Overview
What is Association For Glycogen Storage Disease?
The Association for Glycogen Storage Disease (AGSD) is a nonprofit organization committed to offering family support and increasing awareness about Glycogen Storage Disease (GSD). In 2020, the organization successfully hosted an annual conference that attracted over 400 attendees. Furthermore, AGSD extended financial assistance to three individuals through scholarships, contributing to its mission of advocating for and supporting those affected by Glycogen Storage Disease.
Official website here: www.agsdus.org
What do the Facebook reviews say about Association For Glycogen Storage Disease?
There are currently only two reviews available for the Association for Glycogen Storage Disease on Facebook. While the ratings are not yet established, the feedback indicates a positive sentiment towards the organization. One reviewer expressed appreciation for the valuable knowledge shared regarding management of the condition and the latest advancements in treatment.
Overall, the responses highlight that the organization is seen as a helpful resource for individuals dealing with Glycogen Storage Disease. People appreciate the focus on education and support in navigating the complexities of the condition. Although the review volume is limited, it suggests that the nonprofit is making a positive impact for those affected by Glycogen Storage Disease.
This AI summary has been generated from reviews found on Facebook.
Is Association For Glycogen Storage Disease legitimate?
Association For Glycogen Storage Disease is a legitimate nonprofit organization registered as a 501(c)(3) entity. Association For Glycogen Storage Disease submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Official website here: www.agsdus.org
What is the mission statement of Association For Glycogen Storage Disease?
The Association for Glycogen Storage Disease's mission is centered around providing family support and raising awareness about Glycogen Storage Disease. This is achieved through various means, such as hosting an annual conference that attracted over 400 attendees in 2020. Furthermore, the association offers scholarships to individuals in need. To support these initiatives, the Association for Glycogen Storage Disease raises funds to further its mission of advocating for and aiding those affected by this condition.
Official website here: www.agsdus.org
Who is the CEO of Association For Glycogen Storage Disease?
Kim Burney is the President of Association For Glycogen Storage Disease.
Official website here: www.agsdus.org
What is the revenue of Association For Glycogen Storage Disease?
Association For Glycogen Storage Disease's revenue in 2022 was $114,536.
Official website here: www.agsdus.org
Who are the executives of Association For Glycogen Storage Disease and what are their salaries?
Here are 11 key members and their salaries:
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Official website here: www.agsdus.org
Where can I find the form 990EZ for Association For Glycogen Storage Disease?
Association For Glycogen Storage Disease's most recent form 990EZ was submitted in 2022 and can be accessed here.
Official website here: www.agsdus.org
Learn more at the official website: www.agsdus.org
Mission Statement of Association For Glycogen Storage Disease
The Association for Glycogen Storage Disease is dedicated to providing family support and raising awareness about Glycogen Storage Disease. They accomplish this mission by hosting an annual conference, which attracted over 400 attendees in 2020. Moreover, the organization extends its support by offering scholarships to three individuals annually. The funds raised through such initiatives enable the Association for Glycogen Storage Disease to fulfill its mission of promoting awareness and providing assistance to families affected by this condition.
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Impact
October, 2024
The Association for Glycogen Storage Disease plays a crucial role in supporting families affected by this condition and raising awareness about it. With significant outreach efforts, the organization hosted an annual conference in 2020 that attracted over 400 participants, providing a platform for education, community building, and sharing of experiences among families and healthcare professionals.
Additionally, the Association actively supports individuals pursuing education or research related to Glycogen Storage Disease through scholarships. This financial assistance empowers recipients and fosters a deeper understanding of the disease, ultimately contributing to better outcomes for patients and families affected by Glycogen Storage Disease.
By promoting awareness and providing essential family support, the organization enhances the quality of life for those impacted and helps advance knowledge and research in the field.
This information is meant to be a general summary of Association For Glycogen Storage Disease. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $1,531
- Gross Receipts: $114,536
Assets and Liabilities:
- Total Assets: $400,692
- Total Liabilities: $375
- Net Assets: $400,317
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Organization Details
Phone
(515) 661-5509Principal Officer
Kim Burney
Main Address
1542 FLAMMANG DR, WATERLOO, IA, 50702
Website
www.agsdus.orgIf you are a representative of Association For Glycogen Storage Disease and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.