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Rdh12 Fund For Sight

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 454028932 ✦ Boiling springs, SC ✦ Designated as a 501(c)(3)

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Overview

What is Rdh12 Fund For Sight?

Rdh12 Fund For Sight is a nonprofit organization, based in Boiling Springs, South Carolina, that focuses primarily on Leber's Congenital Amaurosis (LCA), a rare genetic disorder. The organization's mission is to collect and disseminate information about LCA caused by a mutation in the RDH12 gene, while also raising funds to support researchers working towards finding a cure or effective treatment for this condition. Their activities involve distributing funds to dedicated researchers, contributing to the advancement of knowledge, and ultimately, improving the lives of those affected by this genetic disorder.


Official website here: www.rdh12.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 83% (Three-Star out of Four Star rating)

The Rdh12 Fund For Sight has received a rating of 83% from Charity Navigator, indicating a solid performance in terms of accountability and finance. This rating is derived entirely from the charity's fiscal management practices, demonstrating a strong commitment to transparency and efficient use of resources.

The organization excels in several key areas, including having a fully independent board of directors, with all 10 members meeting the criteria for independence. Additionally, the charity shows excellent financial health, with a program expense ratio of 93.40%, meaning that a significant majority of its funds are directed towards its programs rather than administrative costs.

However, the charity does have some areas for improvement, specifically in its governance policies. Notably, the Rdh12 Fund For Sight lacks a whistleblower policy and a document retention and destruction policy, which could enhance its operational integrity. Despite these limitations, the overall financial management appears robust, reflecting positively on its commitment to serving its mission effectively.


This AI summary has been generated from information found on Charity Navigator.

Is Rdh12 Fund For Sight legitimate?

Rdh12 Fund For Sight is a legitimate nonprofit organization registered as a 501(c)(3) entity. Rdh12 Fund For Sight submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0

For more financial information, click here


Official website here: www.rdh12.org

What is the mission statement of Rdh12 Fund For Sight?

The Rdh12 Fund for Sight is committed to raising funds for researchers working towards a cure or effective treatment for Leber's Congenital Amaurosis, specifically those cases linked to a mutation on the RDH12 gene. This organization collects and disseminates information related to LCA caused by the RDH12 gene mutation. Its primary mission is to provide financial grants for research focused on Leber's Congenital Amaurosis, particularly the variant caused by mutations on the RDH12 gene. By supporting this research, the Rdh12 Fund for Sight aims to make strides in understanding and addressing this rare genetic disorder.


Official website here: www.rdh12.org

Who is the CEO of Rdh12 Fund For Sight?

Virginia Pryor is the President/Director of Rdh12 Fund For Sight.


Official website here: www.rdh12.org

What is the revenue of Rdh12 Fund For Sight?

Rdh12 Fund For Sight's revenue in 2022 was $80,084.


Official website here: www.rdh12.org

Who are the executives of Rdh12 Fund For Sight and what are their salaries?


Here are 8 key members and their salaries:


Jennifer Pletcher (President/Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Virginia Pryor (Treasurer/Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Spenta Dinshaw (Secretary/Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michelle Olsen (Vice President/Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mathew Pletcher (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lori Kenney (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michael Fiore (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Allison Galloway (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.rdh12.org

Where can I find the form 990 for Rdh12 Fund For Sight?

Rdh12 Fund For Sight's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.rdh12.org

Learn more at the official website: www.rdh12.org

Mission Statement of Rdh12 Fund For Sight

The Rdh12 Fund for Sight is an organization dedicated to raising funds for researchers working on a cure or treatment for a rare genetic disorder known as Leber's Congenital Amaurosis (LCA), specifically in cases where the condition is caused by a mutation on the RDH12 gene. This nonprofit collects and disseminates information about LCA caused by the RDH12 gene mutation. Its mission is to support scientific research in this field, aiming to provide breakthroughs and advancements that could potentially alleviate the challenges associated with this genetic disorder. The Rdh12 Fund for Sight's activities are centered around granting financial support to researchers, fostering collaboration, and promoting awareness about LCA caused by the RDH12 gene mutation.

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Impact




August, 2024

Rdh12 Fund For Sight's impact lies in its crucial support for medical research focused on finding a cure or treatment for Leber's Congenital Amaurosis (LCA) caused by a mutation on the RDH12 gene. By providing grants to researchers dedicated to this cause, the fund contributes directly to advancing scientific understanding and potential therapies for individuals affected by this rare genetic disorder. Additionally, the fund plays a vital role in collecting and disseminating information about LCA resulting from the RDH12 gene mutation, further raising awareness and facilitating collaboration in the field.




This information is meant to be a general summary of Rdh12 Fund For Sight. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$80,084 (2022)
Expenses
$19,311 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $3,362
  • Gross Receipts: $83,921

Assets and Liabilities:

  • Total Assets: $1,641,611
  • Total Liabilities: $2,461
  • Net Assets: $1,639,150

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Organization Details

Founding Year

2011

Principal Officer

Virginia Pryor

Main Address

PO BOX 161481, BOILING SPRINGS, SC, 29316

NTEE Category

Code: H128 - Medical research

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