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Myasthenia Gravis Association

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 431699850 ✦ Kansas city, MO ✦ Designated as a 501(c)(3)

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Overview

What is Myasthenia Gravis Association?

The Myasthenia Gravis Association is a nonprofit organization situated in Kansas City, Missouri, with a US address at 2340 E Meyer Blvd. Their mission is to create a supportive environment for individuals living with myasthenia gravis, an autoimmune neuromuscular disorder. They achieve this by raising public awareness, offering educational resources, and fostering connections within the community. Over the course of 125 clinic sessions, they served 537 individuals, distributing 158 new patient packets and hosting 37 support group meetings attended by 738 individuals. The association, with a team of five dedicated employees, is committed to providing essential support and resources to those affected by myasthenia gravis.


Official website here: www.mgakc.org

Is Myasthenia Gravis Association legitimate?

Myasthenia Gravis Association is a legitimate nonprofit organization registered as a 501(c)(3) entity. Myasthenia Gravis Association submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $69,463
Professional Fundraising Fees: $0
Other Salaries and Wages: $26,905

For more financial information, click here


Official website here: www.mgakc.org

What is the mission statement of Myasthenia Gravis Association?

The Myasthenia Gravis Association strives to establish a supportive environment for individuals affected by myasthenia gravis. They achieve this by raising public awareness about the condition, offering educational resources, and encouraging meaningful interactions within the community. Their mission is geared towards fostering a sense of unity and empowerment among those living with myasthenia gravis. The association provides various services such as clinic sessions, distributing new patient packets, and hosting support group meetings to cater to the needs of over 500 individuals annually.


Official website here: www.mgakc.org

Who is the CEO of Myasthenia Gravis Association?

Allison Foss is the Executive Director of Myasthenia Gravis Association.


Official website here: www.mgakc.org

What is the revenue of Myasthenia Gravis Association?

Myasthenia Gravis Association's revenue in 2022 was $294,216.


Official website here: www.mgakc.org

Who are the executives of Myasthenia Gravis Association and what are their salaries?

The average compensation at Myasthenia Gravis Association during 2022 was $19,274. There are 5 employees and 185 volunteers at Myasthenia Gravis Association.


Here are 13 key members and their salaries:


Allison Foss (Executive Director)
  • Compensation: $69,457
  • Related: $0
  • Other: $8,928
Graham Naasz Dds (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lindsey Fliehs (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Mamatha Pasnoor Md (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Thomas Vansaghi Phd (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lisa Sackuvich Rn (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Al Dimmitt (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Brodie Beck (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Joe Bant (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jackie Carroll (Board Member)
  • Compensation: $0
  • Related: $0
  • Other: $0
Stephanie Hubers (Board Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michael Eagan (Board President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Derek Haverkamp (Board Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.mgakc.org

Where can I find the form 990 for Myasthenia Gravis Association?

Myasthenia Gravis Association's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.mgakc.org

Learn more at the official website: www.mgakc.org

Mission Statement of Myasthenia Gravis Association

The Myasthenia Gravis Association, as stated, is committed to establishing a supportive network for individuals afflicted by myasthenia gravis. Their primary objective is threefold: increasing public awareness about this condition, offering educational resources, and cultivating meaningful connections among those affected. By taking these steps, the association aims to create a stronger, more united community that can navigate the challenges associated with myasthenia gravis more effectively.

In practice, the Myasthenia Gravis Association accomplishes its mission through various means. One of their key initiatives is providing clinic sessions, which have served over 500 individuals to date. These sessions offer a space for individuals to seek assistance, learn more about their condition, and connect with others who share similar experiences. Additionally, the association distributes new patient packets to help newly diagnosed individuals gain a better understanding of myasthenia gravis. Furthermore, the association hosts support group meetings, allowing individuals to share their experiences and gain encouragement and advice from one another.

In summary, the Myasthenia Gravis Association's mission is to create a supportive community for those affected by myasthenia gravis. By increasing public awareness, providing educational opportunities, and fostering meaningful connections, the association aims to empower individuals and help them manage their condition more effectively. Through initiatives such as clinic sessions, new patient packets, and support group meetings, the association has demonstrated its commitment to this mission and its dedication to supporting those affected by myasthenia gravis.

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Impact




October, 2024

The Myasthenia Gravis Association significantly impacts the lives of those affected by myasthenia gravis by cultivating a supportive community, enhancing public awareness, and providing valuable educational resources. In Kansas City, Missouri, the association has facilitated 125 clinic sessions, directly benefiting 537 individuals. The distribution of 158 new patient packets ensures that newcomers have essential information and support as they navigate their diagnosis. Additionally, the 37 support group meetings have brought together 738 individuals, fostering connections and creating a network of understanding and shared experiences. Through these efforts, the association not only educates but also empowers patients and their families, helping them to cope with the challenges of living with this condition.




This information is meant to be a general summary of Myasthenia Gravis Association. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$294,216 (2022)
Expenses
$237,317 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $7,112
  • Gross Receipts: $331,703

Assets and Liabilities:

  • Total Assets: $508,172
  • Total Liabilities: $6,208
  • Net Assets: $501,964

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Organization Details

Founding Year

1994

Principal Officer

Allison Foss

Main Address

2340 E Meyer Blvd, Kansas City, MO, 64132

NTEE Category

Code: E60 - Health

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