Overview
What is Li Fraumeni Syndrome Association Inc?
The Li Fraumeni Syndrome Association Inc, situated in Holliston, MA, is a nonprofit organization dedicated to providing support, information, and advocacy for individuals and families impacted by the Li Fraumeni Syndrome. The association fosters collaborations among researchers, medical professionals, and caregivers to advance research on this syndrome. Moreover, they organize fundraising events, such as the Cow Pie Contest in Westfield, MA, to support youth programs. In this event, participants buy squares on a gridded field, with the chance to win when a cow is released into the field. The Li Fraumeni Syndrome Association Inc's mission is to offer a comprehensive suite of services to those affected by this syndrome.
Official website here: www.lfsassociation.org
What do the Facebook reviews say about Li Fraumeni Syndrome Association Inc?
100% of five reviewers on Facebook highly recommend the Li Fraumeni Syndrome Association Inc. Here is a summary of their reviews:
The consistent praise highlights the exceptional support provided by the organization. Users express deep appreciation for the help their families are receiving, indicating that the association plays a crucial role in their lives.
Overall, the feedback suggests that the nonprofit is effectively meeting the needs of those it serves, demonstrating its commitment and dedication to supporting individuals affected by Li Fraumeni Syndrome.
This AI summary has been generated from reviews found on Facebook.
Is Li Fraumeni Syndrome Association Inc legitimate?
Li Fraumeni Syndrome Association Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Li Fraumeni Syndrome Association Inc submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Official website here: www.lfsassociation.org
What is the mission statement of Li Fraumeni Syndrome Association Inc?
The Li Fraumeni Syndrome Association Inc is committed to providing information, advocacy, and support to individuals and families impacted by the syndrome. They foster a collaborative network involving researchers, medical providers, and caregivers, aiming to advance the understanding and treatment of the syndrome through their efforts. The association also organizes fundraising events, such as the Cow Pie Contest, to raise funds for youth programs. This event encourages participants to purchase squares on a field, with the chance to win a prize as a cow is released into the area.
Official website here: www.lfsassociation.org
Who is the CEO of Li Fraumeni Syndrome Association Inc?
Holly Fraumeni is the Vice President of Li Fraumeni Syndrome Association Inc.
Official website here: www.lfsassociation.org
What is the revenue of Li Fraumeni Syndrome Association Inc?
Li Fraumeni Syndrome Association Inc's revenue in 2022 was $0.
Official website here: www.lfsassociation.org
Who are the executives of Li Fraumeni Syndrome Association Inc and what are their salaries?
Here are 4 key members and their salaries:
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Official website here: www.lfsassociation.org
Where can I find the form 990EZ for Li Fraumeni Syndrome Association Inc?
Li Fraumeni Syndrome Association Inc's most recent form 990EZ was submitted in 2022 and can be accessed here.
Official website here: www.lfsassociation.org
Learn more at the official website: www.lfsassociation.org
Mission Statement of Li Fraumeni Syndrome Association Inc
The Li Fraumeni Syndrome Association, in its mission, offers a multifaceted approach to supporting individuals and families affected by Li Fraumeni Syndrome. This nonprofit organization plays a vital role in advancing research related to the syndrome by collaborating with a consortium of researchers, medical providers, and caregivers. Beyond research, the Li Fraumeni Syndrome Association also engages in various advocacy and support services.
In their advocacy efforts, the association strives to raise awareness about Li Fraumeni Syndrome and its implications. They achieve this by organizing events such as the Cow Pie Contest in Westfield, MA, where participants purchase squares on a gridded field for a chance to win. This fundraiser not only supports youth program events but also contributes to the overall mission of the Li Fraumeni Syndrome Association.
In terms of support services, the association provides a comprehensive approach to assisting those affected by Li Fraumeni Syndrome. They offer resources, guidance, and a network of support for individuals and families navigating the challenges associated with this syndrome. The Li Fraumeni Syndrome Association acts as a bridge, connecting individuals with medical providers, caregivers, and other resources to ensure they receive the best possible care. Through their efforts, the association aims to improve the quality of life for those affected by Li Fraumeni Syndrome and support ongoing research to better understand and tackle this condition.
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Impact
October, 2024
Li Fraumeni Syndrome Association Inc plays a crucial role in supporting individuals and families affected by Li Fraumeni Syndrome (LFS), a rare hereditary condition that significantly increases the risk of various cancers. Through a wide range of information, advocacy, and support services, the association addresses the unique challenges faced by LFS patients and their families.
The organization promotes collaboration among researchers, medical providers, and caregivers, thereby advancing scientific understanding and treatment of the syndrome. This multifaceted approach not only enhances awareness of LFS but also fosters a supportive community for those impacted by it.
Additionally, through events like the Cow Pie Contest in Westfield, MA, the association raises funds to support youth programs, creating opportunities for education and engagement within the community. These initiatives not only help fund crucial research but also empower individuals and families by providing them with valuable resources and connections. Overall, the Li Fraumeni Syndrome Association Inc significantly contributes to improving the quality of life for those affected by this condition while driving forward essential research and support initiatives.
This information is meant to be a general summary of Li Fraumeni Syndrome Association Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
Assets and Liabilities:
- Total Assets: $380,416
- Total Liabilities: $0
- Net Assets: $380,416
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Organization Details
Phone
(774) 266-0503Principal Officer
Holly Fraumeni
Main Address
PO Box 6458, Holliston, MA, 01746
Website
www.lfsassociation.orgNTEE Category
Code: E86 - Health
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