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The Cute Syndrome Foundation

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 462699066 ✦ Ozark, MO ✦ Designated as a 501(c)(3)

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Overview

What is The Cute Syndrome Foundation?

The Cute Syndrome Foundation, situated in Troy, New York, is a dedicated nonprofit organization with a mission to raise awareness about SCN8A mutations. They financially support researchers investigating this condition and offer assistance to families impacted by SCN8A. Recently, they collaborated with SCNBA Italia to co-fund a grant for the Danish Epilepsy Center's ₢Patient Registry and Natural Disease Evolution research. By doing so, they aim to contribute to the scientific community's understanding of SCN8A and its effects.


Official website here: www.thecutesyndrome.com

Is The Cute Syndrome Foundation legitimate?

The Cute Syndrome Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Cute Syndrome Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0

For more financial information, click here


Official website here: www.thecutesyndrome.com

What is the mission statement of The Cute Syndrome Foundation?

The Cute Syndrome Foundation's mission is centered around raising awareness of SCN8A mutations, providing financial support for researchers working on SCN8A, and offering assistance to families affected by this condition. Their goal is to foster understanding and advancements in the field, ultimately aiming to improve the lives of those impacted by SCN8A mutations. The foundation collaborates with other organizations, as demonstrated by their co-funding of a grant with SCNBA Italia, supporting research at the Danish Epilepsy Center.


Official website here: www.thecutesyndrome.com

Who is the CEO of The Cute Syndrome Foundation?

Hillary Savoie is the President of The Cute Syndrome Foundation.


Official website here: www.thecutesyndrome.com

What is the revenue of The Cute Syndrome Foundation?

The Cute Syndrome Foundation's revenue in 2022 was $352,644.


Official website here: www.thecutesyndrome.com

Who are the executives of The Cute Syndrome Foundation and what are their salaries?

There 35 volunteers at The Cute Syndrome Foundation.


Here are 6 key members and their salaries:


Alan Aronson (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kacie Craig (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Philip Gitlen (Board Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ryan Pitino (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Hillary Savoie (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Marianne Sutcliffe (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.thecutesyndrome.com

Where can I find the form 990 for The Cute Syndrome Foundation?

The Cute Syndrome Foundation's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.thecutesyndrome.com

Learn more at the official website: www.thecutesyndrome.com

Mission Statement of The Cute Syndrome Foundation

The Cute Syndrome Foundation is committed to raising awareness about SCN8A mutations, funding scientists conducting research on the condition, and supporting families affected by SCN8A. This mission is crucial in the pursuit of understanding and addressing the challenges associated with SCN8A, a genetic disorder that can lead to various neurological and developmental issues. By raising awareness, the foundation aims to educate the public and medical communities about the condition, thereby promoting early diagnosis and appropriate care.

In addition to raising awareness, The Cute Syndrome Foundation also invests in scientific research. By funding scientists, the foundation seeks to accelerate the discovery of new treatments and therapies for SCN8A. This support is particularly significant as research into rare genetic conditions often faces funding challenges. By co-funding grants with organizations like SCNBA Italia, The Cute Syndrome Foundation is able to make a meaningful contribution to the scientific community's understanding of SCN8A.

Lastly, The Cute Syndrome Foundation offers support to families affected by SCN8A. This can take many forms, from emotional and practical assistance to connecting families with resources and other affected individuals. By providing this support, the foundation aims to help families navigate the challenges associated with SCN8A, and to improve their overall quality of life.

In summary, The Cute Syndrome Foundation is a dedicated organization that is working to raise awareness of SCN8A mutations, fund scientific research, and support families affected by the condition. Through its various initiatives, the foundation is making a significant contribution to the scientific and medical communities' understanding of SCN8A, and to the lives of those affected by the condition.

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Impact




October, 2024

The Cute Syndrome Foundation significantly raises awareness of SCN8A mutations, fostering greater understanding of this genetic condition. By funding scientific research, the foundation plays a crucial role in advancing knowledge and potential treatments for those affected. Its partnership with SCNBA Italia to support the Danish Epilepsy Center’s “Patient Registry and Natural Disease Evolution” initiative demonstrates a commitment to building a comprehensive understanding of SCN8A's impacts. Additionally, the organization provides vital support to families navigating the challenges posed by SCN8A, creating a community of resources and emotional backing for those in need. Overall, the foundation's multifaceted approach not only promotes research but also strengthens the network of support for affected families.




This information is meant to be a general summary of The Cute Syndrome Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$352,644 (2022)
Expenses
$290,563 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $156
  • Gross Receipts: $352,644

Assets and Liabilities:

  • Total Assets: $289,587
  • Total Liabilities: $6,041
  • Net Assets: $283,546

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Organization Details

Principal Officer

Hillary Savoie

Main Address

500 WEST WARREN, OZARK, MO, 65721

NTEE Category

Code: H125 - Medical research

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