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Charge Syndrome Foundation

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 431642150 ✦ Buffalo grove, IL ✦ Designated as a 501(c)(3)

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Overview

What is Charge Syndrome Foundation?

The Charge Syndrome Foundation is a nonprofit organization situated in Buffalo Grove, Illinois, at 318 Half Day Road 305. Their primary mission is to enhance the lives of individuals affected by Charge Syndrome, a genetic disorder, on a local, national, and international scale. They fulfill this objective by providing relevant information about Charge Syndrome through publications, offering support to families affected by the condition, organizing biennial conferences, and advocating for research related to Charge Syndrome. Their activities encompass research, outreach, education, and conference events. With a dedicated workforce of four individuals, the Charge Syndrome Foundation is committed to improving the lives of those touched by this syndrome.


Official website here: www.chargesyndrome.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 81% (Three-Star out of Four Star rating)

The Charge Syndrome Foundation has achieved an 81% rating from Charity Navigator, indicating a solid level of accountability and financial management. The score reflects a strong emphasis on fiscal responsibility, with all aspects evaluated contributing positively to the overall rating. The organization has no material diversion of assets and maintains a high program expense ratio, ensuring that the majority of its financial resources are directed toward its mission.

The foundation boasts a fully independent board, consisting of nine members, which is a significant strength in governance. With policies in place for conflict of interest, whistleblower protection, and document retention, the organization demonstrates a commitment to transparency and ethical practices. Additionally, its website is appropriately listed on its tax form, further enhancing its accountability profile.

While the Charge Syndrome Foundation has shown commendable financial health and strong governance practices, the rating is based solely on its Accountability & Finance scores. This focus may not reflect other important factors such as programmatic impact or community engagement, which could be areas for future assessment and improvement.


This AI summary has been generated from information found on Charity Navigator.

What do the Facebook reviews say about Charge Syndrome Foundation?

96% of 29 reviewers on Facebook recommend the Charge Syndrome Foundation. Here's a summary of their insights:

The organization is highly regarded for its efficient use of donations, with minimal overhead allowing a significant portion of funds to directly support services, research, and family assistance. Many users express gratitude for the unique services provided, highlighting the foundation as a crucial lifeline for families and individuals affected by CHARGE syndrome.

Overall, the sentiment is overwhelmingly positive, with reviewers celebrating the progress made by the foundation and its impactful role in the community. Supporters appreciate not only the direct benefits received but also the dedication of the foundation in advocating for those impacted by the syndrome.


This AI summary has been generated from reviews found on Facebook.

Is Charge Syndrome Foundation legitimate?

Charge Syndrome Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Charge Syndrome Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $80,308
Professional Fundraising Fees: $0
Other Salaries and Wages: $67,307

For more financial information, click here


Official website here: www.chargesyndrome.org

What is the mission statement of Charge Syndrome Foundation?

The Charge Syndrome Foundation is committed to enhancing the lives of individuals with Charge Syndrome on a global scale. They accomplish this through various means, including outreach, education, and research. The organization leads and collaborates in initiatives aimed at improving the quality of life for those affected by Charge Syndrome, both nationally and internationally. One of their primary functions is to disseminate information about Charge Syndrome through publications. Additionally, they offer support to families who have a family member with Charge Syndrome. Furthermore, the foundation organizes biennial conferences and backs research related to Charge Syndrome.


Official website here: www.chargesyndrome.org

Who is the CEO of Charge Syndrome Foundation?

David Wolfe is the President of Charge Syndrome Foundation.


Official website here: www.chargesyndrome.org

What is the revenue of Charge Syndrome Foundation?

Charge Syndrome Foundation's revenue in 2022 was $502,106.


Official website here: www.chargesyndrome.org

Who are the executives of Charge Syndrome Foundation and what are their salaries?

The average compensation at Charge Syndrome Foundation during 2022 was $36,904. There are 4 employees and 400 volunteers at Charge Syndrome Foundation.


Here are 10 key members and their salaries:


David Wolfe (President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Neal Stanger (Vice President)
  • Compensation: $0
  • Related: $0
  • Other: $0
Joanne Lent (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Amrit Mehta (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Allie Jones (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Anne Swenson (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ben Daigle (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Minnie Lee Lambert (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Penni Echols (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lisa Cunningham (Executive Director)
  • Compensation: $80,308
  • Related: $0
  • Other: $0


Official website here: www.chargesyndrome.org

Where can I find the form 990 for Charge Syndrome Foundation?

Charge Syndrome Foundation's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.chargesyndrome.org

Learn more at the official website: www.chargesyndrome.org

Mission Statement of Charge Syndrome Foundation

The Charge Syndrome Foundation is committed to enhancing the lives of individuals affected by Charge Syndrome on a local, national, and international scale. Through its mission, the organization leads and collaborates in initiatives that encompass outreach, education, and research. This nonprofit aims to provide vital information about Charge Syndrome to the public, offer support to families impacted by the condition, organize biennial conferences, and fund research related to Charge Syndrome. By pursuing these objectives, the Charge Syndrome Foundation seeks to improve the overall well-being and quality of life for those living with this syndrome.

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Impact




July, 2024

The Charge Syndrome Foundation has a significant impact on individuals living with Charge syndrome by providing support, information, and resources to them and their families. Through their focus on research, outreach, education, and conferences, the foundation plays a crucial role in improving the lives of those affected by Charge syndrome. Their efforts help raise awareness about the condition, facilitate knowledge sharing, and contribute to advancements in the field of Charge syndrome research. The foundation's work extends beyond local communities to a national and international level, making a tangible difference in the lives of individuals with Charge syndrome.




This information is meant to be a general summary of Charge Syndrome Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$502,106 (2022)
Expenses
$355,542 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $10,127
  • Gross Receipts: $576,562

Assets and Liabilities:

  • Total Assets: $1,432,888
  • Total Liabilities: $87,086
  • Net Assets: $1,345,802

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Organization Details

Founding Year

1993

Principal Officer

David Wolfe

Main Address

318 HALF DAY ROAD 305, BUFFALO GROVE, IL, 60089

NTEE Category

Code: T70Z - Philanthropy

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