Overview
What is Fabry Support & Information Group?
Fabry Support & Information Group (FSIG) is a 501(c)(3) nonprofit organization that prioritizes the welfare of individuals with Fabry disease. Their mission involves delivering essential information, fostering advocacy, and offering educational resources to enhance the quality of life and healthcare for those suffering from this condition. Through virtual and in-person meetings in various cities, FSIG provides patients with up-to-date insights from medical and industry professionals. These gatherings serve as a platform for patients to exchange experiences as well. The organization's efforts this year included hosting a virtual Fabry conference, attended by approximately 69 participants who paid a registration fee.
Official website here: www.fabry.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 56% (One-Star out of Four Stars)
The Fabry Support & Information Group (FSIG) has received a One-Star rating from Charity Navigator, indicating concerns regarding its accountability and finance. While the organization boasts a fully independent board and has established various policies for governance, its financial health raises red flags. The organization has a program expense ratio of only 48.18%, suggesting that less than half of its expenses are directed toward achieving its mission, which is below expectations for effective nonprofit operations.
Despite the financial concerns highlighted in the rating, user feedback on platforms like Great Nonprofits paints a vastly different picture of FSIG's impact. Many users express deep appreciation for the support and information the organization provides to individuals and families affected by Fabry disease. Users highlight the compassion, dedication, and invaluable resources FSIG offers, including educational materials, community-building events, and assistance in navigating medical challenges.
Overall, while FSIG faces significant scrutiny regarding its financial practices, it has garnered overwhelming positive feedback from clients and community members. The testimonials emphasize the critical role the organization plays in improving the lives of those impacted by Fabry disease and the sense of community it fosters, indicating a strong commitment to its mission despite the accountability issues noted by evaluators.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
What do the Facebook reviews say about Fabry Support & Information Group?
100% of the six reviewers on Facebook recommend the Fabry Support & Information Group. Here is a summary of their reviews:
The organization appears to have a positive reputation among those who have interacted with it. Reviewers express a need for psychological support for Fabry patients, indicating that while the group provides valuable information, there may be additional areas for development in terms of mental health resources.
Overall, the feedback suggests that the nonprofit is considered a supportive resource for individuals affected by Fabry disease, even as they look for expanded services to address emotional and psychological needs.
This AI summary has been generated from reviews found on Facebook.
Is Fabry Support & Information Group legitimate?
Fabry Support & Information Group is a legitimate nonprofit organization registered as a 501(c)(3) entity. Fabry Support & Information Group submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $72,400
Professional Fundraising Fees: $0
Other Salaries and Wages: $104,789
For more financial information, click here
Official website here: www.fabry.org
What is the mission statement of Fabry Support & Information Group?
The Fabry Support & Information Group, a nonprofit organization, is committed to improving the lives of individuals affected by Fabry disease. Their mission is centered around providing essential resources, including information, advocacy, and education. They also extend compassionate support to enhance the quality of life and care for Fabry patients. The organization conducts meetings in various cities, offering patients the chance to engage with medical professionals and share their experiences. This year, they held a virtual expert Fabry conference, attracting approximately 69 attendees who paid a registration fee.
Official website here: www.fabry.org
Who is the CEO of Fabry Support & Information Group?
Jack Johnson is the Executive Director of Fabry Support & Information Group.
Official website here: www.fabry.org
What is the revenue of Fabry Support & Information Group?
Fabry Support & Information Group's revenue in 2022 was $680,471.
Official website here: www.fabry.org
Who are the executives of Fabry Support & Information Group and what are their salaries?
The average compensation at Fabry Support & Information Group during 2022 was $25,313. There are 7 employees and 2 volunteers at Fabry Support & Information Group.
Here are 7 key members and their salaries:
- Compensation: $72,400
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.fabry.org
Where can I find the form 990 for Fabry Support & Information Group?
Fabry Support & Information Group's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.fabry.org
Learn more at the official website: www.fabry.org
Mission Statement of Fabry Support & Information Group
The Fabry Support and Information Group, a recognized 501(c)(3) organization, is committed to a mission that prioritizes providing information, advocacy, education, and emotional support to enhance the quality of life and healthcare for individuals affected by Fabry disease. This nonprofit organization is dedicated to serving Fabry patients by hosting meetings in various cities, allowing them to engage with medical and industry professionals. These gatherings not only offer updated information but also provide a platform for patients to share their experiences and learn from one another. This year, the Fabry Support and Information Group successfully organized a virtual expert Fabry conference, attended by approximately 69 individuals who paid a registration fee. The event aimed to disseminate relevant information and foster a sense of community among Fabry patients.
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Impact
July, 2024
Fabry Support & Information Group has a significant impact on individuals suffering from Fabry disease by providing essential information, advocacy, education, and compassionate support. Through their dedicated efforts, they improve the quality of life and care for Fabry patients. The organization holds meetings in various cities to ensure patients receive up-to-date information from medical and industry professionals while also facilitating a platform for patients to share their experiences. Additionally, their expert Fabry conference, which was held virtually this year with around 69 attendees, serves as a valuable educational resource for individuals affected by Fabry disease.
This information is meant to be a general summary of Fabry Support & Information Group. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $2,296
- Program Service Revenue: $107,623
- Gross Receipts: $680,471
Assets and Liabilities:
- Total Assets: $804,958
- Total Liabilities: $12,023
- Net Assets: $792,935
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
PROGRAM SERVICE REVENUE
Revenue
$107,623
Organization Details
Founding Year
2000
Phone
(660) 463-1355Principal Officer
Jack Johnson
Main Address
PO BOX 510, Concordia, MO, 640200510
Website
www.fabry.orgNTEE Category
Code: G20 - Disease
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