Overview
What is Hannah's Hope For Giant Axonal Neuropathy Inc?
Hannah's Hope For Giant Axonal Neuropathy Inc is a nonprofit organization situated in Saratoga Springs, New York. With a modest team of two individuals, their primary mission is dedicated to funding research aiming to develop a treatment or a cure for Giant Axonal Neuropathy (GAN). The organization's focus is on advancing research into gene therapy transduction to neurons, with the goal of slowing down or halting the progression of this debilitating disease. By investing in groundbreaking studies, Hannah's Hope for Giant Axonal Neuropathy Inc contributes to the global scientific community's efforts to find a solution for this genetic condition.
Official website here: www.hannahshopefund.com
What are the reviews and ratings of this charity?
Charity Navigator Rating: 83% (Three-Star out of Four Star rating)
Hannah's Hope For Giant Axonal Neuropathy Inc (HHF) has earned an 83% score on Charity Navigator, reflecting solid performance particularly in accountability and finance. With 100% independent board members and a high program expense ratio of nearly 87%, the organization demonstrates a strong commitment to its mission. However, it lacks whistleblower and document retention policies, which are essential for transparency and governance.
User feedback from Great Nonprofits highlights the dedication and impact of HHF, describing it as an inspiring grassroots organization that has made significant strides in research and awareness for Giant Axonal Neuropathy (GAN). Volunteers and family members express deep appreciation for the hard work of its founders, emphasizing the emotional and practical support provided to families affected by GAN. The charity is praised for its direct funding of scientific research, with many noting the hope it brings to affected families.
While the organization is celebrated for its achievements in advancing research in a relatively short time, it relies heavily on community support and grassroots fundraising efforts, as GAN is classified as an orphan disease with limited funding opportunities. Despite these challenges, the heartfelt testimonials from volunteers and families convey a strong sense of community and purpose that underscores the vital work that Hannah's Hope does.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Hannah's Hope For Giant Axonal Neuropathy Inc legitimate?
Hannah's Hope For Giant Axonal Neuropathy Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Hannah's Hope For Giant Axonal Neuropathy Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $2,750
For more financial information, click here
Official website here: www.hannahshopefund.com
What is the mission statement of Hannah's Hope For Giant Axonal Neuropathy Inc?
Hannah's Hope for Giant Axonal Neuropathy Inc. is committed to funding research aimed at discovering a treatment or a cure for Giant Axonal Neuropathy. Their mission is to make significant strides in this field, with a specific focus on funding research related to GAN gene therapy transduction into neurons. This research is intended to impact the progression of the disease.
Official website here: www.hannahshopefund.com
Who is the CEO of Hannah's Hope For Giant Axonal Neuropathy Inc?
Allison T Moore is the President of Hannah's Hope For Giant Axonal Neuropathy Inc.
Official website here: www.hannahshopefund.com
What is the revenue of Hannah's Hope For Giant Axonal Neuropathy Inc?
Hannah's Hope For Giant Axonal Neuropathy Inc's revenue in 2022 was -$717,738.
Official website here: www.hannahshopefund.com
Who are the executives of Hannah's Hope For Giant Axonal Neuropathy Inc and what are their salaries?
The average compensation at Hannah's Hope For Giant Axonal Neuropathy Inc during 2022 was $1,375. There are 2 employees at Hannah's Hope For Giant Axonal Neuropathy Inc.
Here are 7 key members and their salaries:
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- Compensation: $190,600
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- Other: $31,553
Official website here: www.hannahshopefund.com
Where can I find the form 990 for Hannah's Hope For Giant Axonal Neuropathy Inc?
Hannah's Hope For Giant Axonal Neuropathy Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.hannahshopefund.com
Learn more at the official website: www.hannahshopefund.com
Mission Statement of Hannah's Hope For Giant Axonal Neuropathy Inc
Hannah's Hope For Giant Axonal Neuropathy Inc is committed to funding research aimed at discovering a treatment and potentially a cure for Giant Axonal Neuropathy (GAN). This nonprofit organization's mission is to invest in scientific studies, specifically focusing on GAN gene therapy transduction into neurons, with the ultimate goal of slowing down or even reversing the progression of the disease. By supporting research in this area, Hannah's Hope For Giant Axonal Neuropathy Inc is working tirelessly to improve the lives of those affected by this debilitating condition, offering hope and potential solutions for the future.
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Impact
October, 2024
Hannah's Hope For Giant Axonal Neuropathy Inc plays a crucial role in advancing medical research focused on Giant Axonal Neuropathy (GAN). By funding grants specifically aimed at research into gene therapy transduction to neurons, the organization targets strategies to impact disease progression significantly. This proactive approach not only supports the scientific community in their quest for effective treatments and cures but also fosters hope for individuals and families affected by GAN. Based in Saratoga Springs, NY, the organization is dedicated to transforming research findings into tangible outcomes that could change lives affected by this debilitating condition.
This information is meant to be a general summary of Hannah's Hope For Giant Axonal Neuropathy Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: -$747,936
- Gross Receipts: $13,333,913
Assets and Liabilities:
- Total Assets: $8,206,230
- Total Liabilities: $1,093
- Net Assets: $8,205,137
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Organization Details
Founding Year
2008
Phone
(518) 275-5359Principal Officer
Allison T Moore
Main Address
70 RAILROAD PLACE 305, SARATOGA SPRINGS, NY, 12866
Website
www.hannahshopefund.comNTEE Category
Code: H12 - Medical research
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