Overview
What is Cadasil Association?
The Cadasil Association is a nonprofit organization situated in Plainsboro, New Jersey. Their primary focus is on CADASIL, an hereditary small vessel disease caused by genetic mutations affecting the Notch3 gene. These mutations result in progressive damage to small brain arteries and decreased blood flow to the brain. The association aims to spread awareness about CADASIL, ensuring it becomes recognized and understood within the medical community, ultimately facilitating accurate diagnoses for patients. They are committed to improving education related to CADASIL and supporting research for this rare genetic disease. A distinctive aspect of their work involves sharing CADASIL vessel-on-chip with the international research community, promoting collaboration and advancements in CADASIL research.
Official website here: www.curecadasil.org
Is Cadasil Association legitimate?
Cadasil Association is a legitimate nonprofit organization registered as a 501(c)(3) entity. Cadasil Association submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.curecadasil.org
What is the mission statement of Cadasil Association?
The mission of Cadasil Association, known as CureCADASIL, is primarily focused on raising awareness about CADASIL, a rare genetic disease. The organization aims to ensure that the medical community universally recognizes and understands CADASIL, thereby enabling accurate diagnoses for patients. CureCADASIL is dedicated to supporting and assisting everyone affected by CADASIL. They strive to improve the availability of education on the disease and actively promote and sponsor research to advance understanding and potential treatments for CADASIL. Additionally, the association seeks to unite the medical community and patients in their pursuit of a cure for this rare disease, fostering communication, advocacy, and collaboration in research and education.
Official website here: www.curecadasil.org
Who is the CEO of Cadasil Association?
Bertram Kasiske is the President of Cadasil Association.
Official website here: www.curecadasil.org
What is the revenue of Cadasil Association?
Cadasil Association's revenue in 2022 was $256,716.
Official website here: www.curecadasil.org
Who are the executives of Cadasil Association and what are their salaries?
There 6 volunteers at Cadasil Association.
Here are 5 key members and their salaries:
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Official website here: www.curecadasil.org
Where can I find the form 990 for Cadasil Association?
Cadasil Association's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.curecadasil.org
Learn more at the official website: www.curecadasil.org
Mission Statement of Cadasil Association
CureCADASIL, an association dedicated to CADASIL, endeavors to instill universal recognition and understanding of the condition within the medical community. Their mission lies in facilitating accurate diagnoses for patients afflicted by CADASIL. Beyond this, they are committed to enhancing the availability of educational resources concerning the disease and actively promoting and supporting research aimed at finding treatments and a potential cure for CADASIL, a rare genetic disorder.
CureCADASIL strives to engage and unite patients and the medical community in the pursuit of a common objective: combating this genetic disease. To accomplish this, they foster communication, advocacy, research, and education, aiming to create a collaborative environment that will drive advancements in understanding and addressing CADASIL. Furthermore, they aim to share their innovative CADASIL vessel-on-chip technology with the international CADASIL research community, hoping to spark further research and development in the field.
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Impact
October, 2024
The Cadasil Association plays a critical role in raising awareness and understanding of CADASIL, a hereditary small vessel disease stemming from mutations in the Notch3 gene. By providing targeted education and resources, the organization works tirelessly to ensure that healthcare professionals can accurately diagnose this condition, which often goes unrecognized.
In focusing on enhancing education about CADASIL, the association empowers patients and their families, alleviating the isolation often felt by those affected. It also actively fosters communication between the medical community and patients, creating a supportive network that highlights shared experiences and challenges.
Additionally, the organization promotes and supports research initiatives aimed at better understanding CADASIL, advocating for collaborative efforts that could lead to more effective treatments and potential cures. By sharing innovative tools and resources, such as CADASIL vessel-on-chip technology, with researchers worldwide, it drives progress in the scientific community.
Overall, the Cadasil Association unites various stakeholders—patients, families, researchers, and healthcare providers—toward a common goal: advancing knowledge, improving care, and ultimately finding a cure for this rare genetic disease.
This information is meant to be a general summary of Cadasil Association. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $7
- Gross Receipts: $256,827
Assets and Liabilities:
- Total Assets: $340,236
- Total Liabilities: $0
- Net Assets: $340,236
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Organization Details
Phone
(401) 684-2760Principal Officer
Bertram Kasiske
Main Address
10 SCHALKS CROSSING ROAD 501A, PLAINSBORO, NJ, 08536
Website
www.curecadasil.orgNTEE Category
Code: G80 - Disease
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