Overview
What is International Association For Food Protein Enterocolitis Inc?
The International Association For Food Protein Enterocolitis Inc, based in Point Pleasant Beach, New Jersey, is a 501(C)3 nonprofit organization committed to enhancing the diagnosis, treatment, and overall well-being of individuals affected by Food Protein Enterocolitis Syndrome (FPIES). They accomplish this by advocating for patients, providing education, offering support, and fostering research in this field. Their mission is to significantly improve the lives of those affected by FPIES, ensuring they receive the best possible care and resources.
What are the reviews and ratings of this charity?
Charity Navigator Rating: 10%
The International Association For Food Protein Enterocolitis (IAFFPE) has received a low rating from Charity Navigator, indicating significant challenges in accountability and financial practices. The absence of independent board members and missing policies regarding conflict of interest, whistleblowers, and document retention have contributed to its low score. Despite these concerns, the organization has maintained a material diversion of assets, which is a positive aspect.
User reviews from Great Nonprofits reflect a contrasting narrative, highlighting the IAFFPE's invaluable support for families dealing with Food Protein Induced Enterocolitis (FPIES). Many reviewers express deep gratitude for the information and emotional support provided, emphasizing how the organization has become a crucial resource for parents. Participants in the conferences often report feeling empowered and informed, with several noting that the IAFFPE has played a critical role in their children's diagnosis and management.
While the grassroots community support is evident, some users voiced concerns about the organization's approach, suggesting a perceived dismissiveness towards families whose experiences do not align with typical cases of FPIES. Nevertheless, the overall sentiment leans positively, portraying IAFFPE as a lifeline for many navigating the complexities of this rare disease.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is International Association For Food Protein Enterocolitis Inc legitimate?
International Association For Food Protein Enterocolitis Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. International Association For Food Protein Enterocolitis Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $50,000
Professional Fundraising Fees: $0
Other Salaries and Wages: $12,536
For more financial information, click here
What is the mission statement of International Association For Food Protein Enterocolitis Inc?
The International Association for Food Protein Enterocolitis Inc, as a 501(C)3 patient organization, is committed to enhancing the diagnosis, treatment, and overall quality of life for individuals affected by Food Protein-Induced Enterocolitis Syndrome (FPIES). They achieve this goal through advocacy, education, support, and research initiatives. The association seeks to foster improved understanding and management of FPIES, ultimately aiming to enhance the well-being of those affected by this condition.
Who is the CEO of International Association For Food Protein Enterocolitis Inc?
Fallon Schultz is the President of International Association For Food Protein Enterocolitis Inc.
What is the revenue of International Association For Food Protein Enterocolitis Inc?
International Association For Food Protein Enterocolitis Inc's revenue in 2022 was $69,310.
Who are the executives of International Association For Food Protein Enterocolitis Inc and what are their salaries?
Here are 4 key members and their salaries:
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Where can I find the form 990 for International Association For Food Protein Enterocolitis Inc?
International Association For Food Protein Enterocolitis Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Mission Statement of International Association For Food Protein Enterocolitis Inc
The International Association for Food Protein Enterocolitis Inc, a 501(C)3 patient organization, is dedicated to enhancing the diagnosis, treatment, and overall quality of life for individuals suffering from Food Protein Enterocolitis Syndrome (FPIES). To achieve this mission, the association engages in various activities, including advocacy, education, support, and research. By advocating for improved diagnoses and treatments, the International Association for Food Protein Enterocolitis Inc aims to create a more supportive environment for those affected by FPIES. Additionally, the organization provides educational resources to increase public awareness about the condition and offer guidance to those in need. Through its support programs, the International Association for Food Protein Enterocolitis Inc offers a community where individuals with FPIES can connect, share experiences, and receive emotional and practical assistance. Lastly, the association invests in research to advance our understanding of FPIES and contribute to the development of more effective treatments and interventions.
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Impact
August, 2024
The International Association for Food Protein Enterocolitis Inc has a significant impact on improving the diagnosis, treatment, and quality of life for individuals with FPIES through advocacy, education, support, and research. Their mission is dedicated to enhancing the lives of those affected by FPIES by providing crucial resources and support. By focusing on medical research and raising awareness about FPIES, the association plays a vital role in addressing the needs of individuals living with this condition.
This information is meant to be a general summary of International Association For Food Protein Enterocolitis Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $69,310
Assets and Liabilities:
- Total Assets: $138,684
- Total Liabilities: $0
- Net Assets: $138,684
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Organization Details
Phone
(908) 910-4419Principal Officer
Fallon Schultz
Main Address
330 River Avenue, Point Pleasant Beach, NJ, 08742
NTEE Category
Code: H12 - Medical research
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