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Huntington's Disease Youth Organization Of America Inc

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 454955538 ✦ Livonia, MI ✦ Designated as a 501(c)(3)

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Overview

What is Huntington's Disease Youth Organization Of America Inc?

Huntington's Disease Youth Organization of America Inc. is a nonprofit organization committed to supporting young individuals worldwide impacted by Huntington's disease. Located in Livonia, Michigan, the organization conducts events like the Young Adult Congress, fostering an international platform for connection and education. Their mission is to provide resources, guidance, and promote awareness about Huntington's disease within professional settings, catering to both affected individuals and their families. With a focus on support and education, the Huntington's Disease Youth Organization of America aims to create a community that empowers and informs those affected by this condition.


Official website here: www.hdyo.org

Is Huntington's Disease Youth Organization Of America Inc legitimate?

Huntington's Disease Youth Organization Of America Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Huntington's Disease Youth Organization Of America Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $100,000
Professional Fundraising Fees: $0
Other Salaries and Wages: $0

For more financial information, click here


Official website here: www.hdyo.org

What is the mission statement of Huntington's Disease Youth Organization Of America Inc?

The Huntington's Disease Youth Organization of America is a non-profit entity established to provide targeted support for young individuals worldwide affected by Huntington's disease. The organization's mission encompasses offering assistance, education, and guidance to these young individuals and their families. It also promotes awareness and provides educational resources within professional settings for those working with Huntington's disease families. The organization's primary goal is to empower and support young people dealing with this disease, fostering understanding and offering resources to navigate their unique challenges.


Official website here: www.hdyo.org

Who is the CEO of Huntington's Disease Youth Organization Of America Inc?

Jenna Heilman is the Board Member of Huntington's Disease Youth Organization Of America Inc.


Official website here: www.hdyo.org

What is the revenue of Huntington's Disease Youth Organization Of America Inc?

Huntington's Disease Youth Organization Of America Inc's revenue in 2022 was $220,565.


Official website here: www.hdyo.org

Who are the executives of Huntington's Disease Youth Organization Of America Inc and what are their salaries?

There 19 volunteers at Huntington's Disease Youth Organization Of America Inc.


Here are 13 key members and their salaries:


Dr Bonnie Hennig-Trestment (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jenna Heilman (Chairperson)
  • Compensation: $100,000
  • Related: $0
  • Other: $0
Seth Rotberg (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Hayley Hubberstey (Chairperson)
  • Compensation: $0
  • Related: $0
  • Other: $0
Trey Randall (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jarrod Strydom (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dr Kelly Atkins (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dr Lauren Byrne (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lauren Youngborg (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ashley Clarke (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Matthew Shore (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Clare Braithwaite (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jenny Harte (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.hdyo.org

Where can I find the form 990 for Huntington's Disease Youth Organization Of America Inc?

Huntington's Disease Youth Organization Of America Inc's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.hdyo.org

Learn more at the official website: www.hdyo.org

Mission Statement of Huntington's Disease Youth Organization Of America Inc

The Huntington's Disease Youth Organization of America, a non-profit entity, is dedicated to providing support for young individuals worldwide affected by Huntington's Disease. The organization's primary mission is to offer assistance, education, and guidance to these young individuals and their families. Furthermore, the Huntington's Disease Youth Organization of America aims to promote awareness and provide education within professional settings for those working with Huntington's Disease families. By doing so, the organization strives to create a supportive network and foster understanding about this disease, ultimately helping those affected to navigate their challenges more effectively.

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Impact




October, 2024

Huntington's Disease Youth Organization Of America Inc significantly impacts young people affected by Huntington's disease globally. By offering essential support, education, and guidance, the organization empowers these individuals and their families to navigate the complexities of living with this hereditary condition. One of its hallmark initiatives, the Young Adult Congress, fosters a sense of community and provides vital resources through international events designed for education and support.

The organization also plays a crucial role in raising awareness, not just among families, but within professional circles that work with Huntington's disease patients. This multifaceted approach not only helps youth cope with the emotional and practical challenges they face but also promotes a deeper understanding of the disease in wider society. Through these efforts, it cultivates a supportive environment that enhances the quality of life and provides hope for individuals impacted by Huntington's disease.




This information is meant to be a general summary of Huntington's Disease Youth Organization Of America Inc. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$220,565 (2022)
Expenses
$229,787 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Gross Receipts: $220,742

Assets and Liabilities:

  • Total Assets: $251,620
  • Total Liabilities: $0
  • Net Assets: $251,620

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Organization Details

Founding Year

2013

Principal Officer

Jenna Heilman

Main Address

PO BOX 530276, LIVONIA, MI, 48152

NTEE Category

Code: G192 - Disease

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