Overview
What is Wylder Nation Foundation?
Wylder Nation Foundation, based in Scottsdale, Arizona, is a dedicated nonprofit organization with a mission to enhance the lives of children diagnosed with Lysosomal Storage Disorders. They have demonstrated their commitment by facilitating the approval of experimental treatments for these disorders, extending funding for ASMD research, and enrolling participants in the ASMD Accelerate Study. Additionally, they have filed a third patent for potential biomarkers to monitor disease progression, and their research findings have been published in numerous peer-reviewed publications. With a small team of one individual, Wylder Nation Foundation continues to strive towards providing hope and accelerating the discovery and development of treatment options for children affected by Lysosomal Storage Disorders.
Official website here: www.wyldernation.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 74%, earning it a Two-Star out of Four Star rating. The rating indicates a moderate level of accountability and financial health for the Wylder Nation Foundation. While the score reflects some strong practices, such as a high program expense ratio of 85.87%, it also highlights significant areas for improvement.
The foundation demonstrates good governance with 66% of its board members being independent, and it has established policies for conflicts of interest, whistleblowing, and document retention. However, it has received zero points for its independent board size and financial statements, which raises concerns about transparency and governance structure.
Overall, the Wylder Nation Foundation has solid programming and a commitment to ethical practices, but the lack of financial documentation and an independent board may limit its effectiveness and credibility. Donors may want to consider these factors when deciding to support the organization.
This AI summary has been generated from information found on Charity Navigator.
Is Wylder Nation Foundation legitimate?
Wylder Nation Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Wylder Nation Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $62,200
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.wyldernation.org
What is the mission statement of Wylder Nation Foundation?
The Wylder Nation Foundation is committed to improving the lives of children diagnosed with Lysosomal Storage Disorders. Their mission is to provide hope by accelerating the discovery and development of treatment options for these conditions. They have facilitated FDA approval for several experimental treatments and continue to fund research focused on Asperger Syndrome and Related Disorders (ASMD). The foundation has also extended funding for a post-doc fellow working on ASMD research and is enrolling participants in the ASMD Accelerate Study. Additionally, they have filed a third patent related to potential biomarkers to monitor CNS disease progression based on funded research results. Their published research findings have been featured in multiple peer-reviewed publications.
Official website here: www.wyldernation.org
Who is the CEO of Wylder Nation Foundation?
Steven Laffoon is the President/Treasurer of Wylder Nation Foundation.
Official website here: www.wyldernation.org
What is the revenue of Wylder Nation Foundation?
Wylder Nation Foundation's revenue in 2022 was $550,698.
Official website here: www.wyldernation.org
Who are the executives of Wylder Nation Foundation and what are their salaries?
The average compensation at Wylder Nation Foundation during 2022 was $62,200. There is 1 employee and 5 volunteers at Wylder Nation Foundation.
Here are 3 key members and their salaries:
- Compensation: $62,200
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.wyldernation.org
Where can I find the form 990 for Wylder Nation Foundation?
Wylder Nation Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.wyldernation.org
Learn more at the official website: www.wyldernation.org
Mission Statement of Wylder Nation Foundation
Wylder Nation Foundation, a nonprofit organization, is dedicated to improving the lives of children diagnosed with Lysosomal Storage Disorders. Their mission is to provide hope and accelerate the discovery and development of treatment options for these conditions. By doing so, they aim to enhance the quality of life for children suffering from these disorders. The foundation has played a significant role in facilitating the approval of multiple single patient investigator-initiated/expanded access experimental treatments, based on their FAAH inhibitor program for ASMD. They have also extended additional funding for a post-doc fellow focused on ASMD research and continued enrollment in the ASMD Accelerate study to gather real-world evidence and better characterize the natural history of ASMD. Furthermore, Wylder Nation Foundation has filed a third patent surrounding potential biomarkers to monitor CNS disease progression, based on funded research results. Their research findings have been published in multiple peer-reviewed publications.
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Impact
July, 2024
Wylder Nation Foundation has made a significant impact in the field of lysosomal storage disorders, particularly in the area of ASMD (acid sphingomyelinase deficiency). They have initiated and facilitated FDA approval of multiple single-patient investigator-initiated/experimental treatments based on their FAAH inhibitor program for ASMD. Additionally, they have extended funding for post-doctoral research focused on ASMD, enrolled in an ASMD accelerate study to gather real-world evidence, and filed a patent surrounding potential biomarkers to monitor CNS disease progression. This dedication to research and treatment development demonstrates the foundation's commitment to improving the lives of children diagnosed with lysosomal storage disorders and providing hope for the future.
This information is meant to be a general summary of Wylder Nation Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $6,867
- Gross Receipts: $550,698
Assets and Liabilities:
- Total Assets: $1,072,806
- Total Liabilities: $1,397
- Net Assets: $1,071,409
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Organization Details
Founding Year
2013
Phone
(480) 419-3508Principal Officer
Steven Laffoon
Main Address
8924 E PINNACLE PEAK ROAD STE G5-57, SCOTTSDALE, AZ, 85255
Website
www.wyldernation.orgNTEE Category
Code: G80 - Disease
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