Overview
What is The Brain Tumor Network Inc?
The Brain Tumor Network Inc, located in Ponte Vedra Beach, Florida, is a dedicated nonprofit organization that offers compassionate, personalized navigation services to brain tumor patients and their families in the United States. Their core program aims to address the scarcity of personalized treatment information, providing vital support and guidance to patients, caregivers, and healthcare providers. The team of nurse navigators and social workers assist individuals throughout their brain tumor treatment journey, offering services such as clinical trial searches, second opinions, and identifying specialized providers. In 2022, they navigated 737 patients nationwide, without providing medical advice but equipping them with treatment-related information for decision-making conversations with healthcare professionals. The Brain Tumor Network Inc was founded in late 2014 by the Sontag Foundation, responding to unmet navigation needs identified by those affected by primary brain tumors.
Official website here: www.braintumornetwork.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 92% (Four-Star out of Four Stars)
The Brain Tumor Network Inc has received a strong Four-Star rating from Charity Navigator, reflecting its high accountability and financial performance. With a Program Expense Ratio of 91.76%, the organization effectively allocates a significant portion of its funds towards its programs. The board is completely independent, consisting of seven members, which further enhances its governance and accountability.
Strengths of the organization include a perfect score in Leadership & Adaptability and excellent performance in areas such as feedback collection and usage. The organization has clear strategic goals focused on operational excellence and leveraging technology for enhanced services, showing a commitment to continuous improvement and community engagement.
However, it is worth noting that while the organization excels in many areas, it lacks a whistleblower policy, which could be seen as a limitation in its governance framework. Additionally, the Equity Strategies score of 75 indicates there may be room for improvement in addressing equity-related initiatives. Overall, The Brain Tumor Network Inc demonstrates a strong commitment to its mission but could enhance its policies to further strengthen its accountability framework.
This AI summary has been generated from information found on Charity Navigator.
Is The Brain Tumor Network Inc legitimate?
The Brain Tumor Network Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Brain Tumor Network Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $1,286,962
For more financial information, click here
Official website here: www.braintumornetwork.org
What is the mission statement of The Brain Tumor Network Inc?
The Brain Tumor Network Inc, established in late 2014 in response to unmet navigation needs, is committed to providing compassionate and personalized navigation services for brain tumor patients and their caregivers. This non-profit organization goes beyond offering assistance, also helping patients find suitable clinical trials tailored to their conditions. The Brain Tumor Network's mission is centered around supporting those affected by primary brain tumors, ensuring they receive the best possible care and guidance throughout their journey.
Official website here: www.braintumornetwork.org
Who is the CEO of The Brain Tumor Network Inc?
Frederick B Sontag is the President/Board Member of The Brain Tumor Network Inc.
Official website here: www.braintumornetwork.org
What is the revenue of The Brain Tumor Network Inc?
The Brain Tumor Network Inc's revenue in 2022 was $3,496,674.
Official website here: www.braintumornetwork.org
Who are the executives of The Brain Tumor Network Inc and what are their salaries?
The average compensation at The Brain Tumor Network Inc during 2022 was $64,348. There are 20 employees at The Brain Tumor Network Inc.
Here are 7 key members and their salaries:
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Official website here: www.braintumornetwork.org
Where can I find the form 990 for The Brain Tumor Network Inc?
The Brain Tumor Network Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.braintumornetwork.org
Learn more at the official website: www.braintumornetwork.org
Mission Statement of The Brain Tumor Network Inc
The Brain Tumor Network, a compassionate organization established by the Sontag Foundation, is committed to providing personalized navigation services to brain tumor patients and their caregivers in the United States. Recognizing the unmet navigation needs identified by individuals and family members affected by primary brain tumors, this nonprofit was launched in late 2014. The Brain Tumor Network's mission is to offer support and guidance to these patients, helping them navigate through their treatment journeys. This includes assisting them in finding clinical trials that best suit their specific circumstances. By doing so, the organization aims to ease the burden of dealing with brain tumors, providing hope and reassurance to those in need.
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Impact
July, 2024
The Brain Tumor Network Inc's impact lies in providing free treatment-related navigation services to brain tumor patients in the USA. The organization's core program offers important informational and navigation services to patients, caregivers, and care providers. By responding to online requests and telephone inquiries, the team of nurse navigators and social workers helps individuals gather the necessary information to navigate their brain tumor treatment journey. In 2022 alone, BTN navigated 737 patients nationwide, conducting personalized clinical trial searches, assisting with eligibility for trials, facilitating second opinions, identifying specialty providers, and obtaining and reviewing patient records. By equipping patients and families with personalized treatment-related information, BTN empowers them to engage in informed decision-making conversations with their healthcare professionals.
This information is meant to be a general summary of The Brain Tumor Network Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $31,850
- Gross Receipts: $3,496,674
Assets and Liabilities:
- Total Assets: $4,426,513
- Total Liabilities: $14,768
- Net Assets: $4,411,745
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Organization Details
Founding Year
2013
Phone
(844) 286-6110Principal Officer
Frederick B Sontag
Main Address
816 A1A NORTH 201, PONTE VEDRA BEACH, FL, 32082
Website
www.braintumornetwork.orgNTEE Category
Code: G48 - Disease
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