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Lupus Foundation Of America Inc

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 431131436 ✦ Washington, DC ✦ Designated as a 501(c)(3)

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Overview

What is Lupus Foundation Of America Inc?

The Lupus Foundation of America Inc, based in Washington D.C., is a dedicated nonprofit organization with a mission to enhance the lives of those affected by lupus. Through comprehensive programs, they aim to improve early diagnosis and treatment by increasing awareness and understanding of the condition. In 2022, their reach extended globally through their website, online education, campaigns, social media, and community partnerships, garnering an annual online audience of over 11 million visits and a social media following of 414,000. Their efforts in raising awareness were marked by successful social media campaigns, national television appearances, and observing World Lupus Day. The Foundation's activities encompass research, education, support, and advocacy, employing 66 individuals to further their cause.


Official website here: www.lupus.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 94%, Four-Star out of Four Star Rating

The Lupus Foundation of America Inc has received a commendable rating of 94%, which reflects strong accountability and financial practices, including a perfect score for leadership adaptability. The organization has maintained a fully independent board, ensuring transparency and effective oversight. Furthermore, a substantial 83.28% of their expenses are allocated directly to programs, demonstrating a commitment to using donations effectively.

Despite these positive financial indicators, user feedback reveals significant concerns regarding the organization's responsiveness and customer service. Many donors and clients have reported negative experiences, citing rudeness from staff and inefficiencies in scheduling donations. Complaints about poor communication and lack of support for individuals dealing with lupus have led to dissatisfaction among those seeking assistance.

Overall, while the Lupus Foundation of America showcases strong financial health and governance, the recurring negative experiences shared by users illustrate a need for improvement in service delivery and engagement with the community. This disconnect may hinder potential support and donations from individuals who feel overlooked or unvalued.


This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.

Is Lupus Foundation Of America Inc legitimate?

Lupus Foundation Of America Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Lupus Foundation Of America Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $1,567,093
Professional Fundraising Fees: $158,660
Other Salaries and Wages: $4,394,336

For more financial information, click here


Official website here: www.lupus.org

What is the mission statement of Lupus Foundation Of America Inc?

The Lupus Foundation of America is committed to enhancing the lives of those affected by lupus through initiatives in research, education, support, and advocacy. The organization's primary goal is to improve the quality of life for all individuals dealing with lupus.

The Foundation conducts programs to increase awareness and comprehension of lupus and its effects, promoting earlier diagnosis and treatment. In 2022, the Foundation expanded its reach through its website, online education programs, social media marketing, and community partnerships. Their website is a leading source for lupus-related information, with over 11 million annual visits.

During Lupus Awareness Month in May, the Foundation raised awareness through social media, email, and national TV segments on NBC's Today Show and Telemundo's Hoy Día. They spearheaded the annual Global Observance of World Lupus Day on May 10 and executed a worldwide "Make Lupus Visible" social media campaign. The Foundation's efforts to raise awareness spanned social media, email, and even secured national TV segments, successfully reaching a global audience.

Moreover, over 110 content creators joined the three-day "Game On! To End Lupus" live stream event, where streamers from around the world raised awareness of lupus and funds for lupus research.


Official website here: www.lupus.org

Who is the CEO of Lupus Foundation Of America Inc?

Julie Tune is the Chair of Lupus Foundation Of America Inc. The CEO's salary of Lupus Foundation Of America Inc is $358,156 and their total compensation is $383,036.


Official website here: www.lupus.org

What is the revenue of Lupus Foundation Of America Inc?

Lupus Foundation Of America Inc's revenue in 2022 was $17,263,965.


Official website here: www.lupus.org

Who are the executives of Lupus Foundation Of America Inc and what are their salaries?

The average compensation at Lupus Foundation Of America Inc during 2022 was $90,325. There are 66 employees and 3085 volunteers at Lupus Foundation Of America Inc.


Here are 27 key members and their salaries (Lupus Foundation Of America Inc's CEO's salary is $358,156 and their total compensation is $383,036):


