Overview
What is Rare Cancer Research Foundation?
The Rare Cancer Research Foundation, based in Durham, North Carolina, is a dedicated nonprofit organization with a mission to eradicate rare cancers. They accomplish this by making strategic investments and collaborations that stimulate impactful research and expedite the implementation of promising therapies. One of their innovative initiatives is Pattern.org, a platform that connects cancer patients nationwide, identifying eligible patients for tissue donation to research. This platform, launched in 2016, has successfully delivered high-quality, viable tissue from various hospitals across the U.S. to critical research projects. With a team of only two dedicated individuals, the Rare Cancer Research Foundation continues to make significant strides in rare cancer research.
Official website here: www.rcrf.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: Needs Improvement, 71%, Two-Star out of Four Star rating.
The Rare Cancer Research Foundation (RCRF) has received a mixed evaluation from Charity Navigator, highlighting areas of strength alongside some significant weaknesses. While the organization boasts an impressive program expense ratio of nearly 100% and high scores in leadership adaptability and community engagement, it falls short in board independence and policy documentation, which are crucial for accountability and financial transparency.
User feedback from Great Nonprofits paints a more positive picture, with numerous 5-star reviews praising RCRF's impactful work and commitment to rare cancer research. Reviewers commend the foundation's innovative approaches and strong focus on patient-centric solutions, emphasizing its role in accelerating the development of therapies and fostering collaboration within the cancer research community. Many supporters express hope and appreciation for the foundation's efforts, asserting that it is making significant strides for patients and their families.
Despite the positive sentiments from the community, the foundation's governance and financial practices require attention and improvement. Notably, the absence of an independent board and missing policies on whistleblower protections and document retention could hinder its operational integrity and public trust. Addressing these concerns would enhance RCRF's overall effectiveness and reputation in serving those affected by rare cancers.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Rare Cancer Research Foundation legitimate?
Rare Cancer Research Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Rare Cancer Research Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $80,000
Professional Fundraising Fees: $0
Other Salaries and Wages: $12,688
For more financial information, click here
Official website here: www.rcrf.org
What is the mission statement of Rare Cancer Research Foundation?
The Rare Cancer Research Foundation is committed to eradicating rare cancers by making strategic investments and fostering collaborations that stimulate effective research and expedite the deployment of promising therapies. The organization's primary goal is to catalyze research advancements and accelerate the availability of promising treatments for rare cancer patients.
As part of its efforts, Rare Cancer Research Foundation has developed a groundbreaking platform named Pattern.org. This platform enables the foundation to work directly with cancer patients nationwide, identifying eligible patients for donating tissue to research, educating them about research opportunities, obtaining their consent, and coordinating the logistics of transporting their tissue from local hospitals to world-class research institutions.
Launched successfully in 2016, Pattern.org has been delivering high-quality, viable, living tissue from both academic and community hospitals across the United States for critical and innovative research initiatives since 2022. The foundation's work through Pattern.org has been instrumental in supporting cutting-edge research in the field of rare cancers.
Official website here: www.rcrf.org
Who is the CEO of Rare Cancer Research Foundation?
Mark Laabs is the Director of Rare Cancer Research Foundation.
Official website here: www.rcrf.org
What is the revenue of Rare Cancer Research Foundation?
Rare Cancer Research Foundation's revenue in 2022 was $37,638.
Official website here: www.rcrf.org
Who are the executives of Rare Cancer Research Foundation and what are their salaries?
The average compensation at Rare Cancer Research Foundation during 2022 was $46,344. There are 2 employees at Rare Cancer Research Foundation.
Here are 4 key members and their salaries:
- Compensation: $80,000
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.rcrf.org
Where can I find the form 990 for Rare Cancer Research Foundation?
Rare Cancer Research Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.rcrf.org
Learn more at the official website: www.rcrf.org
Mission Statement of Rare Cancer Research Foundation
The Rare Cancer Research Foundation is committed to eradicating rare cancers by strategically investing and collaborating to stimulate impactful research and expedite the implementation of promising therapies. This nonprofit organization takes a proactive approach to combat the challenges associated with rare cancers by catalyzing effective research and accelerating the deployment of potential life-saving treatments.
In pursuit of its mission, the Rare Cancer Research Foundation has developed a groundbreaking platform called Pattern.org. This innovative tool allows the foundation to collaborate directly with cancer patients nationwide, identifying eligible individuals for tissue donation to research. By utilizing Pattern.org, Rare Cancer Research Foundation educates patients about research opportunities, obtains their consent to participate in such programs, and manages the logistics of transporting donated tissue from local hospitals to renowned research institutions. Launched in 2016, Pattern.org has demonstrated remarkable success, delivering high-quality, viable, living tissue from both academic and community hospitals across the United States to critical, innovative research initiatives in 2022.
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Impact
August, 2024
The Rare Cancer Research Foundation is making a significant impact in the field of medical research by focusing on curing rare cancers through strategic investments and collaborations. One of their key initiatives, Pattern.org, is a groundbreaking platform that allows direct engagement with cancer patients across the country. Through Pattern.org, the foundation is able to identify eligible patients who can donate tissue for research, educate them on research opportunities, obtain consent for participation in research programs, and facilitate the transportation of tissue to world-class research institutions.
Since its successful launch in 2016, Pattern.org has played a crucial role in delivering high-quality, viable living rare cancer tissue from both academic and community hospitals across the U.S. to innovative research initiatives. This effort has not only accelerated the pace of research but also provided essential resources for the development of promising therapies for rare cancers. The Rare Cancer Research Foundation's dedication to catalyzing effective research and deploying cutting-edge treatments is evident in the tangible outcomes achieved through Pattern.org.
This information is meant to be a general summary of Rare Cancer Research Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $37,638
Assets and Liabilities:
- Total Assets: $757,505
- Total Liabilities: $2,089
- Net Assets: $755,416
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Organization Details
Founding Year
2013
Phone
(919) 827-8373Principal Officer
Mark Laabs
Main Address
703 FOSTER STREET, DURHAM, NC, 27701
Website
www.rcrf.orgNTEE Category
Code: H30 - Medical research
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