Overview
What is The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter?
The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter is a nonprofit organization dedicated to supporting individuals diagnosed with ALS and their families in Eastern Missouri and Central and Southern Illinois. Based in Saint Louis, Missouri, they provide patient care services, such as case management and free, individualized support programs, to over 300 individuals. Their care service coordinators guide families through healthcare systems, aiming to enhance functional independence and improve quality of life. The organization collaborates with various medical centers and providers, offering financial grants, medical equipment, and support services, including transportation assistance and assistive technology equipment loans. Additionally, they have a volunteer program and participate in community partnerships, striving to discover treatments and a cure for ALS while advocating and empowering those affected to live fulfilling lives.
Official website here: www.alsa-stl.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 65% (Two-Star out of Four Star rating)
The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter has received a Two-Star rating from Charity Navigator, indicating that while there are strengths in some areas, there are notable weaknesses in others. The organization demonstrates a strong commitment to governance, with a fully independent board and effective policies in place for conflict of interest, whistleblowing, and document retention.
In terms of culture and community engagement, the chapter scores highly, showcasing its ability to gather and utilize feedback effectively. However, its Accountability & Finance score of 60 suggests areas for improvement, particularly in financial management practices. This may impact the overall perception of its effectiveness and sustainability in the long term.
The chapter also faces challenges in equity data collection and reporting, scoring low in this area. While it has demonstrated some equity strategies, the lack of comprehensive data and processes could limit its ability to fully address equity issues within the community it serves. Overall, while there are positive aspects, the organization has room for growth in financial accountability and equity transparency.
This AI summary has been generated from information found on Charity Navigator.
Is The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter legitimate?
The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $130,565
Professional Fundraising Fees: $0
Other Salaries and Wages: $605,345
For more financial information, click here
Official website here: www.alsa-stl.org
What is the mission statement of The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter?
The Amyotrophic Lateral Sclerosis Association, in its mission, aims to discover treatments and a cure for ALS. Beyond research, the organization serves, advocates for, and empowers individuals diagnosed with ALS and their families, enabling them to live their lives to the fullest. The association provides patient care services, including case management and supportive programs, free of charge, to over 345 individuals in Eastern Missouri and Central and Southern Illinois. Their care service coordinators assist families in navigating healthcare systems, aiming to increase functional independence and improve quality of life. The association collaborates with ALS multidisciplinary treatment centers, durable medical equipment providers, seating/mobility providers, and hospice/home healthcare providers, among others. Additionally, they offer financial grants, medical equipment, transportation assistance, augmentative communication and assistive technology equipment loans, and a volunteer program for visiting helpers and companionship.
Official website here: www.alsa-stl.org
Who is the CEO of The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter?
Katie Mcgovern is the Board Chair of The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter. The CEO's salary of The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter is $26,029 and their total compensation is $27,110.
Official website here: www.alsa-stl.org
What is the revenue of The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter?
The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter's revenue in 2022 was $2,624,591.
Official website here: www.alsa-stl.org
Who are the executives of The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter and what are their salaries?
The average compensation at The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter during 2022 was $40,884. There are 18 employees and 223 volunteers at The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter.
Here are 29 key members and their salaries (The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter's CEO's salary is $26,029 and their total compensation is $27,110):
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- Compensation: $26,029
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- Other: $1,081
Official website here: www.alsa-stl.org
Where can I find the form 990 for The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter?
The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.alsa-stl.org
Learn more at the official website: www.alsa-stl.org
Mission Statement of The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter
The Amyotrophic Lateral Sclerosis Association St. Louis Regional Chapter is dedicated to making significant strides in the quest for treatments and a potential cure for ALS. Beyond this, the organization serves, advocates for, and empowers individuals affected by ALS, enabling them to live their lives to the fullest.
In accomplishing its mission, the chapter provides patient care services, including case management and supportive programs and services to 345 individuals diagnosed with ALS and their family members in Eastern Missouri and Central and Southern Illinois. These services are offered at no cost to the recipients. Care service coordinators work tirelessly to help families navigate complex healthcare systems, aiming to enhance functional independence and improve the overall quality of life.
By assessing patient and family needs, the chapter develops personalized care plans that encompass home visits, counseling, end-of-life care planning, and grief counseling. The chapter collaborates with various community partnerships, such as ALS multidisciplinary treatment centers at Saint Louis University and affiliated clinics at Washington University and John Cochran VA Medical Center in St. Louis, St. Francis in Cape Girardeau, and SIU Medical Center in Springfield, Illinois.
In addition, the chapter collaborates with durable medical equipment providers, seating/mobility providers, hospice/home healthcare care providers. Financial grants, medical equipment, nutritional supplements, transportation assistance, augmentative communication, and assistive technology equipment loans are also offered to those in need. The chapter further supports its mission through a volunteer program, providing visiting helpers to assist with household chores and companionship.
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Impact
July, 2024
The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter has a significant impact on individuals and families affected by ALS in Eastern Missouri and Central and Southern Illinois. With a mission to discover treatments and a cure for ALS, the chapter provides essential patient care services to 345 diagnosed individuals and their family members. These services include case management, counseling, end-of-life care planning, grief counseling, and assistance with navigating healthcare systems.
By offering free programs and services, the chapter strives to increase functional independence and improve the quality of life for those living with ALS. Through partnerships with ALS multidisciplinary treatment centers and affiliated clinics, as well as collaborations with medical equipment providers and hospice/home health care providers, the chapter ensures that patients receive comprehensive support.
Furthermore, the chapter's provision of financial grants, medical equipment, nutritional supplements, transportation assistance, and augmentative communication technology demonstrates its commitment to meeting the diverse needs of ALS patients. The volunteer program also plays a vital role in providing practical help and companionship to individuals and families facing the challenges of ALS.
In summary, The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter's impact is significant in supporting and empowering those affected by ALS to live their lives to the fullest while working towards finding a cure for this challenging disease.
This information is meant to be a general summary of The Amyotrophic Lateral Sclerosis Association St Louis Regional Chapter. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $38,996
- Program Service Revenue: $1,200
- Gross Receipts: $2,825,705
Assets and Liabilities:
- Total Assets: $5,164,940
- Total Liabilities: $246,147
- Net Assets: $4,918,793
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
EDUCATION SERVICES
Revenue
$1,200
Organization Details
Founding Year
1984
Phone
(888) 873-8539Principal Officer
Katie Mcgovern
Main Address
1950 CRAIG ROAD 200, SAINT LOUIS, MO, 63146
Website
www.alsa-stl.orgNTEE Category
Code: G50 - Disease
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