Overview
What is Dpd Deficiency Foundation?
The Dpd Deficiency Foundation is a nonprofit organization dedicated to increasing awareness of DPD Deficiency, offering support to affected families, encouraging scientific collaboration, and funding research aimed at discovering a cure for this genetic disorder. They have taken proactive steps in this mission, starting conversations with Perkin Elmer for the development of newborn screening for DPD Deficiency and successfully negotiated an extension of the Mayo DPDDF Research grant until 2022. The foundation's work is multifaceted, aiming to provide information, foster collaboration, and financially support research efforts in the pursuit of a cure for DPD Deficiency.
Official website here: www.dpddeficiency.com
Is Dpd Deficiency Foundation legitimate?
Dpd Deficiency Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Dpd Deficiency Foundation submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Official website here: www.dpddeficiency.com
What is the mission statement of Dpd Deficiency Foundation?
The Dpd Deficiency Foundation's mission is centered around raising awareness about DPD Deficiency, offering support to affected families, encouraging scientific collaboration, and funding research with the ultimate goal of discovering a cure for this genetic condition. The foundation has begun preliminary discussions with Perkin Elmer regarding the development of neonatal screening for DPD Deficiency. Furthermore, they have successfully negotiated an extension of their Mayo DPDDF Research grant, extending its validity until 2022.
Official website here: www.dpddeficiency.com
What is the revenue of Dpd Deficiency Foundation?
Dpd Deficiency Foundation's revenue in 2021 was $74.
Official website here: www.dpddeficiency.com
Who are the executives of Dpd Deficiency Foundation and what are their salaries?
Here are 3 key members and their salaries:
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
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- Other: $0
Official website here: www.dpddeficiency.com
Where can I find the form 990EZ for Dpd Deficiency Foundation?
Dpd Deficiency Foundation's most recent form 990EZ was submitted in 2021 and can be accessed here.
Official website here: www.dpddeficiency.com
Learn more at the official website: www.dpddeficiency.com
Mission Statement of Dpd Deficiency Foundation
The DPD Deficiency Foundation, in its mission, aims to cultivate understanding of DPD Deficiency, a genetic disorder. The organization's primary objective is to provide essential information to families affected by this condition. In addition to this, the foundation encourages scientific collaboration and actively funds research with the ultimate goal of discovering a cure for DPD Deficiency. Notably, the foundation has initiated preliminary discussions with Perkin Elmer regarding the development of neonatal screening for the disease. Moreover, in December 2021, they successfully negotiated an extension of their Mayo DPDDF Research grant, extending its validity through 2022. This commitment to research and collaboration underscores the foundation's unwavering dedication to improving the lives of individuals impacted by DPD Deficiency.
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Impact
October, 2024
The DPD Deficiency Foundation plays a crucial role in addressing Dihydropyrimidine Dehydrogenase (DPD) Deficiency, a genetic disorder that can severely impact individuals and families affected by it. By fostering awareness and providing vital information, the foundation supports families navigating the challenges associated with this condition. It also promotes scientific collaboration among researchers, enhancing the chances of significant advancements in the understanding and treatment of DPD Deficiency.
One of the foundation's notable initiatives includes initiating discussions with Perkin Elmer to develop neonatal screening for DPD Deficiency, which could lead to earlier diagnosis and intervention. Additionally, the foundation has successfully negotiated the extension of research grants, such as the one with Mayo, facilitating ongoing studies into the disease. Through these efforts, the DPD Deficiency Foundation is actively contributing to the pursuit of a cure, improving the quality of life for those affected by this genetic disorder.
This information is meant to be a general summary of Dpd Deficiency Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2021.
- Gross Receipts: $74
Assets and Liabilities:
- Total Assets: $167,039
- Total Liabilities: $0
- Net Assets: $167,039
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Organization Details
Principal Officer
William M Black
Website
www.dpddeficiency.comNTEE Category
Code: H99 - Medical research
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