Overview
What is The Familial Hypercholesterolemia Foundation?
The Familial Hypercholesterolemia Foundation, commonly known as Family Heart Foundation, is a nonprofit organization based in Pasadena, California, dedicated to combating heart disease. With a mission to save generations from this condition, they focus on familial hypercholesterolemia (FH), a genetic disorder that increases the risk of heart disease. They achieve this through education, advocacy, and research. Their activities include collaborating on various grants, such as those with Columbia University and Boston Children's Hospital, to assess the societal value of FH screening approaches. They also employ machine learning methods and genetic screening for FH diagnosis, aiming to optimize family communication and cascade screening. Family Heart Foundation utilizes behavioral economics to facilitate outreach and engagement for patients identified as having FH. Additionally, they partner with institutions like Penn Medicine to improve cascade family screening, addressing racial, ethnic, and gender disparities. Their work is patient-centered, playing a crucial role in driving change and empowering families to manage their health.
Official website here: www.thefhfoundation.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 97% - Four-Star out of Four Stars
The Familial Hypercholesterolemia Foundation has received an impressive Four-Star rating from Charity Navigator, reflecting a high level of accountability and financial health. The organization boasts a strong independent board composition, with 87% of its members being independent, which enhances its governance and operational transparency. The audit and oversight committee scored perfectly, indicating robust financial practices, and there are no reported diversions of assets.
The Foundation demonstrates a strong commitment to its mission, with a program expense ratio of 86.90%, ensuring that a significant portion of its resources is directed towards its core programs. Additionally, it shows exceptional fundraising efficiency, spending only $0.04 to raise a dollar, which highlights its effectiveness in mobilizing resources for its initiatives. The organization also has sound financial practices in place, as evidenced by its favorable liabilities to assets ratio and sufficient working capital.
While the data presents a favorable view of the Foundation's operations and financial management, it is essential for potential donors and supporters to consider ongoing performance and mission impact as well. Overall, The Familial Hypercholesterolemia Foundation appears to be a well-managed nonprofit dedicated to its cause.
This AI summary has been generated from information found on Charity Navigator.
What do the Facebook reviews say about The Familial Hypercholesterolemia Foundation?
94% of 37 reviewers on Facebook recommend The Familial Hypercholesterolemia Foundation. Here is a summary of their reviews:
Many users appreciate the up-to-date information and support provided by the organization, indicating that it effectively addresses the needs of those affected by familial hypercholesterolemia. Reviewers highlight the foundation's commitment to raising awareness and providing valuable resources to help manage this genetic condition.
Overall, the sentiment reflects a strong level of satisfaction, with numerous individuals expressing gratitude for the foundation's efforts in promoting education and support within the community. This suggests that the nonprofit is making a positive impact in the lives of those it serves.
This AI summary has been generated from reviews found on Facebook.
Is The Familial Hypercholesterolemia Foundation legitimate?
The Familial Hypercholesterolemia Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Familial Hypercholesterolemia Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $408,300
Professional Fundraising Fees: $0
Other Salaries and Wages: $988,580
For more financial information, click here
Official website here: www.thefhfoundation.org
What is the mission statement of The Familial Hypercholesterolemia Foundation?
The Familial Hypercholesterolemia Foundation, commonly known as the Family Heart Foundation, is a patient-focused organization dedicated to the education, advocacy, and research of familial hypercholesterolemia (FH). Their mission, stated in their third-party incorporated documents, is to combat generations of heart disease by ensuring prompt identification and improved care for individuals affected by FH and Lipoprotein(a). The foundation plays a significant role in driving change and empowering families to manage their health through its research, advocacy, and educational initiatives.
Official website here: www.thefhfoundation.org
Who is the CEO of The Familial Hypercholesterolemia Foundation?
Katherine Wilemon is the Chair of The Familial Hypercholesterolemia Foundation. The CEO's salary of The Familial Hypercholesterolemia Foundation is $408,300 and their total compensation is $408,300.
Official website here: www.thefhfoundation.org
What is the revenue of The Familial Hypercholesterolemia Foundation?
The Familial Hypercholesterolemia Foundation's revenue in 2022 was $2,813,780.
Official website here: www.thefhfoundation.org
Who are the executives of The Familial Hypercholesterolemia Foundation and what are their salaries?
The average compensation at The Familial Hypercholesterolemia Foundation during 2022 was $116,407. There are 12 employees and 124 volunteers at The Familial Hypercholesterolemia Foundation.
Here are 11 key members and their salaries (The Familial Hypercholesterolemia Foundation's CEO's salary is $408,300 and their total compensation is $408,300):
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $408,300
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $180,000
- Related: $0
- Other: $0
- Compensation: $101,815
- Related: $0
- Other: $6,355
- Compensation: $162,637
- Related: $0
- Other: $1,048
Official website here: www.thefhfoundation.org
Where can I find the form 990 for The Familial Hypercholesterolemia Foundation?
The Familial Hypercholesterolemia Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.thefhfoundation.org
Learn more at the official website: www.thefhfoundation.org
Mission Statement of The Familial Hypercholesterolemia Foundation
The Family Heart Foundation, as its name suggests, is a patient-focused nonprofit organization with a mission to combat heart disease. Specifically, they aim to accomplish this by targeting familial hypercholesterolemia (FH), a genetic condition that predisposes individuals to high cholesterol levels and an increased risk of heart disease. The Foundation's mission is threefold: education, advocacy, and research. They strive to raise awareness and educate people about FH, advocate for policies and resources that support those affected by the condition, and fund research to develop better treatments and improve care. By doing so, the Family Heart Foundation aims to break the cycle of heart disease in families affected by FH, ultimately saving generations from the burden of this condition.
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Impact
July, 2024
The Familial Hypercholesterolemia Foundation's impact is significant in the fight against heart disease. Through research partnerships, including federally-funded grants in 2022, the foundation is working to save generations of families from heart disease by focusing on timely identification and improved care of familial hypercholesterolemia (FH) and Lipoprotein(a). Their collaborative efforts with research institutions and healthcare providers aim to optimize screening approaches, develop novel strategies for family communication and cascade screening, and address disparities in care. The foundation's work in implementation science and behavioral economics is helping to design comprehensive FH cascade screening programs that can reach more families and ultimately reduce the burden of heart disease.
This information is meant to be a general summary of The Familial Hypercholesterolemia Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $31,749
- Program Service Revenue: $952,732
- Gross Receipts: $2,813,780
Assets and Liabilities:
- Total Assets: $4,488,377
- Total Liabilities: $554,614
- Net Assets: $3,933,763
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Contract fees
Revenue
$952,732
Organization Details
Founding Year
2012
Phone
(626) 583-4674Principal Officer
Katherine Wilemon
Main Address
680 E Colorado Blvd 180, Pasadena, CA, 91101
Website
www.thefhfoundation.orgNTEE Category
Code: G12 - Disease
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