Overview
What is Dysautonomia International Inc?
Dysautonomia International Inc, based in East Moriches, New York, is a nonprofit organization that primarily focuses on boosting awareness of Dysautonomia within the medical community and the broader public. They are committed to this mission by dedicating resources towards funding dysautonomia research projects at renowned University Research Centers. With a small team of seven employees, the organization works tirelessly to shed light on this often misunderstood condition and contribute to the advancement of its medical understanding.
Official website here: www.dysautonomiainternational.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 99%
Dysautonomia International Inc has achieved a remarkable Four-Star out of Four Star rating from Charity Navigator, reflecting its strong performance in accountability and finance. With a perfect score of 100 in this category, the organization demonstrates excellent governance practices, including an independent board and robust financial oversight. The overall score highlights the charity's commitment to transparency and responsible management of its resources, which is crucial for donor confidence.
User feedback consistently praises Dysautonomia International for its invaluable support to individuals affected by dysautonomia, particularly Postural Orthostatic Tachycardia Syndrome (POTS). A member's testimonial illustrates how the organization has played a vital role in connecting patients with specialists and providing much-needed resources and community. The charity's focus on patient advocacy is emphasized through its initiatives, such as conferences and education programs, which help raise awareness and foster a sense of belonging among those affected by these conditions.
While the organization excels in many areas, it faces challenges in equity data collection and the implementation of comprehensive equity policies, scoring 85 out of 100 in equity strategies. However, the strong overall scores in both accountability and community feedback indicate a solid foundation and dedication to improving the lives of its constituents. Dysautonomia International continues to be a crucial ally for those navigating the complexities of dysautonomia.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Dysautonomia International Inc legitimate?
Dysautonomia International Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Dysautonomia International Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $131,250
Professional Fundraising Fees: $0
Other Salaries and Wages: $227,599
For more financial information, click here
Official website here: www.dysautonomiainternational.org
What is the mission statement of Dysautonomia International Inc?
Dysautonomia International Inc's mission is centered around increasing understanding and recognition of Dysautonomia within the medical field and among the general public. The organization aims to accomplish this by advocating for and funding research into Dysautonomia at prominent university research centers. Their primary objective is to raise awareness about this condition, ultimately improving the lives of those affected.
Official website here: www.dysautonomiainternational.org
Who is the CEO of Dysautonomia International Inc?
Shannon Koplitz is the President & Ceo of Dysautonomia International Inc. The CEO's salary of Dysautonomia International Inc is $131,250 and their total compensation is $131,250.
Official website here: www.dysautonomiainternational.org
What is the revenue of Dysautonomia International Inc?
Dysautonomia International Inc's revenue in 2022 was $1,485,666.
Official website here: www.dysautonomiainternational.org
Who are the executives of Dysautonomia International Inc and what are their salaries?
The average compensation at Dysautonomia International Inc during 2022 was $51,264. There are 7 employees and 200 volunteers at Dysautonomia International Inc.
Here are 5 key members and their salaries (Dysautonomia International Inc's CEO's salary is $131,250 and their total compensation is $131,250):
- Compensation: $131,250
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.dysautonomiainternational.org
Where can I find the form 990 for Dysautonomia International Inc?
Dysautonomia International Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.dysautonomiainternational.org
Learn more at the official website: www.dysautonomiainternational.org
Mission Statement of Dysautonomia International Inc
Dysautonomia International Inc, a nonprofit organization, is committed to raising awareness about Dysautonomia within both the medical community and the general public. Their primary mission is twofold: to foster understanding of this condition and to generate funding for research related to Dysautonomia. By doing so, they aim to contribute to the advancement of knowledge and potential treatments for those affected by this complex neurological disorder.
To achieve their objectives, Dysautonomia International Inc provides financial support for research projects at renowned University Research Centers. This strategic investment in scientific research is a testament to their dedication to improving the lives of individuals living with Dysautonomia. By fostering collaboration between researchers and medical professionals, they hope to accelerate progress in understanding and treating this often misunderstood condition.
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Impact
July, 2024
Dysautonomia International Inc has made a significant impact in increasing awareness of Dysautonomia within the medical community and the general public. They have also played a crucial role in raising funds for dysautonomia research, providing research funding for projects at major University Research Centers. Through their efforts, they have helped support critical research initiatives aimed at better understanding and treating Dysautonomia. This organization's dedication to advancing knowledge and resources in the field of Dysautonomia is pivotal in improving the lives of those affected by this condition.
This information is meant to be a general summary of Dysautonomia International Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $456
- Program Service Revenue: $13,000
- Gross Receipts: $1,499,396
Assets and Liabilities:
- Total Assets: $2,828,501
- Total Liabilities: $164,134
- Net Assets: $2,664,367
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CONFERENCES
Revenue
$13,000
Organization Details
Founding Year
2012
Phone
(631) 202-1720Principal Officer
Shannon Koplitz
Main Address
PO BOX 596, EAST MORICHES, NY, 11940
NTEE Category
Code: G19 - Disease
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