Overview
What is Association Of Creatine Deficiencies?
The Association of Creatine Deficiencies is a nonprofit organization situated in Carlsbad, California. Their primary focus is to disseminate accurate and up-to-date information regarding Cerebral Creatine Deficiency Syndromes (CCDS) through various means, such as attending Medical & Scientific Symposiums and publishing educational resources. They also conduct public awareness campaigns in local communities and promote research to enhance diagnoses and treatments for CCDS. Their efforts involve advocating for federal funding for rare diseases, boosting patient registry enrollment, and encouraging non-drug research opportunities, all while offering support to patients and their families. Quarterly, they distribute a newsletter and online resource guides, furthering their mission to educate and empower individuals affected by CCDS.
Official website here: www.creatineinfo.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 84%, Three-Star out of Four Star rating.
The Association of Creatine Deficiencies has achieved a commendable 84% rating, indicating a solid level of accountability and financial health. The organization boasts a fully independent board and a low liabilities to assets ratio, suggesting effective management of resources. Moreover, a significant program expense ratio of 82.38% highlights its commitment to utilizing funds primarily for its mission-driven activities.
However, the organization does have some areas for improvement, particularly regarding governance policies. The absence of a conflict of interest policy, whistleblower policy, and document retention and destruction policy are notable shortcomings that could impact transparency and accountability. Additionally, the lack of publicly available tax forms on its website may pose concerns for some stakeholders seeking to evaluate its financial practices thoroughly.
Overall, while the Association of Creatine Deficiencies demonstrates strengths in financial management and programmatic spending, addressing the governance policy gaps could enhance its credibility and trust among donors and the public.
This AI summary has been generated from information found on Charity Navigator.
Is Association Of Creatine Deficiencies legitimate?
Association Of Creatine Deficiencies is a legitimate nonprofit organization registered as a 501(c)(3) entity. Association Of Creatine Deficiencies submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $91,345
Professional Fundraising Fees: $0
Other Salaries and Wages: $28,902
For more financial information, click here
Official website here: www.creatineinfo.org
What is the mission statement of Association Of Creatine Deficiencies?
The Association of Creatine Deficiencies is committed to promoting and funding medical research aimed at discovering treatments and cures for Cerebral Creatine Deficiency Syndromes (CCDS). They also prioritize patient, family, and public education, and advocate for early intervention through newborn screening for these syndromes. To accomplish this, they engage in various activities such as attending medical and scientific symposiums, publishing educational videos, and regularly updating their website. They also conduct public awareness campaigns in local communities and advocate for federal funding for rare diseases, as well as increase patient registry enrollment and non-drug research opportunities. Additionally, they offer support to patients and their families, providing resources like a quarterly newsletter and online resource guides.
Official website here: www.creatineinfo.org
Who is the CEO of Association Of Creatine Deficiencies?
Daniel Coller is the Executive Director of Association Of Creatine Deficiencies.
Official website here: www.creatineinfo.org
What is the revenue of Association Of Creatine Deficiencies?
Association Of Creatine Deficiencies's revenue in 2022 was $699,129.
Official website here: www.creatineinfo.org
Who are the executives of Association Of Creatine Deficiencies and what are their salaries?
The average compensation at Association Of Creatine Deficiencies during 2022 was $60,124. There are 2 employees and 7 volunteers at Association Of Creatine Deficiencies.
Here are 8 key members and their salaries:
- Compensation: $91,346
- Related: $0
- Other: $0
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- Other: $0
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- Other: $0
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- Other: $0
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- Other: $0
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- Other: $0
- Compensation: $0
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- Other: $0
Official website here: www.creatineinfo.org
Where can I find the form 990 for Association Of Creatine Deficiencies?
Association Of Creatine Deficiencies's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.creatineinfo.org
Learn more at the official website: www.creatineinfo.org
Mission Statement of Association Of Creatine Deficiencies
The Association of Creatine Deficiencies is dedicated to promoting and financing medical research aimed at discovering treatments and cures for Cerebral Creatine Deficiency Syndromes (CCDS). Beyond this, the organization focuses on providing education to patients, their families, and the public. Additionally, it advocates for early intervention through newborn screening for CCDS. The Association of Creatine Deficiencies achieves these objectives by attending medical and scientific symposiums, publishing educational videos, and regularly updating its website with relevant information. It also engages in public awareness campaigns within local communities. In terms of research, the Association of Creatine Deficiencies advocates for federal funding for rare diseases, increases patient registry enrollment, and explores non-drug research opportunities. Furthermore, it offers support to individuals and families affected by CCDS, providing a quarterly newsletter, online resource guides, and various other resources.
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Impact
July, 2024
The Association of Creatine Deficiencies is dedicated to promoting medical research for treatments and cures, providing education and advocating for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS). They engage in activities such as attending medical symposiums, publishing educational materials, and conducting public awareness campaigns. By supporting research, increasing awareness, and assisting patients and families affected by CCDS, the organization is making a significant impact in the field of rare diseases.
This information is meant to be a general summary of Association Of Creatine Deficiencies. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Program Service Revenue: $31,078
- Gross Receipts: $699,129
Assets and Liabilities:
- Total Assets: $685,374
- Total Liabilities: $25,423
- Net Assets: $659,951
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Conference
Revenue
$31,078
Organization Details
Founding Year
2012
Principal Officer
Daniel Coller
Main Address
6965 El Camino Real 105-598, Carlsbad, CA, 92009
Website
www.creatineinfo.orgNTEE Category
Code: G99 - Disease
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