Andrew Brophy (Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Joseph A Arnold Esq (Vice Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Christine Smith (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Barbara Polk (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0
Janine Allen (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Judy Barlin (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lynn Blandford (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Lindsay Cafritz (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Karen Costenbader Md Mph (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Conrad Gehrman (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jane Hawley (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Cindy Messerly (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Phong Nguyen (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tim Nolan (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Cheri Perron (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Amy Yalden (Director - Until 12/2021)
  • Compensation: $0
  • Related: $0
  • Other: $0
Stevan W Gibson (President & Chief Executive Officer)
  • Compensation: $358,156
  • Related: $0
  • Other: $24,880
Jeanine Smith (Vp, Network Development)
  • Compensation: $209,777
  • Related: $0
  • Other: $25,006
Julie Tune (Chief Financial Officer)
  • Compensation: $193,056
  • Related: $0
  • Other: $20,645
Mary T Crimmings (Vp, Marketing & Communications)
  • Compensation: $236,662
  • Related: $0
  • Other: $29,088
Patrick Wildman (Vp, Advocacy & Government)
  • Compensation: $201,502
  • Related: $0
  • Other: $18,681
Leigh Ann Cardenas (Vp, Individual Giving)
  • Compensation: $187,491
  • Related: $0
  • Other: $16,851
Michael Donnelly (Vice President, Communications)
  • Compensation: $177,818
  • Related: $0
  • Other: $14,465
Susan J Gloor (Regional Director, Ne)
  • Compensation: $170,261
  • Related: $0
  • Other: $21,627
Matt Degooyer (Senior Regional Director, Pnw)
  • Compensation: $145,431
  • Related: $0
  • Other: $16,443
Desiree Wienand (Director, Corporate Engagement)
  • Compensation: $146,839
  • Related: $0
  • Other: $13,926
James Dossinger (Director Of Digital Strategy)
  • Compensation: $142,576
  • Related: $0
  • Other: $14,410


Official website here: www.lupus.org

Where can I find the form 990 for Lupus Foundation Of America Inc?

Lupus Foundation Of America Inc's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.lupus.org

Learn more at the official website: www.lupus.org

Mission Statement of Lupus Foundation Of America Inc

The Lupus Foundation of America, Inc. is a dedicated organization that strives to enhance the lives of all those affected by lupus. Through their mission, they focus on research, education, support, and advocacy to make a significant impact on the lupus community (activityOrMissionDesc).

The Foundation is committed to improving the quality of life for those battling lupus, an often-invisible disease. They achieve this through various means, including public information and education programs, which aim to increase awareness and understanding of lupus and its consequences (desc). In 2022, the Foundation expanded its reach through their website, online education programs, social media marketing, and community partnerships, making lupus-related information more accessible than ever before (desc).

The organization's educational initiatives span social media, email, and even national TV segments, such as on NBC's Today Show and Telemundo's Hoy Dá. During Lupus Awareness Month in May, the Foundation highlighted the often-unseen ways lupus impacts everyday life, raising awareness and addressing health disparities (desc). In addition, they executed a global "Make Lupus Visible" social media campaign, sharing essential lupus education facts with the world. The Foundation's efforts to raise awareness even attracted over 110 content creators for their three-day live stream event, "Game On! To End Lupus," where streamers from around the world came together to raise awareness and funds for lupus research.

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Impact




October, 2024

The Lupus Foundation of America Inc. significantly improves the quality of life for individuals affected by lupus through a comprehensive approach emphasizing research, education, support, and advocacy. In 2022, the foundation expanded its outreach efforts to raise awareness and understanding of lupus, ultimately aiming for earlier diagnosis and effective treatment.

Their extensive online presence serves as a leading source of lupus-related information, attracting over 11 million visits annually. The foundation actively engages with the public through various channels, including their social media, which has garnered a following of 414,000 across six major platforms. Through campaigns such as the "Spotlight Series," the foundation addresses health disparities and the unique impact of lupus on different populations.

Highlighting lupus awareness is a key focus, particularly during Lupus Awareness Month in May, where campaigns included national TV segments on popular networks and community-driven events. The annual observance of World Lupus Day on May 10 features campaigns like "Make Lupus Visible," which utilize social media to share crucial educational materials globally.

Additionally, events like "Game On! To End Lupus," which is a three-day live stream initiative uniting content creators worldwide, showcase innovative ways to generate awareness and funds for lupus research. This multifaceted approach not only educates the public but also fosters a supportive community for those living with lupus, significantly enhancing their quality of life.




This information is meant to be a general summary of Lupus Foundation Of America Inc. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$17,263,965 (2022)
Expenses
$15,418,407 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $18,304
  • Program Service Revenue: $1,211,689
  • Gross Receipts: $17,368,419

Assets and Liabilities:

  • Total Assets: $9,829,433
  • Total Liabilities: $4,078,827
  • Net Assets: $5,750,606

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Programs

Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

PROG. EVENTS/OTHER

Revenue

$1,024,211

MEMBERSHIP DUES

Revenue

$182,206

PUBLICATIONS

Revenue

$5,272

Organization Details

Founding Year

1977

Principal Officer

Julie Tune

Main Address

2121 K STREET NW 200, WASHINGTON, DC, 20037

NTEE Category

Code: G89Z - Disease

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