other: $0
- Compensation: $34,095
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- Other: $0
- Compensation: $32,202
- Related: $0
- Other: $0
- Compensation: $27,900
- Related: $0
- Other: $0
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- Other: $0
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- Other: $0
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- Other: $0
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- Other: $0
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- Other: $0
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- Other: $0
- Compensation: $0
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- Other: $0
Official website here: www.hypersomniafoundation.org/
Where can I find the form 990 for Hypersomnia Foundation Inc?
Hypersomnia Foundation Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.hypersomniafoundation.org/
Learn more at the official website: www.hypersomniafoundation.org/
Mission Statement of Hypersomnia Foundation Inc
The Hypersomnia Foundation Inc, a dedicated organization, works tirelessly to promote awareness, education, and research in the field of hypersomnias. Their mission is to connect, inform, and advocate for individuals struggling with idiopathic hypersomnia and related sleep disorders. By engaging with their global community, the foundation aims to reduce the time it takes to diagnose these conditions and increase understanding in medical and educational circles. Furthermore, the Hypersomnia Foundation supports scientific advancements, aiming to uncover the causes and develop effective treatments for central hypersomnias. Ultimately, their goal is to improve the lives of those affected by these sleep disorders, translating new discoveries into enhanced outcomes and quality of life.
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Impact
July, 2024
The Hypersomnia Foundation Inc is making a significant impact by providing high-quality, timely information to individuals with hypersomnias, their supporters, and healthcare providers. Through their efforts, they are increasing awareness and knowledge of hypersomnias within medical and educational communities, ultimately reducing the time to diagnosis for those affected. Additionally, the foundation is actively supporting the discovery of scientific breakthroughs related to the causes and treatments of central hypersomnias, with the goal of translating these findings into improved outcomes and quality of life for individuals dealing with hypersomnias. Their work is instrumental in furthering hypersomnia awareness, education, and research, with a mission to engage, inform, and champion the global community to enhance the lives of those with idiopathic hypersomnia and related sleep disorders.
This information is meant to be a general summary of Hypersomnia Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $350
- Program Service Revenue: $36,029
- Gross Receipts: $581,920
Assets and Liabilities:
- Total Assets: $954,600
- Total Liabilities: $6,102
- Net Assets: $948,498
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
EDUCATION AND RESEARCH
Revenue
$36,029
Organization Details
Founding Year
2014
Phone
(404) 301-1924Principal Officer
Amy Desmarais
Main Address
4514 CHAMBLEE DUNWOODY ROAD 229, ATLANTA, GA, 30338
NTEE Category
Code: B01 - Education
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