Overview
What is Ellie White Foundation For Rare Genetic Disorders?
The Ellie White Foundation for Rare Genetic Disorders is a nonprofit organization dedicated to funding cutting-edge research aimed at finding a cure for Wolfram Syndrome and other rare genetic disorders. Based in St. Louis, Missouri, the foundation supports the work of Dr. Fumihiko Urano and his research team at Washington University. Their primary mission is to provide financial assistance for state-of-the-art research initiatives, with the ultimate goal of discovering a cure for Wolfram Syndrome, a genetic variant of Type 1 diabetes. The foundation's efforts contribute to the broader global quest for understanding and managing rare genetic disorders.
Official website here: www.elliewhitefoundation.org
Is Ellie White Foundation For Rare Genetic Disorders legitimate?
Ellie White Foundation For Rare Genetic Disorders is a legitimate nonprofit organization registered as a 501(c)(3) entity. Ellie White Foundation For Rare Genetic Disorders submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Official website here: www.elliewhitefoundation.org
What is the mission statement of Ellie White Foundation For Rare Genetic Disorders?
The Ellie White Foundation for Rare Genetic Disorders is dedicated to advancing research towards finding a cure for various rare genetic disorders, with a particular focus on Wolfram Syndrome. This genetic disorder, often associated with Type 1 diabetes, is the primary target of their efforts. The foundation provides financial support to research teams, such as the one led by Dr. Fumihiko Urano at Washington University in St. Louis, Missouri, with the ultimate goal of eradicating Wolfram Syndrome. Their mission is centered around funding cutting-edge research to bring hope and potential solutions to families affected by these rare genetic disorders.
Official website here: www.elliewhitefoundation.org
Who is the CEO of Ellie White Foundation For Rare Genetic Disorders?
Irene E White is the President of Ellie White Foundation For Rare Genetic Disorders.
Official website here: www.elliewhitefoundation.org
What is the revenue of Ellie White Foundation For Rare Genetic Disorders?
Ellie White Foundation For Rare Genetic Disorders's revenue in 2022 was $33,006.
Official website here: www.elliewhitefoundation.org
Who are the executives of Ellie White Foundation For Rare Genetic Disorders and what are their salaries?
Here are 3 key members and their salaries:
- Compensation: $0
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- Other: $0
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- Other: $0
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Official website here: www.elliewhitefoundation.org
Where can I find the form 990EZ for Ellie White Foundation For Rare Genetic Disorders?
Ellie White Foundation For Rare Genetic Disorders's most recent form 990EZ was submitted in 2022 and can be accessed here.
Official website here: www.elliewhitefoundation.org
Learn more at the official website: www.elliewhitefoundation.org
Mission Statement of Ellie White Foundation For Rare Genetic Disorders
The Ellie White Foundation for Rare Genetic Disorders is dedicated to advancing research to find a cure for Wolfram Syndrome and other rare genetic disorders. This nonprofit organization provides funding to Washington University in St. Louis, Missouri, where a team led by Dr. Fumihiko Urano is working relentlessly towards this goal. The foundation's mission is centered around supporting state-of-the-art research, with the ultimate aim of eradicating Wolfram Syndrome, a genetic form of diabetes (Type 1). This rare genetic disorder often causes diabetes insipidus, diabetes mellitus, optic nerve atrophy, and other severe health issues. By investing in research, the Ellie White Foundation for Rare Genetic Disorders is playing a crucial role in the pursuit of improved treatments and potential cures for individuals affected by these rare genetic disorders.
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Impact
August, 2024
Ellie White Foundation For Rare Genetic Disorders has a significant impact on the field of rare genetic disorders by providing state-of-the-art research funding to develop a cure for Wolfram Syndrome and other similar conditions. The foundation's collaboration with Washington University in St. Louis, Missouri, under the leadership of Dr. Fumihiko Urano, is instrumental in advancing research towards finding a cure for Wolfram Syndrome, a genetic form of diabetes (Type 1). This targeted approach towards funding research with a specific goal in mind demonstrates the foundation's commitment to making a tangible difference in the lives of those affected by rare genetic disorders.
This information is meant to be a general summary of Ellie White Foundation For Rare Genetic Disorders. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $33,006
Assets and Liabilities:
- Total Assets: $39,052
- Total Liabilities: $0
- Net Assets: $39,052
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Organization Details
Phone
(303) 642-1608Principal Officer
Irene E White
Main Address
6359 S NETHERLAND CIRCLE, CENTENNIAL, CO, 800161323
Website
www.elliewhitefoundation.orgNTEE Category
Code: T12 - Philanthropy
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