Overview
What is Glut1 Deficiency Foundation Inc?
Glut1 Deficiency Foundation Inc is a nonprofit organization, specifically a patient advocacy group, dedicated to enhancing lives within the Glut1 deficiency community. Based in Owingsville, Kentucky, the foundation aims to increase awareness, improve education, and advocate for patients and their families. They support research to advance understanding, treatment, and ultimately, a cure for Glut1 deficiency. In 2022, they funded two research projects at two institutions for a total of $60,000. Additionally, they invested in various research initiatives, such as hosting scientific convenings and developing open-source tools. Their mission is fueled by a commitment to supporting research and fostering a collaborative network, ultimately striving to improve the lives of those affected by Glut1 deficiency.
Official website here: www.g1dfoundation.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 93%, Four-Star out of Four Star rating.
The Glut1 Deficiency Foundation Inc has received a commendable 93% score, indicating a strong performance in accountability and finance. This high rating reflects their commitment to transparency, with all board members being independent and no material diversion of assets reported. The organization demonstrates excellent financial health with a low liabilities to assets ratio and a substantial program expense ratio, showcasing its focus on effective service delivery.
In addition to financial integrity, the foundation excels in fostering a positive culture and community engagement. With a perfect score for constituent feedback and the collection and usage of feedback, it is clear that the organization values input from those it serves and strives to improve its practices continuously. The strong equity strategies score further illustrates their commitment to inclusivity and responsiveness to the needs of diverse stakeholders.
While the organization shows impressive strengths, the culture and community score is slightly lower than the accountability and finance score, indicating potential areas for growth in community engagement practices. Overall, the Glut1 Deficiency Foundation Inc stands out as a well-managed and impactful nonprofit, making significant strides in supporting individuals affected by Glut1 deficiency.
This AI summary has been generated from information found on Charity Navigator.
Is Glut1 Deficiency Foundation Inc legitimate?
Glut1 Deficiency Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Glut1 Deficiency Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $86,061
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.g1dfoundation.org
What is the mission statement of Glut1 Deficiency Foundation Inc?
The Glut1 Deficiency Foundation Inc is a nonprofit patient advocacy organization, committed to improving the lives of those affected by Glut1 deficiency. Its mission involves enhancing awareness, providing improved education, advocating for patients and their families, and offering support and funding for research related to this condition. The organization aims to accomplish this by fostering increased understanding, better treatments, and eventually, a cure for Glut1 deficiency. In pursuit of its mission, the foundation distributes research project grants to scientists with projects that align with its strategic research plan, investing in various research initiatives and collaborative efforts.
Official website here: www.g1dfoundation.org
Who is the CEO of Glut1 Deficiency Foundation Inc?
Glenna Steele is the President of Glut1 Deficiency Foundation Inc.
Official website here: www.g1dfoundation.org
What is the revenue of Glut1 Deficiency Foundation Inc?
Glut1 Deficiency Foundation Inc's revenue in 2022 was $776,976.
Official website here: www.g1dfoundation.org
Who are the executives of Glut1 Deficiency Foundation Inc and what are their salaries?
The average compensation at Glut1 Deficiency Foundation Inc during 2022 was $43,030. There are 2 employees and 10 volunteers at Glut1 Deficiency Foundation Inc.
Here are 10 key members and their salaries:
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- Compensation: $35,866
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- Compensation: $45,000
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- Other: $0
Official website here: www.g1dfoundation.org
Where can I find the form 990 for Glut1 Deficiency Foundation Inc?
Glut1 Deficiency Foundation Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.g1dfoundation.org
Learn more at the official website: www.g1dfoundation.org
Mission Statement of Glut1 Deficiency Foundation Inc
The Glut1 Deficiency Foundation is a nonprofit patient advocacy organization, committed to improving the lives of individuals and families affected by Glut1 Deficiency. Their mission is threefold: to promote increased awareness, enhance education, advocate for patients and their families, and provide support and funding for research. The organization aims to improve understanding, treatment, and ultimately, find a cure for Glut1 Deficiency. They accomplish this by distributing research project grants to scientists working on projects that align with the community's needs and priorities, as identified through collaborative stakeholder processes. In 2022, the Glut1 Deficiency Foundation funded two projects at two institutions for a total of $60,000. Additionally, they invest in initiatives to grow their collaborative research network, host scientific convenings, collect and process patient biosamples for ongoing research projects, develop a patient biorepository, and fund a natural history study, among other efforts.
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Impact
July, 2024
Glut1 Deficiency Foundation Inc has a significant impact on the Glut1 Deficiency community by increasing awareness, improving education, advocating for patients and families, and supporting research. This organization funds research projects aimed at better understanding the disease, developing better treatments, and ultimately finding a cure. In 2022, they funded two research projects at two institutions totaling $60,000. Additionally, they invest in various other research initiatives such as hosting scientific convenings, growing collaborative research networks, and developing a patient biorepository. Overall, Glut1 Deficiency Foundation Inc plays a vital role in advancing research and improving the lives of those affected by Glut1 Deficiency.
This information is meant to be a general summary of Glut1 Deficiency Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Program Service Revenue: $36,378
- Gross Receipts: $776,976
Assets and Liabilities:
- Total Assets: $447,949
- Total Liabilities: $7,545
- Net Assets: $440,404
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CONFERENCE INCOME
Revenue
$33,372
MERCHANDISE AWARENESS
Revenue
$3,006
Organization Details
Founding Year
2011
Phone
(859) 585-2538Principal Officer
Glenna Steele
Main Address
PO BOX 737, OWINGSVILLE, KY, 40360
Website
www.g1dfoundation.orgNTEE Category
Code: G12 - Disease
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