Overview
What is Ald Connect Inc?
Ald Connect Inc is a nonprofit organization established at 35 Village Road, Middleton, Massachusetts. Their primary mission is to enhance health outcomes for individuals living with X-linked Adrenoleukodystrophy (ALD). They accomplish this by advocating awareness, empowering patients, and accelerating the translation of research into practical applications. Ald Connect Inc provides various resources to achieve this goal, such as hosting annual medical conferences, maintaining an educational website, offering free webinars, and organizing support calls for various patient groups. Additionally, they run a patient portal and collect health data to further their research. Their work is supported by an Industry Advisory Council, which brings together industry representatives to advance the field of ALD/AMN.
Official website here: www.aldconnect.org
Is Ald Connect Inc legitimate?
Ald Connect Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Ald Connect Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
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Official website here: www.aldconnect.org
What is the mission statement of Ald Connect Inc?
Ald Connect Inc's mission is focused on enhancing the health outcomes for individuals with X-linked Adrenoleukodystrophy (ALD). They achieve this by raising awareness about the condition, empowering patients, and expediting the translation of research findings into practical applications. Ald Connect Inc organizes an annual medical conference, maintains a website with educational content, conducts free webinars, hosts support calls for various patient groups, and operates a patient portal. Additionally, they collect patient health data and collaborate with an industry advisory council to encourage industry involvement in the ALD/AMN field.
Official website here: www.aldconnect.org
Who is the CEO of Ald Connect Inc?
Kathleen M O'Sullivan-Fortin Esq is the President of Ald Connect Inc.
Official website here: www.aldconnect.org
What is the revenue of Ald Connect Inc?
Ald Connect Inc's revenue in 2022 was $378,350.
Official website here: www.aldconnect.org
Who are the executives of Ald Connect Inc and what are their salaries?
There 25 volunteers at Ald Connect Inc.
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Official website here: www.aldconnect.org
Where can I find the form 990 for Ald Connect Inc?
Ald Connect Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.aldconnect.org
Learn more at the official website: www.aldconnect.org
Mission Statement of Ald Connect Inc
Ald Connect Inc, a nonprofit organization, is committed to enhancing the health outcomes for individuals affected by X-linked Adrenoleukodystrophy (ALD). Their mission is threefold: raising awareness about ALD, empowering patients, and accelerating the translation of research findings into practical applications. To achieve this, Ald Connect Inc sponsors an annual medical conference, maintains a website filled with educational content, and hosts free webinars. They also provide support calls for various patient groups and operate a patient portal, collecting valuable health data. To further engage industry representatives, Ald Connect Inc collaborates with an Industry Advisory Council, encouraging their involvement in the ALD/AMN field. This comprehensive approach aims to improve the lives of individuals with ALD, providing them with the necessary support, resources, and knowledge to navigate their journey.
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Impact
October, 2024
Ald Connect Inc significantly impacts the lives of individuals affected by X-Linked Adrenoleukodystrophy (ALD) through a multifaceted approach aimed at improving health outcomes. The organization raises awareness about ALD, empowering patients and their families with the information and support they need. By sponsoring an annual medical conference, Ald Connect facilitates knowledge sharing among healthcare professionals, researchers, and patients, promoting advancements in ALD treatment and care.
Additionally, the organization maintains a comprehensive website filled with educational resources and produces free webinars to further educate the community. Through support calls tailored to various patient groups, Ald Connect fosters a sense of community and connection among those impacted by the disease. Their patient portal and health data collection efforts enable valuable insights into disease management and outcomes.
Collaborating with an industry advisory council, Ald Connect brings together industry representatives to encourage progress in researching and developing therapies for ALD and Adrenomyeloneuropathy (AMN). This proactive engagement helps accelerate the translation of research into practice, ultimately aiming to enhance the quality of life for individuals affected by ALD.
This information is meant to be a general summary of Ald Connect Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $267
- Gross Receipts: $378,350
Assets and Liabilities:
- Total Assets: $934,444
- Total Liabilities: $22,919
- Net Assets: $911,525
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Organization Details
Founding Year
2013
Phone
(833) 525-3266Principal Officer
Kathleen M O'Sullivan-Fortin Esq
Main Address
35 VILLAGE ROAD, MIDDLETON, MA, 019491202
Website
www.aldconnect.orgNTEE Category
Code: G80 - Disease
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