Overview
What is Conquering Chd?
Conquering Chd is a dedicated nonprofit organization based in Middleton, Wisconsin, aiming to improve the lives of children with congenital heart disease. Recognizing that receiving such a diagnosis can be overwhelming, they provide families with a supportive tool called the Guided Questions, which aids in discussing treatment options with medical professionals. This tool, widely distributed through various channels, is currently being evaluated in a multicenter quality improvement project with leading heart hospitals to ensure its effectiveness. Beyond this, Conquering Chd is influencing national policy and culture surrounding pediatric and congenital heart disease outcomes, through stakeholder summits, faculty presentations, and collaborations with partner organizations. This drive has led to modifications in national ranking systems and increased recognition and utilization of the parent voice within the medical community. Their mission is to conquer the most common birth defect, foster awareness, knowledge, community, and research, ultimately empowering all impacted by congenital heart disease.
Official website here: www.conqueringchd.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 82% (Three-Star out of Four Star rating)
Conquering CHD has earned a respectable Three-Star rating from Charity Navigator, reflecting its commitment to accountability and finance management with an impressive 93% score in this area. The organization demonstrates strong oversight, as evidenced by its independent board composition and policies that ensure transparency and integrity in operations. The program expense ratio stands at 73.89%, indicating that a significant portion of its resources is directed towards its mission.
User feedback highlights the profound impact Conquering CHD has had on individuals and families affected by congenital heart disease. Many volunteers and board members express gratitude for the support, resources, and community the organization provides. Reviewers emphasize the importance of advocacy and education, noting that the organization empowers families and champions awareness of congenital heart defects.
Despite the overwhelmingly positive feedback, the data does not indicate specific limitations or challenges faced by Conquering CHD. Overall, the organization is well-regarded for its mission and effectiveness in serving the CHD community, fostering a network of support and advocacy for those impacted by this condition.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Conquering Chd legitimate?
Conquering Chd is a legitimate nonprofit organization registered as a 501(c)(3) entity. Conquering Chd submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $86,053
Professional Fundraising Fees: $0
Other Salaries and Wages: $44,844
For more financial information, click here
Official website here: www.conqueringchd.org
What is the mission statement of Conquering Chd?
Conquering CHD's mission is centered around addressing Congenital Heart Disease (CHD), the most common birth defect. They engage, listen, learn, and act to create visibility and empower all affected by CHD. This is achieved through awareness, knowledge, community, and research. They provide support to families through resources like the Guided Questions tool, offering guidance during critical medical decision-making. Conquering CHD is also influencing national policy and culture surrounding public reporting of pediatric and congenital heart disease outcomes, leading to modifications in ranking systems and increased recognition of the patient voice in the medical community.
Official website here: www.conqueringchd.org
What is the revenue of Conquering Chd?
Conquering Chd's revenue in 2023 was $291,957.
Official website here: www.conqueringchd.org
Who are the executives of Conquering Chd and what are their salaries?
The average compensation at Conquering Chd during 2023 was $21,816. There are 6 employees and 75 volunteers at Conquering Chd.
Here are 5 key members and their salaries:
- Compensation: $16,797
- Related: $0
- Other: $0
- Compensation: $38,461
- Related: $0
- Other: $0
- Compensation: $30,855
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.conqueringchd.org
Where can I find the form 990 for Conquering Chd?
Conquering Chd's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.conqueringchd.org
Learn more at the official website: www.conqueringchd.org
Mission Statement of Conquering Chd
Conquering CHD is an organization dedicated to overcoming the most common birth defect, congenital heart disease. They achieve this mission by engaging with the affected community, listening to their experiences, learning from them, and taking action. The organization's primary goal is to create visibility and empower those impacted by CHD. They accomplish this through various means, including awareness campaigns, knowledge dissemination, community building, and research.
When a child is diagnosed with congenital heart disease, the situation can be overwhelming for families. Many children require life-saving surgery or intervention within the first few weeks or months of their life. Conquering CHD recognizes the importance of providing families with accurate information about their child's treatment options. To address this need, the organization has developed a guided questions tool, which is given to families at the time of diagnosis. This list of questions offers support and confidence when discussing treatment options with doctors, surgeons, and the care team. Conquering CHD is currently conducting a multicenter quality improvement project with top heart hospitals to document the effectiveness of this tool.
In addition to direct support for families, Conquering CHD is also working to influence national policy and culture surrounding the reporting of pediatric and congenital heart disease outcomes. They are achieving this by hosting stakeholder summits, presenting at national conferences, and building relationships with partner organizations. The results of these efforts include modifications to national ranking systems and an increased respect for and utilization of the patient and family voice within the medical community. Conquering CHD is currently collaborating with a wide range of stakeholders to develop their website to include centralized congenital heart outcome data reporting and information to support interpretation for patients, families, and providers.
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Impact
July, 2024
Conquering CHD's impact can be seen in its efforts to empower patients and families dealing with congenital heart disease. By providing tools like the Guided Questions tool and working on a multicenter quality improvement project with top heart hospitals, the organization is helping families navigate critical medical decisions with confidence. Additionally, Conquering CHD is influencing national policy and culture regarding public reporting of pediatric and congenital heart disease outcomes, leading to modifications in ranking systems and greater respect for the parent voice in the medical community. Through its initiatives, the organization is creating visibility, building a supportive community, and advancing knowledge and research in the field, ultimately working towards conquering the most common birth defect.
This information is meant to be a general summary of Conquering Chd. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Program Service Revenue: $41,136
- Gross Receipts: $291,957
Assets and Liabilities:
- Total Assets: $116,383
- Total Liabilities: $56,084
- Net Assets: $60,299
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Research Fund
Revenue
$760
State Chapter Dues
Revenue
$40,376
Organization Details
Founding Year
2013
Principal Officer
Carissa Ostrom
Website
www.conqueringchd.orgNTEE Category
Code: H43 - Medical research
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