Overview
What is Rare Trait Hope Fund?
The Rare Trait Hope Fund is a nonprofit organization situated in Belle Chasse, Louisiana. Their primary mission is to stimulate research, secure funding, and foster the development of treatments for Aspartylglucosaminuria (AGU). They aim to serve as a global hub for doctors, scientists, and families, providing them with essential resources. Moreover, the Rare Trait Hope Fund seeks to broaden awareness of rare diseases in general, with a particular focus on AGU. Their significant expenditure for 2022 includes payments for AGA plasmid and vector production in preparation for a clinical trial for AGU treatment.
Official website here: www.raretrait.com
Is Rare Trait Hope Fund legitimate?
Rare Trait Hope Fund is a legitimate nonprofit organization registered as a 501(c)(3) entity. Rare Trait Hope Fund submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.raretrait.com
What is the mission statement of Rare Trait Hope Fund?
The Rare Trait Hope Fund's mission is centered around facilitating research, raising funds, and supporting the development of treatments for Aspartylglucosaminuria (AGU). Its goal is to serve as a global resource for doctors, scientists, and families related to AGU. The organization also strives to increase awareness about rare diseases in general and AGU specifically.
Official website here: www.raretrait.com
Who is the CEO of Rare Trait Hope Fund?
Julia Taravella is the President, Executive Director of Rare Trait Hope Fund.
Official website here: www.raretrait.com
What is the revenue of Rare Trait Hope Fund?
Rare Trait Hope Fund's revenue in 2022 was $260,648.
Official website here: www.raretrait.com
Who are the executives of Rare Trait Hope Fund and what are their salaries?
There 10 volunteers at Rare Trait Hope Fund.
Here are 6 key members and their salaries:
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Official website here: www.raretrait.com
Where can I find the form 990 for Rare Trait Hope Fund?
Rare Trait Hope Fund's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.raretrait.com
Learn more at the official website: www.raretrait.com
Mission Statement of Rare Trait Hope Fund
Rare Trait Hope Fund, a dedicated organization, is committed to facilitating research, raising funds, and supporting the development of treatments for Aspartylglucosaminuria (AGU). Their primary aim is to serve as a global resource for doctors, scientists, and families affected by this rare disease. Furthermore, they strive to increase awareness about rare diseases in general and AGU specifically. The organization's mission is multifaceted, with a focus on advancing medical knowledge and providing valuable support to those impacted by AGU.
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Impact
October, 2024
The Rare Trait Hope Fund significantly advances research and treatment for Aspartylglucosaminuria (AGU), a rare genetic disorder. By facilitating essential research and raising funds, it plays a crucial role in the ongoing development of treatment options for families affected by AGU. The organization acts as a vital resource for doctors, scientists, and families, fostering collaboration and disseminating important information about AGU, thereby enhancing understanding and awareness of rare diseases.
In 2022, the Fund prioritized the production of a gene therapy product intended for an upcoming clinical trial, reflecting its commitment to bringing innovative solutions to the forefront of AGU treatment. This focus on advancing gene therapy represents a hopeful step forward for patients and families, as it could lead to new therapeutic avenues and improved outcomes.
Furthermore, by increasing public and medical community awareness of AGU, the Fund not only directly impacts those affected by this condition but also contributes to a broader understanding of rare diseases, encouraging ongoing dialogue and research in the field. The collaboration between researchers, medical professionals, and families facilitated by the Rare Trait Hope Fund enhances the potential for breakthroughs that could benefit many.
This information is meant to be a general summary of Rare Trait Hope Fund. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $260,648
Assets and Liabilities:
- Total Assets: $174,245
- Total Liabilities: $0
- Net Assets: $174,245
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Organization Details
Founding Year
2013
Principal Officer
Julia Taravella
Main Address
406 Schlief Drive, Belle Chasse, LA, 70037
Website
www.raretrait.comNTEE Category
Code: H128 - Medical research
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