Overview
What is Vasculitis Foundation?
The Vasculitis Foundation (VF) is a nonprofit organization situated in Kansas City, Missouri. With a global reach, VF serves a community of over 2,200 members worldwide by providing extensive resources and support. Their offerings include a comprehensive website, monthly newsletters, educational materials, podcasts, in-person and virtual conferences, support group meetings, and international symposia. VF addresses an average of 33,000 website visits and 3,500 email requests for assistance annually, as well as handling 50 phone requests per month. The organization collaborates with medical experts and researchers worldwide to advocate for early diagnosis, improved treatments, and the importance of research in addressing various forms of vasculitis. The Vasculitis Foundation is dedicated to being a leading force in diagnosing, treating, and ultimately curing these conditions.
Official website here: www.vasculitisfoundation.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 96%
The Vasculitis Foundation has achieved an impressive Four-Star out of Four Star rating from Charity Navigator, reflecting its strong performance in accountability and finance with a score of 97. The organization excels in various areas including a perfect score for feedback collection and usage, as well as a 100% independent board. This high rating signifies robust governance and transparency, making it a reliable choice for donors and supporters.
User feedback highlights the organization’s crucial role in providing support and resources for individuals affected by vasculitis. Many clients share heartfelt testimonials praising the staff's dedication and the valuable information offered, such as access to medical experts and support groups. The biennial symposiums facilitate interaction between patients and leading physicians, fostering a sense of community and support.
Despite the overwhelmingly positive reviews, there are some mixed sentiments regarding the organization’s scale and resources. While many clients and families express gratitude for the help received, a few reviews hint at the challenges faced due to the rarity of the disease and the limited number of staff. Overall, the Vasculitis Foundation stands out for its unwavering commitment to its mission and the impactful support it provides to those navigating rare autoimmune diseases.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Vasculitis Foundation legitimate?
Vasculitis Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Vasculitis Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $103,332
Professional Fundraising Fees: $0
Other Salaries and Wages: $222,370
For more financial information, click here
Official website here: www.vasculitisfoundation.org
What is the mission statement of Vasculitis Foundation?
The Vasculitis Foundation, aiming to be a leading organization globally, supports, inspires, and empowers individuals with vasculitis and their families through various educational, research, clinical, and awareness initiatives. Their vision is centered around diagnosing, treating, and ultimately curing all forms of vasculitis. By leveraging the collective strength of the vasculitis community, they strive to provide resources and guidance to those affected by this condition.
Official website here: www.vasculitisfoundation.org
Who is the CEO of Vasculitis Foundation?
Sara Baird Amodio is the President of Vasculitis Foundation.
Official website here: www.vasculitisfoundation.org
What is the revenue of Vasculitis Foundation?
Vasculitis Foundation's revenue in 2022 was $1,569,283.
Official website here: www.vasculitisfoundation.org
Who are the executives of Vasculitis Foundation and what are their salaries?
The average compensation at Vasculitis Foundation during 2022 was $65,140. There are 5 employees and 200 volunteers at Vasculitis Foundation.
Here are 13 key members and their salaries:
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Official website here: www.vasculitisfoundation.org
Where can I find the form 990 for Vasculitis Foundation?
Vasculitis Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.vasculitisfoundation.org
Learn more at the official website: www.vasculitisfoundation.org
Mission Statement of Vasculitis Foundation
The Vasculitis Foundation, a leading organization in its field, is committed to empowering individuals battling vascularitis and supporting their families. Their mission is to leverage the collective strength of the vascularitis community to advance education, research, clinical care, and awareness initiatives. The ultimate goal is to become a global authority in diagnosing, treating, and ultimately curing all types of vascularitis. By doing so, the Foundation aims to inspire and uplift those affected by this condition, offering them the resources and hope they need to overcome their challenges.
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Impact
July, 2024
The Vasculitis Foundation's impact is significant in supporting, inspiring, and empowering individuals with vasculitis and their families. By providing a wide range of education, research, clinical, and awareness initiatives, the foundation plays a crucial role in promoting early diagnosis, advocating for more effective treatments, and driving critical research efforts. Through its detailed website, e-newsletters, printed materials, podcasts, conferences, support groups, and symposia, the Vasculitis Foundation reaches thousands of individuals each month, offering valuable resources and support. Additionally, the foundation collaborates closely with vasculitis medical experts and researchers worldwide to advance knowledge and understanding of the disease. The annual Vasculitis Awareness Month, held in May, further enhances public and medical community awareness of vasculitis. With a global membership of 2,200 individuals, the Vasculitis Foundation is dedicated to becoming the leading organization in the world focused on diagnosing, treating, and ultimately curing all forms of vasculitis.
This information is meant to be a general summary of Vasculitis Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $32,894
- Program Service Revenue: $35,000
- Gross Receipts: $1,569,283
Assets and Liabilities:
- Total Assets: $2,457,931
- Total Liabilities: $28,409
- Net Assets: $2,429,522
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
SYMPOSIUM/CONF REGISTRATIONS
Revenue
$35,000
Organization Details
Founding Year
1988
Phone
(816) 436-8211Principal Officer
Sara Baird Amodio
Main Address
PO BOX 28660, KANSAS CITY, MO, 64188
Website
www.vasculitisfoundation.orgNTEE Category
Code: G50 - Disease
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