Overview
What is Cure Dystonia Now Inc?
Cure Dystonia Now Inc, established in Melville, New York, is a dedicated nonprofit organization focused on advancing research and improving treatments for individuals affected by Dystonia. The organization collaborates with leading experts in the field through its Medical and Scientific Advisory Council, funding research projects to further the understanding and potential cures for this disorder. In 2022, the foundation granted funds for three research projects, including genetic studies and microcircuit defects. The primary mission of Cure Dystonia Now Inc is to raise funds to support research, improve treatment options, and ultimately find a cure for Dystonia. The organization also supports the needs and well-being of those affected by the disorder and may partner with other charities to achieve its goals.
Official website here: www.curedystonianow.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 83% (Three-Star out of Four Star rating)
Cure Dystonia Now Inc has earned a respectable Three-Star rating from Charity Navigator, reflecting its strong accountability and financial performance. The organization demonstrates excellent governance with 100% of its board members being independent, and it has achieved a high program expense ratio of 96.25%, indicating that most of its funds are allocated directly to its mission-related activities.
However, there are notable areas for improvement. The charity lacks certain essential policies, including a whistleblower policy and a document retention and destruction policy, which received zero points. This absence may raise concerns regarding transparency and operational integrity, although the organization has no significant liabilities and effectively manages its assets.
In summary, while Cure Dystonia Now Inc showcases solid financial health and governance, the missing policies highlight potential weaknesses in its operational protocols. Continued efforts to strengthen these areas could enhance its overall accountability and foster greater trust among supporters and beneficiaries.
This AI summary has been generated from information found on Charity Navigator.
Is Cure Dystonia Now Inc legitimate?
Cure Dystonia Now Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Cure Dystonia Now Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.curedystonianow.org
What is the mission statement of Cure Dystonia Now Inc?
Cure Dystonia Now Inc is dedicated to advancing research towards more effective treatments and, ultimately, a cure for Dystonia. The organization is committed to supporting the needs and well-being of individuals and families affected by Dystonia. In pursuit of its mission, Cure Dystonia Now Inc collaborates with other Dystonia charities, such as Tyler's Hope and the Dystonia Medical Research Foundation. The foundation funds individual drug studies and research to improve Dystonia treatment options. Currently, they are working with leading scientists in the field of Dystonia, leveraging their Medical and Scientific Advisory Council (MSAC) for peer-review of research applications and funding decisions. In 2022, the foundation funded three grants aimed at genetic modifiers of penetrance in Dystonia, striatal microcircuit defects, and furthering Dystonia treatment options through the Dystonia Medical Research Foundation.
Official website here: www.curedystonianow.org
Who is the CEO of Cure Dystonia Now Inc?
Marc Miller is the Co-President, Treasurer of Cure Dystonia Now Inc.
Official website here: www.curedystonianow.org
What is the revenue of Cure Dystonia Now Inc?
Cure Dystonia Now Inc's revenue in 2022 was $3,774.
Official website here: www.curedystonianow.org
Who are the executives of Cure Dystonia Now Inc and what are their salaries?
Here are 3 key members and their salaries:
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
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- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.curedystonianow.org
Where can I find the form 990 for Cure Dystonia Now Inc?
Cure Dystonia Now Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.curedystonianow.org
Learn more at the official website: www.curedystonianow.org
Mission Statement of Cure Dystonia Now Inc
Cure Dystonia Now Inc, a nonprofit organization, is dedicated to advancing research and pursuing more effective treatments, and ultimately, a cure for Dystonia. The foundation's mission is to provide financial support to renowned scientists in the field, contributing to peer-reviewed research applications, and setting the direction for Dystonia research. In collaboration with other Dystonia charities such as Tyler's Hope and the Dystonia Medical Research Foundation, Cure Dystonia Now Inc aims to pool resources and efforts in the quest for improved treatment options and a cure for this disorder. In 2022, the foundation funded three grants focusing on genetic modifiers of penetrance in Dystonia, striatal microcircuit defects in Dystonia, and research conducted by the Dystonia Medical Research Foundation, furthering the pursuit of innovative Dystonia treatment solutions.
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Impact
October, 2024
Cure Dystonia Now Inc has significantly impacted the landscape of dystonia research and support for affected individuals and families. By raising funds specifically for advancing research, the organization plays a crucial role in facilitating innovative treatments and potential cures for this complex neurological disorder. Collaborating with eminent scientists and specialists through its Medical and Scientific Advisory Council, Cure Dystonia Now ensures a rigorous peer-review process for research applications, guiding the direction of critical studies aimed at understanding and treating dystonia.
The organization's partnership with established entities like the Dystonia Medical Research Foundation amplifies its efforts, allowing for the provision of vital grants that advance groundbreaking research initiatives. In 2022 alone, the foundation funded multiple significant studies, contributing to a robust understanding of the genetic and neurological mechanisms underlying dystonia. This commitment not only propels the scientific community's knowledge forward but also directly benefits those living with dystonia by striving for improved treatment options.
Moreover, the foundation addresses the holistic needs of individuals and families affected by dystonia, ensuring that their well-being is a priority. Through its collaborative approach, Cure Dystonia Now Inc fosters a sense of community, support, and hope, reinforcing the fight against a condition that significantly impacts the lives of many. Overall, the organization's dedication to advancing research and supporting those affected makes it a vital force in the quest for a cure.
This information is meant to be a general summary of Cure Dystonia Now Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $3,774
Assets and Liabilities:
- Total Assets: $0
- Total Liabilities: $0
- Net Assets: $0
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Organization Details
Founding Year
2012
Phone
(516) 584-4156Principal Officer
Marc Miller
Main Address
201 OLD COUNTRY RD 205, MELVILLE, NY, 11747
Website
www.curedystonianow.orgNTEE Category
Code: T22 - Philanthropy
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