Overview
What is Down Syndrome Diagnosis Network?
Down Syndrome Diagnosis Network (DSDN) is a nonprofit organization situated in Stillwater, Minnesota. Their primary mission is to connect, support, and provide accurate information to families who have recently received a Down Syndrome diagnosis, as well as to the medical professionals serving them. They achieve this goal through annual retreats, which offer a 2-day event filled with motivational speakers, breakout sessions, pampering activities, and bonding opportunities for parents. These retreats also encourage community engagement through volunteer projects. The revenue for these events comes from registration fees, exhibit fees, merchandise sales, and sponsorships. The organization's core value lies in fostering lifelong connections for parents and their children with Down Syndrome. With a small team of two dedicated individuals, DSDN aims to make a significant impact in the lives of those affected by Down Syndrome.
Official website here: www.dsdiagnosisnetwork.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 78%, Three Stars
The Down Syndrome Diagnosis Network has earned a 78% rating from Charity Navigator, indicating a solid level of accountability and financial health. The organization scored particularly well in the Accountability & Finance category, with a score of 90%. Key strengths include a fully independent board and strong oversight measures, evidenced by high scores in independent board membership and financial statement management.
However, there are some areas where the organization could improve, particularly in its Program Expense Ratio, which stands at 60.53%. While this is a respectable figure, it suggests that there may be room for better allocation of resources toward direct programming and services. The absence of a whistleblower policy and a document retention policy noted in their assessment may also point to potential governance gaps that need addressing.
On a positive note, the organization excels in its culture and community engagement, receiving a perfect score of 100%. This indicates a strong commitment to fostering a supportive environment and implementing effective equity strategies. Overall, the Down Syndrome Diagnosis Network demonstrates a commitment to transparency and effective governance while also showing potential for improvement in specific operational areas.
This AI summary has been generated from information found on Charity Navigator.
Is Down Syndrome Diagnosis Network legitimate?
Down Syndrome Diagnosis Network is a legitimate nonprofit organization registered as a 501(c)(3) entity. Down Syndrome Diagnosis Network submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $50,000
Professional Fundraising Fees: $0
Other Salaries and Wages: $43,026
For more financial information, click here
Official website here: www.dsdiagnosisnetwork.org
What is the mission statement of Down Syndrome Diagnosis Network?
The Down Syndrome Diagnosis Network's mission is centered around connecting and supporting families who have received a Down Syndrome diagnosis, as well as the medical professionals serving them. This network aims to provide accurate information from the time of diagnosis up until the child turns three. Furthermore, the Down Syndrome Diagnosis Network fosters opportunities for lifelong connections through various events and initiatives. One such initiative is hosting annual retreats for parents of children with Down Syndrome, allowing them to connect, recharge, and engage in volunteer projects. These retreats typically span over two days, featuring motivational speakers, discussion sessions, pampering sessions, and bonding activities.
Official website here: www.dsdiagnosisnetwork.org
Who is the CEO of Down Syndrome Diagnosis Network?
Julia Kaufman is the Director of Down Syndrome Diagnosis Network.
Official website here: www.dsdiagnosisnetwork.org
What is the revenue of Down Syndrome Diagnosis Network?
Down Syndrome Diagnosis Network's revenue in 2022 was $500,167.
Official website here: www.dsdiagnosisnetwork.org
Who are the executives of Down Syndrome Diagnosis Network and what are their salaries?
The average compensation at Down Syndrome Diagnosis Network during 2022 was $46,513. There are 2 employees and 150 volunteers at Down Syndrome Diagnosis Network.
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- Compensation: $50,000
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Official website here: www.dsdiagnosisnetwork.org
Where can I find the form 990 for Down Syndrome Diagnosis Network?
Down Syndrome Diagnosis Network's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.dsdiagnosisnetwork.org
Learn more at the official website: www.dsdiagnosisnetwork.org
Mission Statement of Down Syndrome Diagnosis Network
The Down Syndrome Diagnosis Network (DSDN) is committed to connecting, supporting, and providing accurate information to families who have recently received a Down Syndrome diagnosis, as well as the medical professionals who serve them, from the time of diagnosis through a child's third year. The organization's mission is to foster opportunities for lifelong connections by hosting annual retreats for the parents of children with Down Syndrome. These retreats, held separately for mothers and fathers, allow parents to connect, be inspired, recharge, and give back to their local communities through volunteer projects. These events, which last for two days and include meals, motivational speakers, breakout discussion sessions, pampering sessions, and bonding activities, are funded through registration fees, exhibit fees, t-shirt sales, book sales, and retreat sponsorships.
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Impact
July, 2024
The Down Syndrome Diagnosis Network has a significant impact on families with a Down syndrome diagnosis by providing crucial support and accurate information. Through their annual retreats, the organization allows parents of children with Down syndrome to connect, be inspired, recharge, and give back to the local community. These 2-day events include meals, motivational speakers, breakout discussion sessions, pampering sessions, and bonding activities, creating a supportive environment for families facing similar challenges. The organization's work not only helps parents navigate the early years after diagnosis but also fosters lifelong connections that can provide ongoing support and encouragement.
This information is meant to be a general summary of Down Syndrome Diagnosis Network. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: -$1,620
- Program Service Revenue: $76,833
- Gross Receipts: $502,081
Assets and Liabilities:
- Total Assets: $643,501
- Total Liabilities: $15,668
- Net Assets: $627,833
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
RETREAT REGISTRATIONS
Revenue
$67,672
RETREAT EXHIBITORS
Revenue
$9,161
Organization Details
Founding Year
2013
Phone
(612) 460-0765Principal Officer
Julia Kaufman
Main Address
PO BOX 140, STILLWATER, MN, 55082
Website
www.dsdiagnosisnetwork.orgNTEE Category
Code: G25 - Disease
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