Cloves Syndrome Community

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 453056921 ✦ West kennebunk, ME ✦ Designated as a 501(c)(3)

Shop smarter and support your favorite cause at the same time! With the Give Freely browser extension, you'll automatically save money with coupons, and partner stores will donate to your chosen charity - at no extra cost to you. Start giving back with a single click. It's safe, free, and spam-free, guaranteed!

Overview

What is Cloves Syndrome Community?

The Cloves Syndrome Community is a nonprofit organization, situated in West Kennebunk, Maine. Their primary objective is to enlighten the public about CLOVES Syndrome, fostering a supportive network for affected individuals. They strive to maintain a diverse range of funding sources, utilizing these resources to offer financial aid to those impacted by the condition. The organization also champions CLOVES Syndrome research, aiming to gain a comprehensive understanding of the disease. In essence, the Cloves Syndrome Community supports, educates, and empowers those affected, working towards improving their lives.


Official website here: www.clovessyndrome.org

What do the Facebook reviews say about Cloves Syndrome Community?

100% of 8 reviewers on Facebook highly endorse the Cloves Syndrome Community. Here’s a summary of their sentiments:

The organization is commended for its dedication and impact, with one reviewer expressing immense gratitude for the miracles they facilitate. They have been instrumental in advancing research, supporting families, and providing essential resources to those affected by Cloves syndrome. The heartfelt appreciation shared underlines the community's vital role in the lives of its members.

Overall, the reviews reflect a strong sense of satisfaction with the nonprofit's commitment to serving families and fostering progress in understanding Cloves syndrome. The community's efforts are clearly making a positive difference, and their devotion does not go unnoticed.


This AI summary has been generated from reviews found on Facebook.

Is Cloves Syndrome Community legitimate?

Cloves Syndrome Community is a legitimate nonprofit organization registered as a 501(c)(3) entity. Cloves Syndrome Community submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $51,227
Professional Fundraising Fees: $0
Other Salaries and Wages: $0

For more financial information, click here


Official website here: www.clovessyndrome.org

What is the mission statement of Cloves Syndrome Community?

The mission of the Cloves Syndrome Community, as stated, is centered around supporting, educating, and empowering individuals affected by CLOVES syndrome. Their primary goal is to improve the lives of these individuals. They accomplish this mission by providing informative resources, fostering a supportive community, and actively seeking out funding sources to aid those impacted by the syndrome. Furthermore, the community actively participates in and promotes research related to CLOVES syndrome, aiming to gain a comprehensive understanding of the disease.


Official website here: www.clovessyndrome.org

Who is the CEO of Cloves Syndrome Community?

Kristen Davis is the Board Member of Cloves Syndrome Community.


Official website here: www.clovessyndrome.org

What is the revenue of Cloves Syndrome Community?

Cloves Syndrome Community's revenue in 2023 was $141,229.


Official website here: www.clovessyndrome.org

Who are the executives of Cloves Syndrome Community and what are their salaries?

There 15 volunteers at Cloves Syndrome Community.


Here are 7 key members and their salaries:


Joe Barclay (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Sara Robertson (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Steve Handel (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ashley Mcnamara (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kyle Capossela (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Irina Pivneva (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kristen Davis (Executive Director)
  • Compensation: $51,227
  • Related: $0
  • Other: $0


Official website here: www.clovessyndrome.org

Where can I find the form 990 for Cloves Syndrome Community?

Cloves Syndrome Community's most recent form 990 was submitted in 2023 and can be accessed here.


Official website here: www.clovessyndrome.org

Learn more at the official website: www.clovessyndrome.org

Mission Statement of Cloves Syndrome Community

The Cloves Syndrome Community, an organization dedicated to its namesake disorder, is committed to supporting, educating, empowering, and enhancing the lives of those afflicted by CLOVES Syndrome. Their mission involves providing information and resources to enlighten others about the condition, fostering a supportive network, and promoting a broad range of funding sources to sustain their mission and objectives. The funds are utilized to offer financial aid to individuals impacted by CLOVES Syndrome. Furthermore, the Cloves Syndrome Community actively participates in and advocates for CLOVES Syndrome research, aiming to gain a comprehensive understanding of the disease. By doing so, they contribute to the betterment of those affected and the wider medical community.

Shop smarter and support your favorite cause with the Give Freely browser extension. Save money with coupons and donate to charity with a single click. Download now!

Impact




October, 2024

The Cloves Syndrome Community significantly impacts the lives of individuals affected by CLOVES syndrome through a multifaceted approach. By providing essential education and resources, they empower patients and families with the knowledge needed to navigate this complex condition. Their efforts in fostering a supportive community create a safe space for sharing experiences, challenges, and triumphs, enhancing the emotional well-being of those involved.

Furthermore, the community actively participates in research initiatives, contributing to a deeper understanding of CLOVES syndrome. This involvement not only aids in the development of potential treatments but also raises awareness about the condition in the broader medical community. Financial assistance programs help alleviate some of the economic burdens faced by affected individuals and their families, ensuring they access necessary care and support.

Overall, the Cloves Syndrome Community plays a vital role in improving the quality of life for those impacted by CLOVES syndrome, promoting advocacy, awareness, and a sense of belonging among its members.




This information is meant to be a general summary of Cloves Syndrome Community. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$141,229 (2023)
Expenses
$292,253 (2023)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2023.

  • Program Service Revenue: $26,709
  • Gross Receipts: $141,229

Assets and Liabilities:

  • Total Assets: $231,402
  • Total Liabilities: $0
  • Net Assets: $231,402

Want to help this charity, for free? You can click here to learn more about Give Freely

Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

END OF YEAR 2022

Revenue

$15,102

FAMILY CONFERENCE

Revenue

$11,607

Organization Details

Founding Year

2011

Principal Officer

Kristen Davis

Main Address

PO Box 406, West Kennebunk, ME, 04094

NTEE Category

Code: G80 - Disease

If you are a representative of Cloves Syndrome Community and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.