Overview
What is Cystic Fibrosis Research Fund Inc?
Cystic Fibrosis Research Fund Inc, commonly known as Emily's Entourage, is a nonprofit organization situated in Ardmore, Pennsylvania. It primarily focuses on raising funds for research related to Cystic Fibrosis, specifically targeting nonsensical mutations of the disease. With a team of five dedicated individuals, the organization actively engages in direct solicitation activities to achieve its mission. Emily's Entourage not only supports research but also accelerates drug development, aiming to make significant strides in combating Cystic Fibrosis.
Official website here: www.emilysentourage.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 88%, Three-Star out of Four Star Rating
Cystic Fibrosis Research Fund Inc, also known as Emily's Entourage, has received an 88% rating from Charity Navigator, reflecting strong accountability and financial management practices. The organization excels in having a fully independent board and demonstrates transparency by making relevant documents accessible, such as tax forms and board meeting minutes. The financial indicators are promising, with 83.57% of expenses allocated toward programs and a low fundraising efficiency ratio of $0.08, indicating effective use of funds to support their mission.
User feedback from Great Nonprofits highlights the organization's impactful work, with numerous reviews praising its dedicated leadership and community engagement. Volunteers and donors express admiration for the passionate team and the significant progress the organization has made in funding research for cystic fibrosis, particularly for those with rare "nonsense mutations." The testimonials reflect a deep commitment to the cause and a strong sense of community among supporters, showcasing how the organization connects people towards a common goal.
While the organization is celebrated for its achievements and community spirit, it's important to note that the focus remains on a specific subset of cystic fibrosis patients, which may limit broader recognition. However, the collective feedback points to a well-run nonprofit that is making meaningful strides in the pursuit of life-saving treatments, which many supporters find inspiring and transformative.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Cystic Fibrosis Research Fund Inc legitimate?
Cystic Fibrosis Research Fund Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Cystic Fibrosis Research Fund Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $545,314
For more financial information, click here
Official website here: www.emilysentourage.org
What is the mission statement of Cystic Fibrosis Research Fund Inc?
The Cystic Fibrosis Research Fund Inc, commonly known as Emily's Entourage, is dedicated to expediting research and drug development specifically for nonsense mutations associated with Cystic Fibrosis. Their mission is to accelerate progress in this field, aiming to bring about significant advancements in the treatment and management of this condition. They achieve this objective by raising funds for relevant research through various direct solicitation activities.
Official website here: www.emilysentourage.org
Who is the CEO of Cystic Fibrosis Research Fund Inc?
Michael Golinkoff is the President of Cystic Fibrosis Research Fund Inc.
Official website here: www.emilysentourage.org
What is the revenue of Cystic Fibrosis Research Fund Inc?
Cystic Fibrosis Research Fund Inc's revenue in 2022 was $1,789,652.
Official website here: www.emilysentourage.org
Who are the executives of Cystic Fibrosis Research Fund Inc and what are their salaries?
The average compensation at Cystic Fibrosis Research Fund Inc during 2022 was $109,063. There are 5 employees and 106 volunteers at Cystic Fibrosis Research Fund Inc.
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Official website here: www.emilysentourage.org
Where can I find the form 990 for Cystic Fibrosis Research Fund Inc?
Cystic Fibrosis Research Fund Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.emilysentourage.org
Learn more at the official website: www.emilysentourage.org
Mission Statement of Cystic Fibrosis Research Fund Inc
The Cystic Fibrosis Research Fund, known as Emily's Entourage, is dedicated to accelerating research and drug development specifically for nonsense mutations of cystic fibrosis. This nonprofit organization's mission is to make significant strides in the fight against this debilitating disease, focusing on advances that can directly impact those with nonsensical mutations. To achieve this goal, the Cystic Fibrosis Research Fund engages in direct solicitation activities to raise funds for their research efforts.
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Impact
July, 2024
Cystic Fibrosis Research Fund Inc, also known as Emily's Entourage, plays a crucial role in accelerating research and drug development for nonsense mutations of cystic fibrosis. By raising money through direct solicitation activities, this organization has been able to support vital research initiatives focused on finding new treatments and ultimately a cure for this debilitating disease. Through their efforts, Cystic Fibrosis Research Fund Inc is making a direct impact on improving the lives of those affected by cystic fibrosis and bringing hope to individuals and families facing this challenging condition.
This information is meant to be a general summary of Cystic Fibrosis Research Fund Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $21,442
- Gross Receipts: $1,920,301
Assets and Liabilities:
- Total Assets: $4,247,786
- Total Liabilities: $93,581
- Net Assets: $4,154,205
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Organization Details
Founding Year
1987
Principal Officer
Michael Golinkoff
Main Address
100 ST GEORGES ROAD STE G1, ARDMORE, PA, 19003
Website
www.emilysentourage.orgNTEE Category
Code: G20 - Disease
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